Kim, Happy 10 year "Liveranniversary" !!! Life is truly a blessing and each day is such a gift :) Hope you have an AMAZING day. Can't wait for the Games in Madison, hope to meet you there. Take care and best wishes for a wonderful 10 year! Hugs, Holdol*
Hey Kim! Thanks for your comment. I'm excited to be administrator and put my passion for organ donation into this site. I know, it is SO crazy that our lives changed that quickly. It's like I woke up from a nap and bam I had a new liver and a whole new life. Sometimes it's still surreal to me that it even happened! Congrats on your 9 year anniversary! Good to hear the checkup went well. Did they ever find out what happened to your liver?
Hi Kim, I’m writing on behalf of our 27-member Board of Directors of transplant surgeons, medical directors, et al, at http://www.fairfoundation.org/Board/board.htm to ask you to consider also advocating for new organ-donor policies and you can do that verbally with UNOS members and with your politicians at the following link by just using your zip code and our prepared letter: http://fairfoundation.org/organdonation/contactcongressfororgandonation.htm. We need more frank discussion and admittance that altruism is failing badly in meeting the demand. You are I are lucky liver recipients, but as you have stated above, many others are not, in fact, a person on the waiting list, or one who was on but was removed to being too ill dies every hour. God Bless and thank you for your advocacy for OD.
Richard
PS: We’d be honored to have you join us as a member at the FAIR Foundation. It’s free!
Dr. Richard Darling, DDS: Past National Public Citizen of the Year (NASW)
President and CEO: The FAIR Foundation, a national organization with thousands of members and supporters whose goal is to reverse inequities in NIH research funding and to institute new organ-donor policies to reverse America’s organ-donor crisis
Founder: The FAIR Foundation Liver Disease & Transplant Support Group
Author: Coma Life, an autobiographical memoir of life "within" coma and survival over hepatitis C induced liver cancer, coma, 3 liver transplants, heart attack, diabetes & Muscular Dystrophy (Myasthenia Gravis)
Address: 78629 Bougainvillea Drive, Palm Desert, CA 92211 Ph: 760-200-2766
At 4:11pm on September 10, 2008, Kim Jacques said…
Hey Kim!
Just wanted to drop a note and say "hi!" Not much going on in my world. I go back to Tampa General in November for a check-up. I'm sure it'll be fine because I've gone back to my walking and keeping track of my weight (writing it down on the calendar each week). Oh, and I've currently got a scratchy/sore throat and my voice comes and goes....oh goodie *rolls eyes*
How are you?? How did the senior pictures turn out? What else is going on in your world?
Hugs!
Kim :-)
Thanks for the encouragment Kim. I have a biopsy tomorrow. They dropped my prednisone by 5mg per day again today. So we are getting there. Started PT today. Had a blast! I am gonna want to talk with you when my incarceration up here ends. I want to get into speaking on behalf of organ donation and transplants. Will post results on the biopsy when i get them. TTYL
Kim, I forgot to thank you for your comment on my video sharing a piece of my brother's life. I appreciate it and you are a very kind and caring person!
Yes we do liver transplants here too.I had mine nearly 6 months ago and am doing well. Heaps of leg pain and a silly bile duct tube but that should come out soon. I would love to hear other people's first year out experience. I am so impatient to get on with things but find I don't have the strength or energy even when I think I do.
Well send me a message and we can chat.
Kia Ora, Robert
Thank you Kim I love this site now I have somewhere to meet others who know all the perks and probs with tx..thanks for the add I wish you blessings and good health
Hi Kim
Thank you to for being my friend too.
You look so well I not doing to badly just enjoying my life with my daughter hope to chat soon take care god bless Nicola
Hi! Thank you for the compliment. You picture is very beautiful aslo! You definitely don't look like you had a transplant. I randomly found this website yesterday and I have already talked to a few people that suffered from acute liver failure like me. So you think it may have been an antidepressant? Wow that's really crazy. They thought at first it may have been an antibiotic that caused my liver to fail, but they ruled that out eventually. I see that you are involved in the Transplant Games. I would love to learn more about it. Well take care!
Hey - just wanted you to know that I talked to Dr. Rayhill today and passed on your message. He was very touched and so glad to hear that you are doing well. He remembered you even before I said your name - I just said a blonde from Iowa that had a liver transplant and he threw your name out there immediately. Seems that you left a good impression!
Oh, and yes - Laura and I are friends. We have known each other for years and I was fortunate to have her as a roomie in Pitt. She is wonderful indeed!
I will most definitely say hey to Dr. Rayhill the next time I see him. I am sure he would love to hear about how well you are doing. And thanks for the congrats, yes I was pretty successful with the bling - but I can't tell you how much it meant to me just to be there with all of these amazing people. Life changing to say the least. Are you going to World's?
Kim - glad that you found this site too. Just wanted to let you know that I work with Dr. Rayhill now here in Portland, Oregon. Great guy! Glad things worked out so well for you!
Hey Kim! I just discovered this site...it seems pretty neat. I had a great time at the Games. I hope all went well with your trip, too. It was great to get to chat a little bit. See you at the next PAC meeting.
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Richard
PS: We’d be honored to have you join us as a member at the FAIR Foundation. It’s free!
Dr. Richard Darling, DDS: Past National Public Citizen of the Year (NASW)
President and CEO: The FAIR Foundation, a national organization with thousands of members and supporters whose goal is to reverse inequities in NIH research funding and to institute new organ-donor policies to reverse America’s organ-donor crisis
Founder: The FAIR Foundation Liver Disease & Transplant Support Group
Author: Coma Life, an autobiographical memoir of life "within" coma and survival over hepatitis C induced liver cancer, coma, 3 liver transplants, heart attack, diabetes & Muscular Dystrophy (Myasthenia Gravis)
Address: 78629 Bougainvillea Drive, Palm Desert, CA 92211 Ph: 760-200-2766
Just wanted to drop a note and say "hi!" Not much going on in my world. I go back to Tampa General in November for a check-up. I'm sure it'll be fine because I've gone back to my walking and keeping track of my weight (writing it down on the calendar each week). Oh, and I've currently got a scratchy/sore throat and my voice comes and goes....oh goodie *rolls eyes*
How are you?? How did the senior pictures turn out? What else is going on in your world?
Hugs!
Kim :-)
Yes we do liver transplants here too.I had mine nearly 6 months ago and am doing well. Heaps of leg pain and a silly bile duct tube but that should come out soon. I would love to hear other people's first year out experience. I am so impatient to get on with things but find I don't have the strength or energy even when I think I do.
Well send me a message and we can chat.
Kia Ora, Robert
How are you? I haven't heard from you in a while so I'm dropping in to see how you're doing.
Hugs!
Kim
Thank you to for being my friend too.
You look so well I not doing to badly just enjoying my life with my daughter hope to chat soon take care god bless Nicola
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