Joost van Male's Comments

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At 8:34am on June 25, 2012, Karen Weddick said…
At 3:35pm on June 26, 2011, Sue R. said…
At 10:37am on June 26, 2011, Karen Weddick said…
At 8:29am on December 20, 2010, Stephanie Whitmore said…

Joost, I am actually feeling terrific!  I am much stronger than I was before my transplant, suffering from cholangitis/blood infections every month.  I am just getting stronger and healthier each and every day!  Most everything for me has stayed the same or went back to normal except for at first I was craving Ice cream like crazy and I also enjoy working out now.  I think the transplant motivated me and maybe to offset the ice cream:).  I did have strange dreams while sedated during and after my transplant that made me wake to say that I had a transplant from a 17 year old boy.  I found out months later that was the case.  Not sure if maybe the doctors said it while I was in operating room or what???  My mom also had the same feeling, but no one told her and she was never sedated ;)  Hope you have a Merry Christmas!

At 5:21pm on December 17, 2010, Karen Weddick said…

Hi there Joost:


I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
imikimi -
At 9:57am on December 17, 2010, Linda J Vaughan said…

Hi there Joost

 

Welcome to this great group of people who really care and share.

I am new here too - glad you have found your way here and glad we met at Flinders recently.   We are both incredibly blessed to have this second chance at life.

 

I hope you have a great Christmas and New Year and I look forward to hearing more of your progress and meeting up with you again in the new year.

 

Love and hugs,

 

Linda.

 

At 8:59am on December 17, 2010, Sue R. said…

Just wanted to stop by and say "Welcome".  Glad you joined here. Their are alot of great caring people here who offer their experiences and support.  Take the time to look around, join a few groups, read discussion, make comments or start a discussion of your own. Wishing you all the best.

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Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
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