Thank-you for the birthday wishes. And happy late birthday to you! I had a wonderful day celebrating Canadian thanksgiving with family and close friends followed by a fantastic Wall-E birthday cake!
Its a small world... my wifes name is Bobbie-Jo also! She goes by 'Bob' most of the time which creates some confusion when I talk about her to people who don't know me all that well... hhehehe
I just wanted to thank you for the red ribbon and the birthday greetings. You helped make my day extra special. You are a wonderful person and freind and I appreciate you thinking of me and my birthday.
Morning Bobbiejo, I wanted to say that I read through your bio and saw what you had to go through. I'm so glad the god put people on the earth with the knowledge and talent to make something like your procedure possible. I think it's a true miracle with any transplant but yours is one of the more extreme. I'm glad your doing good and hope you have a long healthy and happy life.
Thanks Bobbiejo. I have some really quit ones of a humming bird that was building a nest next to my deck I'll have to post with some other birds pics. I didn't really realize how many pictures I took in the last 7 months. If I was to guess I would put the number at 20k.
Thank you very much Bobbiejo,for thinking of my birthday and the gift! Last year,nothing was more unsure than me ever celebrating again...
How are you?
Take care and thanks again.
"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
Bobbiejo Winfrey's Comments
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Thank You! I have Carcinoma (SCC), I have an App. at Hospital to remove 11/16/11. I am prayin it has not spread to other parts of my body.
A lot of minor problems right now, but I'm hopein its just depression.
Take Care, ''And God Bless You & your Family!''
Bobbiejo,
Thank you so the beautiful post on my page. You're like a poet, always have such beautiful and inspiring words for us.
May God Bless you always!! :)
Bobbiejo,
May you continue great success with this GIFT you've had for 6yrs.
Your comments and posts are so inspirational, very touching!!
God Bless!!
Its a small world... my wifes name is Bobbie-Jo also! She goes by 'Bob' most of the time which creates some confusion when I talk about her to people who don't know me all that well... hhehehe
It is very much appreciated especially coming
from your sweet self!
TC AdminKaren Weddick said…
glitter-graphics.com
TC AdminKaren Weddick said…
I just wanted to thank you for the red ribbon and the birthday greetings. You helped make my day extra special. You are a wonderful person and freind and I appreciate you thinking of me and my birthday.
Love, hugs and blessings, Karen
Thanks for your gift! Your story is amazing, and you are an inspiration to all of us! Thank you for being you!
Morning Bobbiejo, I wanted to say that I read through your bio and saw what you had to go through. I'm so glad the god put people on the earth with the knowledge and talent to make something like your procedure possible. I think it's a true miracle with any transplant but yours is one of the more extreme. I'm glad your doing good and hope you have a long healthy and happy life.
Mark
Hope you like what I just posted, as well as the 10 minute photo presentation in the link I posted.
Best wishes,
Neil
Thanks Bobbie Jo for your kind comments about my photography. You've motivated me to add more, just for you.
Hugs,
Neil
Bobbiejo,
Thank you for your bday wishes and beautiful words!!
Have a wonderful day!!!
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