oh, ok trying to live life...but its hard! I tire so easy, kinda afraid to leave the phone because who knows when the next call will come. Everyone says be patient they are waiting for the perfect heart but its hard. How are you doing 6 years out? Are things back to normal for you?
Yes, My transplant center is New York Presbyterian Hospital in the city. A LVAD is a left ventrical assisted device. Like a mechanical heart. A pump is implanted in your chest attached to your heart. I drive line comes out your side and is attached to a device. You have to wear it on your hip with 2 batteries or be attached to a PBU unit. The batteries lasts about 3 hours before u have to change it. I'm always on batteries unless i'm sleeping then u have to go on the pbu unit. It saved my life. Its not as bad as it sounds :-)
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JJ is now a member of TransplantCafe.com - The Gift of eLife!
"You have every right to worry and to express your feelings. It's a roller coaster ride and we have all been holding on for years. I am very happy that you are feeling well. We need to vent our feelings . I think it is difficult for most people…"
"Thank you for your reply. I've deceided to make an appointment with my local nephrologist since I don't go back to Jackson Memorial in Miami until September. My creatine is 0.8 really good so I'm sure there is nothing wrong with it…"
"I hear that hernias hurt. A lot.
The side where my kidney's located is a bit more bulgy than the other side and my belly has a funny shape. Other people can't tell but from my point of view is very evident.
Your kidney is probably…"
"Well,I'm back in Canada and I've been feeling well, even better than when all this started. I guess I shouldn't worry too much. Now that it's apparently over it is like nothing happened. I guess I earned a couple experience…"
"Mike, hope all goes well next week. You will be surprised at how different the evaluation process is now. Quite a bit easier and not nearly as evasive as before. I wish you well. If you want to talk more just let me know."
"Hi Beverley. I hope youre felling well. I live in eureka mo. I had my heart transplant at stl univ in 1984. I now see Dr Ewald at Barns. Im Going in Next week to be evaluated for a second transplant!"