Hi Jo How are you . I know its been a while but Im back in school trying to get in to the nursing program and have been super bussy. I hope you are doing well. What did you hear about your board? are you a civilian yet? I will send youa note on your e-mail Hope youre enjoying your spring. Take care
You are so right regarding the ALF experience. To wake up and find out that I had a new liver and was so close to death was quite an experience. It has really given me a new perspective on life as I'm sure you can relate. I believe, as you say, things do happen for a reason and this experience has made me stronger in a number ways. I pray that you will enjoy good health for years to come. God bless you and your son.
Ms. DeMary we share a similar story. On Sunday, March 2, 2008 my wife was deployed to Iraq with the Navy. The next day I began having flu-like symptoms. On Wednesday March 5, 2008 I was admitted to the hospital. It turns out I had Acute Liver Failure. I slipped into a coma and on March 10th with only hours to live I received the gift of life. I was 36 years old at the time and in perfect health; but I was exposed to a toxin aboard a ship I was stationed aboard that destroyed my liver in a relatively short time. Congratulations on being over two years post transplant. I wish you many more to come.
I see you are making new friends. God works in misterious ways. Hope all is well with you. My family and I are doing very well. We are in Illinois at this time, my father in-law flew us in to surprise my mother in-law fr her birth day. I see that you are friends with Mike, he and I are members of Team Maryland for the Transplant Games. Well gotta go fr now hope all your board stuff is is going well. take care and God Bless. Hooah
Hi, sounds like everything happened to you at once? I had a kidney/pancreas in 1995. I had a rejection episode within my first month, and thank God none since. Maybe you being rundown is a sign of your body going through soooo much, and the thought and worry of the review coming up. I do want to wish you and yours all the very best always. WHEN you get things straightened out. There is always room on team Maryland for you! Always looking for good teammates? Positive thinking leads to positive results. Take care, and God bless. Mike.
I am 17 months out. I think your transplant center is the best place to ask. I agree with Marke, I think that good lab numers is equal to good liver function. What you describe could be alot of things including the flu.
Hope your transplant center calls back soon.
Hey joanne, Im not a doctor but 15months post tx is a good teaching tool- I've been thru alot and ask millions of questions- early on my docs told me there are no stupid questions, its been my understanding good blood work = good liver function, have they changed or added new meds? don't freak out ( I used to whenever I felt a pain or weirdness in my abdomen trust in your doctors that they can handle things. I had to have several biopsies post tx and a few trips to the hospital. I'm only a few months behind you TX time and I hope you always stay that way. anyway at least reading this killed some time while your waiting for your tx team to get back to you
welcome I too am new at this site- what I found so far is great. all of us are brothers under the skin now, we know we are blessed,,lucky and making the best of our do'over in life. I never thought I'd get this far and I want to get back into living. its been a long hard, strange journey we are all in this together
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"