Was reading your story. I re live my 2 years prior to my Liver Transplant. I was so scared and lived alone and never had any warning when I would go into The Zone Of I Don't Know Who I Am Or What I Am Doing Can't Figure Out How To Call For Help...
That is the past!!! We are alive and well
Hi Lee, I just wanted to say hi and see how everything is going with you. I had a liver 3 years ago and loving every minute of life :) Hope your enjoying the site and take care...
Hello,
I am fairly new to this forum and i love it and i am find it very interesting findin gmore patienst out there close to home.
My husband rcvd a liver transplant on 02-20-07 , 2 1/2 yrs ago and it was dont by Dr Goss at Methodist Hospial.
we jsut rcvd a letter from our donor family and so excited.
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985Take care, Karen
Kidney Tx 1972 & 2007 glitter-graphics.com
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Welcome to TransplantCafe.com - The Gift of eLife!
"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
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TC AdminKaren Weddick said…
Musical Scraps for Orkut
Lee,
Happy Birthday!!!! Have A Great Day!!!
Don
Happy Birthday Lee! :)
TC AdminKaren Weddick said…
Was reading your story. I re live my 2 years prior to my Liver Transplant. I was so scared and lived alone and never had any warning when I would go into The Zone Of I Don't Know Who I Am Or What I Am Doing Can't Figure Out How To Call For Help...That is the past!!! We are alive and well
When Know One Is LQQKINGTC AdminKaren Weddick said…
I am fairly new to this forum and i love it and i am find it very interesting findin gmore patienst out there close to home.
My husband rcvd a liver transplant on 02-20-07 , 2 1/2 yrs ago and it was dont by Dr Goss at Methodist Hospial.
we jsut rcvd a letter from our donor family and so excited.
we live in pasadena, tx
email : mssara1962@yahoo.com
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TC AdminKaren Weddick said…
Kidney Tx 1972 & 2007
glitter-graphics.com
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