I wanted to wish you a BIG Congratulations on your 4 years with your new kindey and pancreas. I am so glad you are doing well. Wishing you many more filled with great memories, new discoveries, friendship, many hugs and smiles and lots of love & happiness. More important though, I wish you continued good health. Have fun celebrating!
Thanks for your message; and I am doing much better. Levels are staying stable and that's a great sign. Sorry to hear about your bladder infections; I have had 2 bouts with CMV soon after my transplants, but didn't last too long, Does make me wonder if this
is possibly the cause of my slight pancreas rejection.
I did have urinary trac infection in April which I was quite ill and about 1 month later is when my amylase/liapase levels begin to rise..... makes one wonder.
I'm just anxious to start cutting back on some meds; especially the Prednisone -- heavy doses now and I and tell. Never have had good eyes (due to 47 yrs of diabetes) and the pred affects them too, plus the swollen face etc.
thanks again for thinking of me and keep writing ---
Hi Cathy, i haven"t worked in eight years I say busy with a lot of different things Lately I have stayed with my day while he had eye surgery. We are waiting to get the final word on my niece about being a donor. She had to have several test on her liver. I would like to find someone to talk about pre and post transplant with. It sounds like you have some issues post. Take Care.
Hi fellow kidney/pancreas transplant recipient! My Angel's name is Kelly. She saved my life, and sooo many others. I sure hope everything is going well for you? Wishing you and yours the VERY best. Take care, and God bless. Mike
Hey Cathy,,,,,How's the Kid/Pancreas? Isn't great to have a Pancreas that makes Insulin! I am so glad for you:) Yes Dr. 'Peter' Stock is way cool isn't he? We need more Docs like him~~~and Cely is the greatest:)
Well my road for another Kid.Pancreas goes like this...I need a living donor (prefered) then they will do a pancreas after like 6 months to 1 year. My current Kidney (my wife Nancy who donated to me in '92) isn't doing so well...last creatine was 2.9 bun 68...so today our nieghbors just offered me 1 of their Kidney's ! Is that way cool or what? Well God knows all about how it will work out:) Oh yes I miss my Pancreas! Ok well tell me more about you ok? Take Care, Tracy
Yes amen for Dr. Peter Stock & Cely Hinson !!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hope your k/p is going good? I was just at UCSF last Nov. for another Kidney/Pancreas evaluation...lost my Pancreas after 18 1/2 years and my Kidney is so so at this point. Anyways you're in good hands at UCSF....God bless you and take care...Tracy
"I’ll try to make this shorter as I accidentally deleted the comment I just made in response to Dave Goodman.
Weaning is not for everyone, it may be a fatal mistake to try it. You have been selected to receive a graft after a long and…"
10 hours ago
Hyung Paik is now a member of TransplantCafe.com - The Gift of eLife!
"Hi, I'm two years out for Liver TP. Went into rejection after 3rd week. They had me on 4gm of Tacrolimus X 3. for a year, then 5mg X 2, and down to 2 x 2. My Tac level was 3.7 last test. Up from 3. They want you between 8 and 18. I was also on…"
"0.5 mg Prograf 3x/wk sounds weird. If you are really taking that dosage you may not need Prograf. My transplant date was May 2003. I have never had a rejection episode and after six years on Prograf alone I decided to taper off Prograf…"
"I have never heard of anyone taking .5 mg. of prograf every 9 days. Are you sure that's right? .5 mg. twice a day is the lowest dose I've heard of. I take 1 mg. twice a day and it's considered a low dose. Prograf is taken daily,…"
"i recieved my new liver 32 months today Nov. 2 2012 MY 53 Birthday. I was put on Prograf and have done very well. I only take a .5mg capsule every 9 days. I assume that is great right? is there ever a point where one can be…"