I wanted to wish you a BIG Congratulations on your 4 years with your new kindey and pancreas. I am so glad you are doing well. Wishing you many more filled with great memories, new discoveries, friendship, many hugs and smiles and lots of love & happiness. More important though, I wish you continued good health. Have fun celebrating!
Thanks for your message; and I am doing much better. Levels are staying stable and that's a great sign. Sorry to hear about your bladder infections; I have had 2 bouts with CMV soon after my transplants, but didn't last too long, Does make me wonder if this
is possibly the cause of my slight pancreas rejection.
I did have urinary trac infection in April which I was quite ill and about 1 month later is when my amylase/liapase levels begin to rise..... makes one wonder.
I'm just anxious to start cutting back on some meds; especially the Prednisone -- heavy doses now and I and tell. Never have had good eyes (due to 47 yrs of diabetes) and the pred affects them too, plus the swollen face etc.
thanks again for thinking of me and keep writing ---
Hi Cathy, i haven"t worked in eight years I say busy with a lot of different things Lately I have stayed with my day while he had eye surgery. We are waiting to get the final word on my niece about being a donor. She had to have several test on her liver. I would like to find someone to talk about pre and post transplant with. It sounds like you have some issues post. Take Care.
Hi fellow kidney/pancreas transplant recipient! My Angel's name is Kelly. She saved my life, and sooo many others. I sure hope everything is going well for you? Wishing you and yours the VERY best. Take care, and God bless. Mike
Hey Cathy,,,,,How's the Kid/Pancreas? Isn't great to have a Pancreas that makes Insulin! I am so glad for you:) Yes Dr. 'Peter' Stock is way cool isn't he? We need more Docs like him~~~and Cely is the greatest:)
Well my road for another Kid.Pancreas goes like this...I need a living donor (prefered) then they will do a pancreas after like 6 months to 1 year. My current Kidney (my wife Nancy who donated to me in '92) isn't doing so well...last creatine was 2.9 bun 68...so today our nieghbors just offered me 1 of their Kidney's ! Is that way cool or what? Well God knows all about how it will work out:) Oh yes I miss my Pancreas! Ok well tell me more about you ok? Take Care, Tracy
Yes amen for Dr. Peter Stock & Cely Hinson !!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hope your k/p is going good? I was just at UCSF last Nov. for another Kidney/Pancreas evaluation...lost my Pancreas after 18 1/2 years and my Kidney is so so at this point. Anyways you're in good hands at UCSF....God bless you and take care...Tracy
According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.See More
Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days. I will keep you in my thoughts - and hope for the best possible…"
Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.