hi jasmin i wake up with the migraines.so now before i go to sleep i get my boyfriend to give me a neck massage and it worked i also take imitrex when it doesnt but they only allow me 9 a month i dont know what id do if i lose the boyfriend my girlfriend suggested a heating pad. transplants affect us in alot of different ways dont they?
I just wanted to stop by and say "Welcome", glad you have joined us here at the cafe. The people here are all very kind and supportive of one another~always willing to share their experiences and information that they have learned along this journey. Take a look around and join a few groups (there is one for heart tx's), read discussions and feel free to make comments of your own. We're all here for each other. Cute Bunny!. My best to you.
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Welcome to TransplantCafe.com - The Gift of eLife!
"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
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TC AdminKaren Weddick said…
Musical Scraps for Orkut
hi jasmin i wake up with the migraines.so now before i go to sleep i get my boyfriend to give me a neck massage and it worked i also take imitrex when it doesnt but they only allow me 9 a month i dont know what id do if i lose the boyfriend my girlfriend suggested a heating pad. transplants affect us in alot of different ways dont they?
TC AdminKaren Weddick said…
Hello Jasmin,
I just wanted to stop by and say "Welcome", glad you have joined us here at the cafe. The people here are all very kind and supportive of one another~always willing to share their experiences and information that they have learned along this journey. Take a look around and join a few groups (there is one for heart tx's), read discussions and feel free to make comments of your own. We're all here for each other. Cute Bunny!. My best to you.
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