post liver transplant still hep c positive need to stop the virus

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c treated with teplavir,interferon. ribovirin. Help!!!!!!!! Im losing it.

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Comment by Bill S. on August 3, 2011 at 3:25am

 Hep C is for some of us a lifetime sentence. I was transplanted 3/22/2005 and the virus was there immediately post tx. I tried the ribo last year with no response. I'm now stage 4 CKD and will probably need dialisis at some point. But you know what? God is good, I've had 6 1/2 years post tx and I'm praising Him for it.

 

Comment by Tom Russell on August 2, 2011 at 8:50pm

Hi.

 I'm 20 months out. I was at stage 2 six months out. My hep c had developed into cancer so after my transplant I was on an experimental cancer drug. I was scheduled to start the peg interferon stuff at one year but on my mri there was a spot so they decided not to go ahead with it. All I can tell you is what I've been told. No one I know of knows of any trails for post transplant using the new telaprevir. I would do the regular chemo again if I had the chance. They use lighter doses than they used too. Best of luck to you, Tom

Comment by A. Front on August 2, 2011 at 8:15pm

You might want to look into doing the new current treatment for hep C which is proving more successful.

I'd also suggest you post your question on the medhelp.org web site under hep C.

There are a lot of knowledgeable people there who might be better able to help you.

Good luck.

Comment by Carlos on August 2, 2011 at 2:13pm
Get a 2nd opinion or change doctors. Like bellybuttons, all institutions are collecting lint so they can publish according to their research protocol.  Perhaps someone decided you should be a control. You are ultimately responsible for your own survival.

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