For some reason after being stable for quite awhile now my Prograf levels have been causing troubles here lately. I was always one of those who had to take a fairly large amount of Prograf to get my levels to where they need to be. Well that was then I guess!! I had gone into the hospital for a couple days right after Christmas for what they seemed to think was a 24 hour bug or something. About a week after I had regular labs my Creatnin was up and when we got the Prograf levels next day we found out why it was up to 23 and it was supposed to be around 8-11 at this point. My coordinator and I thought that maybe I was given too much Prograf in the hospital. I was on 7/7 then so they had me hold my Prograf that morning and then reduced it to 5/5. I had labs done a few days later and it was back around 10 so I stayed on that dose. A week after the initial labs I was tested again and this time it was back up to 13, okay that's weird we all thought so again they lowered my dose to 4/4. My next level was back up to 20!! At this point we are trying to figure out anything that it could be. There are no new meds, nothing has changed in my diet it's kind of mind boggling!! So they lowered me to 2/2 and I just had labs yesterday and I am back in range!! What a time it has been! We are just going to leave things the same and recheck everything with full labs on February 2. Talk about an ordeal!! My coordinator is kind of worried about lowering it so much it's such a balancing act and I've never really had problems with it like this before. I am about 18 months out from my transplant. I am hoping this sets things straight for awhile keeping my fingers crossed that's for sure!!
If any of you have had similar experiences please let me know I'd be interested to hear anything you have to share!! Otherwise things are going great and I am definitely thankful for that!!