I've got so much to say, but what I really want to know is....
Post transplant, has anyone (post dialysis) regained their libido, but have had a million bladder infections that now both partners are afraid to be intimate? For fear of another infection?
Here's the story:
My live-in boyfriend and I (together 9 years) had "lovins", then I got a UTI, then THAT turned into CMV in my lungs. I almost died, and now, nothing is happening in bed.
Cely and Dr Stock at UCSF say that taking me off Valcyte 6 months after tx was the cause of the CMV. One of their collegues in TX said they had the same problem with some of their k/p tx patients too. SO NOW, they're thinking of making patients take Valcyte for a longer term, like 9 months, so CMV doesn't rear it's life altering head.
Does anyone know what the terms "ICU Psychosis" or "Brain Fog" are? I do! My dreams during the 2 wks in ICU w/the CMV/Pneumonia where HORRENDOUS.
This blog entry has sat in my 'puter for 2 days waiting for me to finish it. My left eye hemoraged, but it's going to be fine, so I've been a little preoccupied. For any tx patient new to this website PLEASE know I'm so happy now that I'm here that one of my co-workers hatefully finds me annoying (she's too miserable for words).
I WOULD do this again and again, but it IS a journey!
Happy Thursday to all of you, and you're all in my thoughts (really) and in my prayers too!