I JUST RECIEVED A CALL FROM MY TRANSPLANT NURSE AND SHE SAID MY PROGRAF LEVELS WENT FROM A 5-6 TO A 12 ! I HAD NO IDEA WHAT THIS MEANT SHE ASKED IF I HAD GRAPEFRUIT JUICE WHICH I HAVENT I ACTUALLY DONT LIKE IT! SO I NEED TO GO REDO MY LABS ON MONDAY NOV.2 I AM SOO WORRIED BECAUSE I KNOW THIS COULD MEAN REJECTION! I GUESS I WOULD LIKE TO KNOW IF ANYONE HAS HAD THIS PROBLEM? I HAVE BEEN HAVING PAIN IN MY UPPER LEFT ABDOMIN AREA AND MY KIDNEY IS ON MY RIGHT. MY DOCTOR LOWERED MY MAGNESIUM. SINCE MY MAG LEVELS ARE ALWAYS LOW. MY CELLCEPT I SOMETIMES GET UPSET STOMACH WITH IT SO I HAVE NO IDEA WHATS GOING! I JUST NEED SOME ADVICE ON WHAT TO DO OR THINK I HAVE BEEN A NERVOUS RECK SINCE MY CALL! IM VERY WORRIED BECAUSE I HAVE NEVER HAD MY PROGRAF THIS HIGH BEFORE AND IM VERY SCARED SO IF ANYONE CAN LET ME KNOW WHAT TO DO OR EXPECT I APPRECIATE ANY ADVICE.

THANK YOU

DEBI

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Comment by Deborah on November 2, 2009 at 11:16pm
Thank you, Janet. Congrats on your transplant.I appreciate the advice and hopefully thats all I will need.
Comment by Janet Leaf on November 2, 2009 at 5:08am
My Prograf levels went high at one point and the Transplant team lowered my dosage and everything has been fine since then. (I had a single lung transplant 6/23/09)
Comment by Deborah on November 1, 2009 at 9:07am
Thank you for the info....I have been having headaches but I thought it was just all the stress I been under. I wont know anything til my lab results come back but I will keep you posted I really appreciate you sharing this information with me.
Comment by Heather Brenner on October 31, 2009 at 12:21pm
Hi, I don't think a "HIGH" level of Prograf level is rejection, they will probably LOWER your prograf level by having you skip a dose and then start back up on the next day.. don't quote me on it but this has happened to me and I ended up in the hospital for having bad headache and they realized that my prograf level was 18 so that's what they did. Your body may have been slow to digest it and it backed up. Hope this helps and keep me posted

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William R, Armstrong posted a status
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William R, Armstrong posted a status
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