For Shahara Gales - hope the hurt is less today - - Gary and Wanda

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Wes Cook commented on TransplantCafe.com's group Team Prograf
"I'm taking 2 x 2,  I want to ween lower but and have been temped but must have my Doctor on board with it. I will bug him again in a couple months. It has only been 4 months since it was lowered"
4 hours ago
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, Haven't your docs noticed that you're not taking prograf? What do they say about it? Same question for Wes."
4 hours ago
Wes Cook commented on TransplantCafe.com's group Team Prograf
"Hi, I'm two years out for Liver TP. Went into rejection after 3rd week. They had me on 4gm of Tacrolimus X 3. for a year, then 5mg X 2, and down to 2 x 2. My Tac level was 3.7 last test. Up from 3. They want you between 8 and 18. I was also on…"
4 hours ago
Carlos commented on TransplantCafe.com's group Team Prograf
"0.5 mg Prograf 3x/wk sounds weird.  If you are really taking that dosage you may not need Prograf. My transplant date was May 2003.  I have never had a rejection episode and after six years on Prograf alone I decided to taper off Prograf…"
5 hours ago
David Goodman commented on TransplantCafe.com's group Team Prograf
"Where did you receive your transplant?"
5 hours ago
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"i was put on .5 mg of prograf three times a week at first but the level stayed to high so they got it to a  .5mg capsule every 9 days and that has been for the last 30 months."
6 hours ago
David Goodman commented on TransplantCafe.com's group Team Prograf
"I have never heard of anyone taking .5 mg. of prograf every 9 days. Are you sure that's right? .5 mg. twice a day is the lowest dose I've heard of. I take 1 mg. twice a day and it's considered a low dose. Prograf is taken daily,…"
6 hours ago
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"this may sound stupid but  it felt like my bones would vibrate but after about 3 months that passed"
8 hours ago
Karen Weddick commented on TransplantCafe.com's group Team Prograf
"The main side effect I experienced was terrible trembling.  It was awful.  Finally the doctors switched me to Rapamune and life is now great!"
8 hours ago
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"can anyone tell me what the side effects of prograf are? i have only noticed the thinning of my body hair. I've always been bald so that isn't a problem. but i was always a Hairy Man until now."
8 hours ago
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"i recieved my new liver 32 months today Nov. 2 2012 MY 53 Birthday.  I was put on Prograf and have done very well.  I only take a .5mg capsule every 9 days. I assume that is great right?  is there ever a point where one  can be…"
8 hours ago
William R, Armstrong joined TransplantCafe.com's group
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Team Prograf

This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
8 hours ago
Matthew J Litkie liked Matthew J Litkie's discussion Is anyone taking the New Med. for $10,000 pr month?
Monday
Matthew J Litkie posted a discussion

Is anyone taking the New Med. for $10,000 pr month?

The new med that is at 90 some odd % success rate. Cost around $10,000 pr month. The Company is giving it out to some for no cost, but the Lucky Ones are90% Gone, Super high MELD scores See More
Monday
Ramona left a comment for Terri Lynne
"The poor kidneys have to take up all the slack! "
Sunday
Terri Lynne commented on Catherine (Cathy)'s group Who's On Cellcept?
"I see the doc next month"
Sunday

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