Hi I've been a member of the cafe of a long time. Fisrt it was for Cirrhosis of the Liver. Since then I was told I have COPD. I'm told it's fairly comon to have both, but I can't find anyone with both? If anyone here has bad luck like I seem to. Please contact me. I feel alone! MIKE

Views: 421

Comment

You need to be a member of TransplantCafe.com - The Gift of eLife! to add comments!

Join TransplantCafe.com - The Gift of eLife!

Comment by mike buntlin on August 28, 2011 at 5:22am
Hi Tiffany  Sorry to here you are having other problems like I am. I sent a friends request but forgot to and a message. From what little I understand about PAH I think it is treatable? I hope your heart test gomes out fine. I be more than glad to talk to you more. Until then hope all goes well. MIKE 
Comment by Tiffany Paige Ruffin on August 27, 2011 at 8:08pm
I have Cirrhosis and COPD. I don't no if it is fairly common or not but I also have PAH and they say that having Cirrhosis can cause that. Just had test done on my heart I find out the results Tue.
Comment by Judy Edwards on August 26, 2011 at 3:23pm
Hi Mike.  My husband had cirrhosis but didn't have COPD.  He got cirrhosis from Hep C.  I know what you mean though about feel alone.  I think most people who are waiting for a transplant feel that way.  I know I did and I wasn't even the one needing the transplant.  Just remember though you are not alone.  My husband's transplant hospital actually has group sessions for peoplel pre and post liver transplant.  It is set up by the social workers.  My husband was ready to go about a week before he got his new liver.  He was in so much pain and that he could barely get out of bed.  This was from the chemo treatements he had though and not the actual liver disease.  He really thought he was going to die.  He never did make it to a meeting though because he received his new liver a few days after he decided to go.  Just remember, there are caring and loving people on this board and I think all of us have gone through that lonliness period at some point.  Please feel free to e-mail me if you want to talk.  I will try and respond asap.  God Bless

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

David Goodman commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Some of us have already passed along meds that were surplus. Do it privately."
Tuesday
David Goodman commented on Lili Feldman's group The Funny Bone
"Ba-a-a-a-a-a-a-d Parrot A young man named John received a parrot as a gift. The parrothad a bad attitude and an even worse vocabulary.Every word out of the bird's mouth was rude, obnoxious andlaced with profanity. John tried and tried to…"
Monday
Caring 4 Carrie posted a blog post

Which Are Healthier Food Choices For Diabetes?

Happy 'S.H.A.R.I.N.G' Sunday! Today's Kidney Fact: Diabetics have to make healthier food choices to avoid a drop in blood sugar which causes Hyperglycemia. (Test your knowledge and kindly share your answer.) You Should Eat A Lot Of This If You Have Diabetes: A) Natural Sugar B) Added Sugar C) Fiber D) Processed foods Note: The correct answer will be provided tomorrow.See More
Monday
Caring 4 Carrie posted a status
"This is Mr Michael Robbins. He's seeking a kidney donor.…"
Monday
Mariel Ammerlaan Carr joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Sunday
Mariel Ammerlaan Carr is now a member of TransplantCafe.com - The Gift of eLife!
Sunday
Frank Colangelo posted a status
"Yes I am."
Sunday
HDHONEY replied to Frank Colangelo's discussion Vomiting and Diarrhoea after being exposed to chemicals
"Frank  r u having these problems just when working.  I also have had a liver transplant. Weird that stuff is not agreeing with u. hope u can get answers, sure its not ur med "
Saturday
Frank Colangelo joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Nov 20
Frank Colangelo posted a status
"Hi There is anybody online"
Nov 20
Frank Colangelo posted a discussion

Vomiting and Diarrhoea after being exposed to chemicals

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping someone can give me some answers.Kind regardsFrankSee More
Nov 20
Profile IconKristi Ide, Michael , Cathy Estrada and 2 more joined TransplantCafe.com - The Gift of eLife!
Nov 19
Gene Cost posted a discussion

Working after Transplant

Hello to everyone,My name is Gene and I was transplanted almost 3 years ago. I suffered from liver failure as a result of Hep C. I am 59 years old now. I suffered a torn rotator cuff as a result of my positioning during my transplant and it took some time to recover from that. I did not have any surgery I simply learned to live with it. I also incurred steroid induced diabetes as a result of the transplant and now have a fair amount of neuropathy in my feet. I have found that I fatigue much easier than I once did. My doctor has concluded that I have also suffered some cognitive impairment and as a result of my illness and I have been declared fully disabled. After a year of rehabilitation I returned to work part time delivering auto parts. I have been working for 18 months now. By federal law I can earn $1070/month and continue to receive disability. I find it difficult to live on my part time wages however I have determined that in order to justify going to work full time I would…See More
Nov 19
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Yep, Dallas Buyers Club is a great story and example for sure! Personally, I'm with you. Professionally, TC couldn't be involved, unfortunately. And it really is unfortunate because it would help so many people. Sort of like organ donation…"
Nov 17
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Nelson, I understand the laws, but we all know a lot of meds are discarded by patients that don't need them anymore. I don't expect the pharmacies to give it away but there must be away for transplant recipients to do something. Remember…"
Nov 17
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Hi John, I think that would be a great service for the transplant community and other patients too. However, I don't think the laws allow this, unfortunately. You're right about there being a great need for a program like this for…"
Nov 17

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2014   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service