I went to Ohio State yesterday for my 6 month check. My transplant surgeon said I doing really well to be 6 month out. I also just finished my 1st semester of college since the transplant. It crazy to think that lil over 6 months I was wondering if I would ever be able to start back to school. These past 6 months have really opened my eye because I got a second change and I'm going to enjoy every bit of it. My anti rejection level are also finally going up this is the longest I've ever had to go with out have my anti rejection increase and it been 3 weeks since the last time they've increased it. So hopefully everything starting to look up.

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Comment by Robert Rowell on May 19, 2011 at 5:51am

I just had my 4 month check up here.  They are taking me down slow but I swear I have my days where I am losing it but to be honest...it's gettign better now, a little anyway.

 

Glad to hear your doig good, sucks to hear your feeling sick....the drugs have done that a few times to me and I hope they dont increase me too much...has been a bit of a yoyo with the prograph.

 

I decided to see if I could get the book Frankenstine...I've never read it but after going through transplant...I figure this woudl be a good tiem to do it..LOL

 

Take care and I have a feelig we are goign through the crazy together in quie a few ways....

 

I wish you well

 

Robert

Comment by Bobbiejo Winfrey on May 14, 2011 at 6:46am
Congratulations on how far you have come and how well you are doing! The first year post transplant for me was the hardest, I think, so my heart is so happy for you that already you have made such strides. I am glad that you have been able to go to college. May you continue to achieve success in all aspects of your life and find new sources of beauty and hope each day! I will keep you in my thoughts and prayers. Many hugs and best of wishes.

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Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
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