post liver transplant still hep c positive need to stop the virus

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c treated with teplavir,interferon. ribovirin. Help!!!!!!!! Im losing it.

Views: 39

Comment

You need to be a member of TransplantCafe.com - The Gift of eLife! to add comments!

Join TransplantCafe.com - The Gift of eLife!

Comment by Bill S. on August 3, 2011 at 3:25am

 Hep C is for some of us a lifetime sentence. I was transplanted 3/22/2005 and the virus was there immediately post tx. I tried the ribo last year with no response. I'm now stage 4 CKD and will probably need dialisis at some point. But you know what? God is good, I've had 6 1/2 years post tx and I'm praising Him for it.

 

Comment by Tom Russell on August 2, 2011 at 8:50pm

Hi.

 I'm 20 months out. I was at stage 2 six months out. My hep c had developed into cancer so after my transplant I was on an experimental cancer drug. I was scheduled to start the peg interferon stuff at one year but on my mri there was a spot so they decided not to go ahead with it. All I can tell you is what I've been told. No one I know of knows of any trails for post transplant using the new telaprevir. I would do the regular chemo again if I had the chance. They use lighter doses than they used too. Best of luck to you, Tom

Comment by A. Front on August 2, 2011 at 8:15pm

You might want to look into doing the new current treatment for hep C which is proving more successful.

I'd also suggest you post your question on the medhelp.org web site under hep C.

There are a lot of knowledgeable people there who might be better able to help you.

Good luck.

Comment by Carlos on August 2, 2011 at 2:13pm
Get a 2nd opinion or change doctors. Like bellybuttons, all institutions are collecting lint so they can publish according to their research protocol.  Perhaps someone decided you should be a control. You are ultimately responsible for your own survival.

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Margaret Kelly replied to Margaret Kelly's discussion Problems with pain in chest and weak bones
"Hi I'm also suffering from depression at the moment as well, Went to Doctors last week for blood tests and it has came back with a high eosinophil count of over 0.9 (recetionist wouldn't tell me the exact count) After 'googling'…"
3 hours ago
Caring 4 Carrie posted a blog post

Is Kidney Cancer Becoming More Common? It's true.

According to Kidney Doctor, the rise is kidney cancer may have a strong correlation to the modern way of living. Meaning, alcohol drinking, being weight challenged, eating lots of red meat and smoking are habits which increase your risks of developing cancer. Nugget: Healthier lifestyle=Prevention.See More
9 hours ago
Caring 4 Carrie posted a status
"Someone's Story: This is Mitch and he's seeking a kidney donor. Kindly visit his FB page to learn more. Thanks. http://j.mp/1Fot88P"
9 hours ago
Robert Keith Surridge posted a status
"Get out and enjoy the things that make life worth living. Be active, don't sit around and feel sorry for yourself, thats to easy."
23 hours ago
Robert Keith Surridge posted a status
"Hi I do not go on the Transplant Cafe very often, but today my message to all transplant patients is to live strong and enjoy life."
23 hours ago
HDHONEY left a comment for Robert Keith Surridge
"Robert  wow. u sound like u have a crazy story like mine, I ended up in hospital for 4 months. Cancer of liver cirohises,hep.c.  I am only taking.   Prograf. My Dr. has me on magnesium for leg cramps.   I get…"
yesterday
HDHONEY replied to Stefan's discussion Hello, I am new here
"Hey no worries it is a  scarey thing.  Hang in there make sure everyone washes hands a lot. Keep her away from people till she's feeling good. We will be praying for ur family.  I hope all is well. God bless you both"
yesterday
HDHONEY left a comment for Linda J Vaughan
"Hi Linda, I read your story I am happy for u. I also had a liver transplant. Its been little over 2 yrs. For me. I would love to talk."
yesterday
HDHONEY left a comment for Brad shwidock
"hi  Brad I was reading ur story about ur liver transplant, how r u doing at this time?   I had a transplant little over 2 years I'm doing well. I feel sick a lot, some. Pain but  better than life before. Would like to talk…"
yesterday
HDHONEY replied to Margaret Kelly's discussion Problems with pain in chest and weak bones
"Hi I also have pain after 2 and a half yrs. Out from liver transplant. Don't know what it is. I have some depression. I've gained a lot of weight back  darn it.  Not sure what to do."
yesterday
HDHONEY posted a status
"Hi I am a liver transplant patient looking for someone to talk to. My name is tami"
yesterday
Irene Paugh is now a member of TransplantCafe.com - The Gift of eLife!
yesterday
Ali Barton left a comment for Irena Bucci
"Hi irena! Thanks for your sweet comment! I just got back home to Boston on Saturday! Feeling great :-) talk to you soon!"
Saturday
Ali Barton is now friends with Irena Bucci and Wendy
Saturday
Phil Keyes replied to Phil Keyes's discussion Post transplant blues
"Tampa General Hospital, where I got my new " lease on life"  has just started a support group for pre-transplant patients as well as care givers.  Separate groups plus additional times together.  I do think that the long…"
Friday
Clare mcgee replied to Phil Keyes's discussion Post transplant blues
"Hi phil, Yes we have to make the most of it, just wished I'd realised this earlier than now as it has took me 2 years to come to terms with it all! God bless."
Friday

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2014   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service