Soooo I'm still waiting for a double lung transplant. It's been about a month and a half waiting patiently at UCSF. Is my day ever going to come? I'm a believer, I'm someone with a lot of faith. Somedays are worse than others.How much longer am I going to have to be strong?
Added by Mary E. Leal on January 31, 2011 at 11:48pm —
TOday I woke up with a crazy bad migraine. I could hardly get out of bed. I finally dragged myself downstairs to take my meds and some breakfast....and tylenol. Uggghhh.....went back to bed. Headache would not go away so I took my last resort, Fioricet. DOctors gave it to me for migraines. Sometimes it works, sometimes not. It makes me drowsy and dizzy sometimes. It helped get rid of most of the pain, but I got really… Continue
Added by Emily on January 31, 2011 at 2:06pm —
PBS show NOVA Science NOW
What I found interesting is how they might be able to do this.
14 min segment on the making of organs
Full video of show [54 mins]
Added by Burnie Schultz on January 27, 2011 at 7:58pm —
Transplants are like balloons once you let go you can never get them back!Hold on to them as long as you can... ♥ Continue
Added by steve sullivan on January 27, 2011 at 2:41pm —
Last week, Keith Olbermann signed off on his last show with MSNBC – thanking his viewers for their generous support of causes featured on his show Countdown, including recently featured fundraising campaigns established with NTAF in honor of Arizona transplant hopefuls denied coverage due to state budget cuts. More than $230,000 has been raised thanks to media coverage:… Continue
Added by HelpHOPELive on January 27, 2011 at 12:15pm —
I have been informed that 2 months ago the doctors did a cholesterol checkup on me and a thyroid test long ago before my tx. Surprise surprise! My thyroid function is low and my cholesterol is sky high. Thank you for not telling me, my rehab counselor told me. Not to mention that my docs told me not to concern myself with what I ate in terms of heart disease or my steroid induced diabetes because they are controlling it with meds. I thought they were talking about preventative… Continue
Added by Emily on January 27, 2011 at 11:45am —
Added by steve sullivan on January 25, 2011 at 5:59am —
Hi all my wonderful friends,
I have found an awesome group on facebook called, "The Waiting List". Here's the link to join and be in touch with others who are waiting, http://www.facebook.com/#!/endthewaitinglist. As well as others helping to spread awareness like myself. I am helping to do a show off your scar project too, so if any of you are interested in participating please do let me know!!!
I'm continuing on my… Continue
Added by Holly Werlein (Holdol) on January 24, 2011 at 9:36pm —
Specialist gives hints of as it will avoid cardiac diseases. Laughing is one of the preventive attitudes
Five simple steps can help to reduce his risk of having cardiac diseases, affirm the specialists in preventive cardiology.
According to Holly Anderson, director of education in the Institute of Heart Ronald O. Perelman, of the Presbyterian Hospital of New York, is necessary to do more in order that heart to educate the population on the factors of risk and the… Continue
Added by Cristina Cagliari on January 23, 2011 at 2:37am —
All of a sudden I am trying to become a comedian. I am nearly 36 years old, a bit crazy and simply just thankful. I like to pop in here once in a while and see stories of hope and inspiration. I hope that my words help someone out there. I'd love to hear back from more of you. We can win this battle if we all fight together.
Read more about me and my adventures on my blog by clicking here: Each Day Counts - I gave it… Continue
Added by Ruben J. Porras on January 21, 2011 at 7:00pm —
I had to start back on my insulin shots this morning. Endo said that my levels are way too high for the pills to be working anymore. I was a little miffed at first. So now I have two diff types of insulin and three shots a day. I'm hoping it won't last long, I just started rehab and we are starting to lower the steroids which is the whole reason I have this problem in the first place. I was sitting in bed with the needle in my hand. I never gave myself a shot before. I knew it didn't… Continue
Added by Emily on January 21, 2011 at 5:02pm —
My TX team has informed me that in order to "successfully" get a surgery, outside the TX center, you need to start at least 2 weeks in advance. #1: Educate your "new" docs to your special circumstances/needs. #2: Give them all your special needs on a printed sheet. It should include ALL of the TX phone & fax numbers alongside the TX docs name(s),; your meds...dosages; times taken; alergies, etc. As in, your whole TX history. TELL, not ask, the new doc to fax;email, or call the TX center… Continue
Added by Paula M. Rice on January 20, 2011 at 4:27pm —
Added by Lili Feldman on January 20, 2011 at 2:53pm —
01/18/2011-A Hilly Road Ahead
The morning started off waking up at 7:00 am-I have not woken up at that time for quite a while and it was pretty difficult to do, but I am trying to make new habits and going to bed earlier and waking up earlier is one of them.
So by 9:30 am-I met my Auntie and Uncle (who are brother and sister to my mom) in the parking lot of a closed down Mervyn's) with my "Auntie" Meena to go for my first real (non trail) road bike ride. It was good-mildly hilly, but… Continue
Added by Allie on January 18, 2011 at 10:01pm —
Sheila Antworth (lung)
Jim Boren (kidney/pancreas)
Bill Flynn (heart)
Joseph Gonzalez (heart)
Michael Hancock (kidney)
Esther Mae Jones (kidney)
Liz Moreno (liver)
Michele Perrin (kidney)
Billy Roach (kidney)
Catheryn Spackman (lung)
Tanner Townsend (heart)
Wanda Valenteen (heart)
Ernie Zavala (kidney)
Receiving the gift of life is only part of the transplant process. Transplant patients face lifelong expenses to maintain… Continue
Added by HelpHOPELive on January 18, 2011 at 6:50pm —
Face your deficiencies and acknowledge them. But do not let them master you. Continue
Added by steve sullivan on January 18, 2011 at 5:30am —
Good day everyone in Cyber Space!! Its been a while since i visited you but here I am now.
I have moved to Vancouver BC, Canada and I am loving it. What a beautiful city.
I will visit my new transplant team on Jan 21/11 and they will see how well i'm doing. I haaven't exercised all that much to keep my lungs right up to par but they are at the next best setting. I figure I am made of sugar and I'll melt if I go out into the rain. lol just joking. My… Continue
Added by Irene Jimmy on January 16, 2011 at 12:49pm —
Is anyone on cycosporine? I had to switch because prograf was giving me bad neurapathy. I was on prograf fro 8 years with a creatnine of 1.3. Can anyone give me any comments.
Thanks Donna Wheaton
Added by donna wheaton on January 15, 2011 at 11:50am —
My first rehab session went well. The team is very nice and supportive. I only worked out for 30 mins but i was EXHAUSTED when i got home and passed out!
Added by Emily on January 15, 2011 at 11:11am —
Do you ever just want to scream, with frustration, when you need a surgery from someone other than your TX ceneter & the docs don't have a clue about how our bodies nom longer work like "normal" peoples?!
My next eye surgery was scheduled at an outpatient center & my TX docs only said they'd feel more comfortable if it was done in a reg. hospital. The outpatient surg. center chose to take that as an outright refusal to allow the surg. Of course, my Optho. surg. didn't even ask… Continue
Added by Paula M. Rice on January 14, 2011 at 4:01pm —