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Kim Jacques Looking For A Roommate for the Games!!!!!!!!!!!

Hi All!

Registration is right around the corner (Monday!!! YAY!!!) and I'm looking for a roommate or two. I'm already set up to share a room with 1 friend (the totally adorable Lana Hall Powe--formerly of Team Indiana, now Team South & Central Texas). She and I are both lungers (me--with a heart thrown in) and will be joining the 30-39 age group this time.

We're looking for 1-2 more girls (sorry guys!) to share a room to REALLY save costs on the hotel. We're

… Continue

Added by Kim Jacques on February 6, 2010 at 5:28pm — No Comments

NKF U.S. Transplant Games Registration for the 2010 NKF U.S. Transplant Games Opening Soon!

Registration for the 2010 National Kidney Foundation U.S. Transplant Games® will open on Monday, February 8, 2010 at 10AM EST. To register, log on to www.transp

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Added by NKF U.S. Transplant Games on February 5, 2010 at 4:58pm — No Comments

Heather Brenner Turning 30!

Okay on Feb 14th 2010 I will be 30! I am so happy to be alive and doing well, my New liver is about 1year 5months give or take lol, I have finished my letter to the donor family and keeping my fingers crossed! god bless you all! Continue

Added by Heather Brenner on February 5, 2010 at 3:05pm — 5 Comments

Paula M. Rice Paying it foreward

In the chat room I met a woman who, w/her husband, both TX, have a really good way of paying it foreward. When they have to go for hospital visits, they go to the ICU & talk to those who are waiting. How neat is that? Then I got to thinking, after my TX I used to bake giant heart healthy muffins for the staff & those in what we call "Step down", basically a recovery & waiting floor. Recovery from the latest pre- admit bout of whatever our organ problem hit us with. The waiting was

… Continue

Added by Paula M. Rice on February 5, 2010 at 3:13am — No Comments

Paul Anthony Worthington Last night (03-02-2010) I saw the legend that are Rammstein, live at the NEC in Birmingham - Awesome performance

I had booked my ticket 7 months ago, as soon as they were released in fact - so desperate I was to be certain of getting a seat and a good seat too! Yesterday was the big day, I had been building up to this moment since my ticket arrived through the mail roughly two weeks ago. I would say I was bursting with excitement but that would be an understatement! Now I have been a massive fan of Rammstein since they released a song along with the Soundtrack album for the movie 'The Matrix' (Keanu Reev… Continue

Added by Paul Anthony Worthington on February 4, 2010 at 12:46pm — 7 Comments

Terri Lynne Willis Back on blood pressure meds

My bp went high when I got sick and when I got well, it never went down. Infact it was going so high that it was making me feel ill so I went back to Emory, out patient this time. They put me on Procardia XL as I requested. I took this many years ago after my transplant and tolerated it well. I am doing a little better with that. I go back to Emory on the 23rd for a check up. Shortly after getting out of the hospital, I got a hair cut. This picture was taken last night.… Continue

Added by Terri Lynne Willis on February 3, 2010 at 4:30am — 1 Comment

Lee Rivera remembering the day I found out I was really ill

I was reading the blogs of fellow transplanted friends. One of my friend had a lung transplant and the other had both lungs transplanted. Reading them brings back many memories.. I remember throwing up blood and the doctor not letting me drive to the hospital. My heart was racing and my blood pressure was very low. We were talking about how I had driven to his office and how he would not let me leave on my own. I called a friend to come and take me to the hospital. The doctor was about to call… Continue

Added by Lee Rivera on February 1, 2010 at 11:27pm — 1 Comment

Cristina Cagliari Dia Mundial Doenças Raras

No próximo dia 28 de fevereiro será celebrado o Dia Mundial das Doenças Raras. Com o objetivo de divulgar as doenças raras, a Câmara Municipal de São Paulo, o Grupo de Estudos de Doenças Raras e a representação da GEISER no Brasil propuseram a “1ª Caminhada de Apoio ao Portador de Doenças Raras”.… Continue

Added by Cristina Cagliari on February 1, 2010 at 4:11pm — No Comments

Laura Being relisted

I just got back from another visit from the hospital (I had LOTS of pain and my 2nd tube was blocked). When my team came to see me in the morning (Jan 29th) the Dr. said that he was going to go ahead and relist me...it would be the best. I am constatly having PTC tube problems and bile duct surgery isn't an option in my case. Relisting me is "the next step" as I am, according to him, still young and have a life ahead of me though, if I was older (ie. 70s) he would leave the tubes in. I am not su… Continue

Added by Laura on January 31, 2010 at 6:00pm — 3 Comments

Paul Anthony Worthington Another milestone reached and suddenly feeling very old!

It was my birthday on the 28th January, not just any birthday, but the dreaded big 30. I had been dreading turning 30 for quite a while now. I don't know about those of you who have already passed this milestone, but I suddenly feel like that kid in me is no longer around (well, not as much). I am terrified I now have to start acting my age, no more partying, no more fun in the snow, now more trips to the fair.... Yes I know, I'm just being melodramatic (another side-effect of turning 30 perhap… Continue

Added by Paul Anthony Worthington on January 31, 2010 at 12:57pm — 7 Comments

Hari Narayan Sharma Thanks Letter that I had sent my doctor at my 1st Transplant Anniversary

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Added by Hari Narayan Sharma on January 29, 2010 at 12:01am — 2 Comments

Harvey Mysel FREE Webinar - Having Your Donor Find You (Kidney donor that is!)

Webinar Dates Monday, February 8, 2010 Tuesday February 9, 2010 & Monday February 15, 2010 To sign up, go to: http://lkdn.org/webinars.html All webinars start at: 7:30 PM Central Time The fear of asking someone to donate a kidney is the greatest barrier for pursuing living donation. In truth, patients rarely need to ask directly. Most living donors say they volunteered to donate once they heard about their family member or friend’s need. When su… Continue

Added by Harvey Mysel on January 28, 2010 at 6:01pm — No Comments

Cristina Cagliari Menino com doença rara precisa de banho de luz azul para se manter vivo

Síndrome de Crigler-Najjar tipo 1 afeta 300 pessoas em todo o mundo.

Um menino de oito anos de um vilarejo remoto na Austrália passa, desde que nasceu, 10 horas por dia sob luzes azuis para se manter vivo. Maximus Mcgrath Daniels, de Thursday Island, no extremo norte do país, nasceu com a Síndrome de Crig… Continue

Added by Cristina Cagliari on January 28, 2010 at 12:28pm — No Comments

Glen Brashear Life after my Kidney Transplant as told by my local newspaper

A kidney transplant carried Glen Brashear from the brink of death nine years ago. Now Brashear, 62, carries the lessons from the transplant across the world. Brashear endured polycystic kidneys and months of exhausting dialysis before a kidney transplant rescued him in December 2000. A fit, excited and happy Brashear will compete in his third World Transplant Games today. Brashear traveled to Gold Coast, Australia, Wednesday for the games. The 17th World Transplant Games hosts more than 1,200… Continue

Added by Glen Brashear on January 28, 2010 at 10:00am — No Comments

Jay Robare My kidney transplant

Hello friends, It has come to my attention that a lot of you seam to think that I have already had my transplant. I am sory, someone is pulling yours and my leg. Wednesday I was put on the waiting list. I am sitting in front of my computer in Ft Lauderdale waiting to hear from Lesley, my donor. and I have NOT had surgery yet...sorry guys, no new kidney...BUT you will be the first to know when I do get my kidney. actually, Karen Weddick will be the first, then I will tell of of you. Thank you ver… Continue

Added by Jay Robare on January 27, 2010 at 1:40pm — No Comments

Andrea Norris Everyone should watch this. Really amazing!! We are just around the corner.

http://www.ted.com/talks/anthony_atala_growing_organs_engineering_tissue.html#top Continue

Added by Andrea Norris on January 26, 2010 at 7:40pm — 1 Comment

Cristina Cagliari Ministério da Saúde divulga calendário de vacinação contra H1N1

Vacinação de seis grupos prioritários ocorrerá simultaneamente em todos estados. Serão quatro etapas, de março a maio. SUS também reforça estoque de medicamentos e rede de diagnóstico. O governo tem 83 milhões de doses vacina e pretende imunizar 62 milhões de pessoas. Essa diferença vai ficar guardada para uma emergência. Quem tem alergia a ovo não pode ser vacinado. O Ministério da Saúde selecionou grupos que foram atingidos pela forma mais grave da gripe para decidir quem vai receber a vacin… Continue

Added by Cristina Cagliari on January 26, 2010 at 3:39pm — No Comments

Terri Lynne Willis MY PROMISE

I totally forgot writing this! I was lurking around the NKF site the other night and came across it. I wrote it in 2005 when I started running. I had started and quit so many times before. It was a royal pain trying to run the 400 and I wanted to quit again. I did this and kept it where I would see it everyday as a reminder of why I was torturing myself. Me and the track, we go way back Many years, in fact, I've ran I've ran, to prove my gift has what it takes I've ran, to prove I have what it… Continue

Added by Terri Lynne Willis on January 26, 2010 at 2:17am — No Comments

Catherine J Geisen (Cathy) Please Donate Your Medication To Your Doctors Or Transplant Hospital Shhhhhhhhhhhhh Don't Tell OSHA

Reason when my Gift Of Life phone call came I had just fallen into what is known as The Doughnut Hole For Me… Continue

Added by Catherine J Geisen (Cathy) on January 25, 2010 at 7:24pm — 5 Comments

Hari Narayan Sharma Robert N. Test's will - "To Remember Me - I will live forever"

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Added by Hari Narayan Sharma on January 24, 2010 at 5:38am — No Comments

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Holdol, Try contacting your transplant team where you had your transplant or the organ procurement program in your area. I think it is Lifebanc of Ohio, my brother works for them. They are always looking for people to tell their stories. I did some…
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