I would like to say Hi to everyone. Ive been on the transplant list for 18 months for a Liver. Really I feel lucky to be doing so well. My meld number has held a 17 for the last 6 months. I have…Continue
"I'm sorry to hear about your situation. Having ESRD is a hardship that can put things in perspective for anyone. No one can really understand what you are going through, as you are the only one who can live in your shoes. It takes a lot of…"
"Oh that breaks my heart! Hang in there life is not easy and im surprised mine hasnt left me. I mean really how much can a spouse take? Mine has had 5 yrs and 6 major lllnesses and 32 meds and in bed every day of me yet i wonder how he puts up with…"
I’M NOT WHO I THINK I AM I’m not who I think I amI look in the mirror and don’t know the manI’m not full of dreams ,hope, and aspirationslike I thought I had’ the future was sureThe past obscure, by the hopes of todayI had my chance many years ago to find my loveThat would be there forever, never break my heartDoes such a dream still have a chanceI think not, I’ll just relive the pastMy losses multiply, my tears never dryI once thought time was on my sideBut now I walk with my head downWhere…See More
"thanks for the prayer Gene every little bit helps. I know what you meen about insurance. I had to move to Arizona for better health insurance( medicade now medicare) Michigan doctors just sent me home to die. I thank God everyday for my illness, he…"
"Update - from my March posting. I did try the three drug cocktail therapy. Doctor prescribed Incivek (the co pay fear was unfounded) and the manufacturer picked up the entire copay! So, I was taking interferon, rib and Incivek in…"
"Yes. When you have a liver transplant it's not uncommon for the disease to come back when you're weakened after major surgery. I was fortunate to not have my viral load start rising until a year after the transplant. I then had…"
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
"I know where you are coming from. I had my TX two years ago and am now in stage 4 liver failure due to HCV. they put me on pegasys and rib and i had anemia so bad I was in the hospital for 6 days. I have had 6 transfusions, with no help. I am…"
"I had to stop treatment due to anemia. i had 6 transfusions and two days later my numbers would be back down. 2 years sonds like a good deal right now. I'm just not looking forward to all the symtoms"
Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I just recieved a letter from my donor family. I was touched to the point of tears. I don't know what to say when I respond. But I will let them know I will try to live my new life to the fullest. God bless all the donors
Recipient: What Type of Donor Did You Receive your Gift of Life From?
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I waited allmost 4 years for a Liver. They told my family if they wanted to see me to come right away. I didn't have much longer. I went down hill real fast.Two days late I was blessed with a Liver. The surgery was harder than I had expected. I tried to stand up 4 days after the surgery and was very surprized at how weak I was.I was back in the hospital 3 times in the first 4 monthes due to an infection and had to be on IV therapy at home. But feel better now even riding my Motorcycle again
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JJ is now a member of TransplantCafe.com - The Gift of eLife!
"You have every right to worry and to express your feelings. It's a roller coaster ride and we have all been holding on for years. I am very happy that you are feeling well. We need to vent our feelings . I think it is difficult for most people…"
"Thank you for your reply. I've deceided to make an appointment with my local nephrologist since I don't go back to Jackson Memorial in Miami until September. My creatine is 0.8 really good so I'm sure there is nothing wrong with it…"
"I hear that hernias hurt. A lot.
The side where my kidney's located is a bit more bulgy than the other side and my belly has a funny shape. Other people can't tell but from my point of view is very evident.
Your kidney is probably…"
"Well,I'm back in Canada and I've been feeling well, even better than when all this started. I guess I shouldn't worry too much. Now that it's apparently over it is like nothing happened. I guess I earned a couple experience…"
"Mike, hope all goes well next week. You will be surprised at how different the evaluation process is now. Quite a bit easier and not nearly as evasive as before. I wish you well. If you want to talk more just let me know."
"Hi Beverley. I hope youre felling well. I live in eureka mo. I had my heart transplant at stl univ in 1984. I now see Dr Ewald at Barns. Im Going in Next week to be evaluated for a second transplant!"