TransplantCafe.com
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Welcome to TransplantCafe.com's (Nelson's) Page!

Latest Activity

William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"i'll give it to you Rich  "
Jul 29
Rich commented on TransplantCafe.com's group Team Prograf
"I'd be happy to buy some of your Myfortic, William R, Armstrong."
Jul 29
angelnote commented on TransplantCafe.com's group Team Prograf
"Thanks.  I am glad those that take generic have not had any problems.  Of course, everyone is different and I have always been sensitive to med changes.  I'm hoping my transplant clinic can get the appeal approved to switch back…"
Jul 29
Nancy Paske commented on TransplantCafe.com's group Team Prograf
"I forgot to say that I take 2 mg. in morning & 3 mg. in evening."
Jul 29
Nancy Paske commented on TransplantCafe.com's group Team Prograf
"I also have been on generic Prograf since about a year out when my insurance co. Refused to pay for it. I haven't noticed any difference I am now 5 years post transplant & doing well."
Jul 29
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"I have taken both prograf and the generic and i haven't noticed any change. i'm still only taking .5 mg ever 9 days.  i have so much extra i don't know what to do with it. any sugestions? also myfortic ?"
Jul 29
David Goodman commented on TransplantCafe.com's group Team Prograf
"My doctors insisted that I take prograf, not the generic version. The insurance company gave in."
Jul 29
angelnote commented on TransplantCafe.com's group Team Prograf
"My insurance company forced me to switch to generic Prograf two months ago.  I have not felt the same since, in fact, my TX clinic was afraid I was in rejection.  Thankfully that was not the case, but now in the process of appealing to ins…"
Jul 29
David Goodman commented on TransplantCafe.com's group Team Prograf
"Thank you for answering my question. One transplant is enough for me. I'm 65."
Jul 4
Jan Ward commented on TransplantCafe.com's group Team Prograf
"Hey Guys: I've been on 3 mg day for about 3 years and my Doc said he plans to drop me to 2. I'm certainly not abject to stopping completely but I'm not ready to take that chance yet. To react to David's question: When I got my…"
Jul 4
Carlos commented on TransplantCafe.com's group Team Prograf
"Dave, since you have pursued the question, at 71, I have had my chance at 13 years of added life, I have had my chance to see children grow, to participate in the great adventure of life, and in any situation I would not ask for another organ, I…"
Jul 4
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"from the shound of things here my .5mg of prograf every nine days is a good thing. i have never shown any signs of rejection in the 32 months post transplant. i would never stop or change taking my prograf different from what my doctors percribed.…"
Jul 4
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, If you were to suffer rejection and your new liver failed, do you think you should be entitled to another transplant?"
Jul 4
Carlos commented on TransplantCafe.com's group Team Prograf
"To begin with, I don't owe my donor anything but a profouund thank you. The act of compassion they made by donating their daughter's liver to me was an act of moral compassion. To an extent it assuaged the pain of their daughter's…"
Jul 4
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, If you were to suffer rejection and your new liver failed, do you think you should be entitled to another transplant? You said; "Fair enough, but I am entitled to my own agency." That's true, but don't you owe it to the…"
Jul 4
Carlos commented on TransplantCafe.com's group Team Prograf
"I’ll try to make this shorter as I accidentally deleted the comment I just made in response to Dave Goodman. Weaning is not for everyone, it may be a fatal mistake to try it.  You have been selected to receive a graft after a long and…"
Jul 3
Wes Cook commented on TransplantCafe.com's group Team Prograf
"I'm taking 2 x 2,  I want to ween lower but and have been temped but must have my Doctor on board with it. I will bug him again in a couple months. It has only been 4 months since it was lowered"
Jul 2
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, Haven't your docs noticed that you're not taking prograf? What do they say about it? Same question for Wes."
Jul 2
Wes Cook commented on TransplantCafe.com's group Team Prograf
"Hi, I'm two years out for Liver TP. Went into rejection after 3rd week. They had me on 4gm of Tacrolimus X 3. for a year, then 5mg X 2, and down to 2 x 2. My Tac level was 3.7 last test. Up from 3. They want you between 8 and 18. I was also on…"
Jul 2
Carlos commented on TransplantCafe.com's group Team Prograf
"0.5 mg Prograf 3x/wk sounds weird.  If you are really taking that dosage you may not need Prograf. My transplant date was May 2003.  I have never had a rejection episode and after six years on Prograf alone I decided to taper off Prograf…"
Jul 2

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I have so many people to thank for being here today that I would need another website like this one just for them. So, I'll keep it simple:

TransplantCafe.com is dedicated to:

1. My mom, dad, uncle, brother and Kari without whom I would not have lived through the rough times after transplantation.

2. Dr. Imagawa at UCI Medical Center and the entire 1998 Liver Transplant Team who became and will always be family and without whom I (or my mom) wouldn't have lived through surgery.

3. All donors; living donors, those who register with their state, or country as donors and those who think life for someone else they have never met, when the life of their loved one is taken away.

4. My donors Jack and Ruth for the gift of life at a time when life was taken from them with the sudden death of their son Gary.

5. To you, the transplant recipient for being a great example of the human will to live and showing the world how successful transplantation can be.

6. Lastly, to the world itself which still needs our help to change it's attitude towards donation.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
Prograf, Cellcept
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
Internet Marketing
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
My name is Nelson. I'm a Liver transplant recipient since 1998. I had to have an emergency life saving liver transplant after I had been prescribed a thyroid medication (by a well meaning doctor) to which I had an allergic reaction causing me fulminate liver failure.

My experience with transplantation was a bit different than with most recipients who unfortunately have to wait a long time to receive their transplant. I had no idea I needed a transplant until after I woke up with a new liver. It was a weird feeling suddenly waking up into a whole new paradigm without prior knowledge of needing a transplant until after transplantation.

Transplantation has brought me a lot of amazing experiences and friendships that I would not want to be without today if it meant not having ever had my transplant. Having a transplant has allowed me to see great places like France for the World Transplant Games in 2003 and many US cities with the US Transplant Games, with more games and travel on the horizon.

It was those experiences and friendships that inspired TransplantCafe.com. It was an idea that evolved from a simple thought to author some sort of "fun things having a transplant will allow you to do more of or faster" type of manual or book. Being an Internet marketer, it was easy to see that "web2.0" and user generated content social networking would serve the transplant community much more.

I hope you'll enjoy the site and make TransplantCafe.com your new home to connect and share your experience with the transplant community and the world!

Nelson
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
We thought the transplant community would benefit from a tool like this that promotes and allows for more and a deeper interaction.
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Music: Reggae, Hip-Hop, R&B, Latin Jazz, Jazz, Afro beats, House, Rock (U2, Hendrix, Kravitz, Ben Harper..).

Movies: Pulp Fiction, True Romance, Crimson Tide, Crouching Tiger Hidden Dragon, Amores Perros, S.S. Redemption, The Secret..

Books: The Science of Getting Rich, As a Man Thinketh, The 4-hour Workweek, Power Vs. Force, and other Human behavior, psychology and marketing books.
What is Your Favorite Quote(s)?
"Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it's the only thing that ever has"
~Margaret Mead

"God is the DJ, You are the Music, Life is the Dance floor"
~Pink

"The possible ranks higher than the actual"
~Martin Heidegger

"Who let the dogs out?" ;~)
~Baja Men

Your Personal (non-commercial) Website, Page, or Blog URL:
http://TransplantCafe.com
My Facebook Page URL:
http://www.facebook.com/freytes

Contacting Transplant Cafe:

Website Support: Before emailing for website support, click the link below to visit the Transplant Cafe support forum where you can search support discussions for answers to any technical questions.

Click Here to visit the Transplant Cafe support forum! *If your technical or other website question isn't already addressed there, create a new discussion thread with your question and a staff member or fellow community member will reply to your thread to help you.

Contact Us: 1. Send Nelson a private message by clicking "Send a Message" under the profile photo above (must first become friends on TC to use this feature). Or, 2. For other professional inquiries, please email us at   transplantcafe@gmail.com.

& GO:      



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TransplantCafe.com's Blog

Enter the ITNS (Why I Celebrate My Transplant Nurse) Transplant Nurses Day Essay Contest!

Posted on January 30, 2015 at 6:00pm 0 Comments

Enter the ITNS Transplant Nurses Day Essay Contest!



The 2015 theme is Why I Celebrate My Transplant Nurse.

The…

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Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?

Posted on November 14, 2014 at 6:40pm 6 Comments

Have You Come Up With A Transplant Related

Invention Or Other Medical Idea Or Innovation?

Transplant Cafe & Edison Nation Medical Have Teamed Up To Help You Bring Your Idea(s) To Market!!

If you've ever had an 'aha moment' and came up with a new idea for a medical device, but found it too hard to develop and bring to market, or just weren't…

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Edison Nation Medical and Transplant Café Team Up to Drive Product Innovation Around Transplantation

Posted on November 14, 2014 at 1:56pm 0 Comments

Edison Nation Medical and Transplant Café…

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Remembering Ana Stenzel (1972-2013)

Posted on October 24, 2013 at 9:00pm 1 Comment

The message below was the email sent from The Power of Two. I had the pleasure of meeting Ana and her sister Isa Stenzel a few times over the past 10 years and am deeply saddened by Ana's passing. Her life and her…

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Patient returns to Keck Hospital April 5 during special event supporting organ donation

Posted on March 27, 2013 at 1:30pm 0 Comments

A man who has made it his life mission to raise awareness about organ donation is returning to Keck Hospital of USC, where, 10 years ago, he received a life-saving lung transplant. And when he comes April 5, Bill Widen will bring with him his Donate Life car. Widen drives the…

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Comment Wall (462 comments)

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Join TransplantCafe.com - The Gift of eLife!

At 7:18am on April 15, 2015, Yasmine Yala said…

Thank you :)

At 6:30am on June 15, 2012, elaine dufault said…

  Time to enjoy the sunny weather today after all the rain.  Ejoy life.

At 9:54am on August 30, 2011, Jay Robare said…
I have been trying to post an animated happy birthday on Karen Weddicks page but the .gif file doesn't work anymore, is there a trick?
At 1:01am on August 26, 2011, Karen Weddick said…
At 10:16pm on August 15, 2011, Marce said…

Hola Nelson, todos mis cariños para ti, acá en Chile estamos trabajando duro, te cuento que estamos creando una nueva entidad capaz de dar apoyo a quienes más lo necesiten, lo mismo en Argentina junto a German Montenegro que también pertenece a  tu adorable cafetería, deseanos suerte, se nos viene mucho trabajo. Gracias por inspirarnos mi buen amigo!

Te deseo lo mejor sobre todo en la salud, tu amiga la chilena :)

At 3:26pm on June 20, 2011, Tara Yasmin Jones said…

Thankyou for your kind welcome , cant believe it has takenme this long to find a site like this, it will be great to hear and chat to others about they're stories!

Tara

At 7:55pm on May 10, 2011, Marce said…

Amigo queridoooo tanto tiempo, había estado con poco tiempo por el trabajo, pero igualmente feliz ya que tengo la oportunidad de destinar un día de la semana para trabajar en una escuela intrahospitalaria que trabaja con niños enfermos de cáncer y también Insuficiencia Renal crónica entre otras, imaginate!, poder compartir con los niños que más lo necesitan y los que más disfrutan estudiando. Ahora ya con el tiempo más organizado estaré de vuelta.

Te mando un fuerte abrazo desde la distancia, pero con el cariño de siempre.

At 10:02pm on April 10, 2011, Sunil Khanal said…
Thank you so much Sir, i found so many things from here. So many people i have meet..They always encourage me to do something..And they give their company while in my pain.
I was total frustration after my Transplant but now i feel good to communicate so many people and days are being good for me..

Thank you so much again, it's all because of your good work..


With Respect
Sunil Khanal
Kathmandu,Nepal
At 2:08pm on February 25, 2011, Arleen Dodson gave TransplantCafe.com a gift
At 8:12pm on February 23, 2011, Lili Feldman gave TransplantCafe.com a gift
At 4:35pm on February 5, 2011, Jueregen ZADROCK said…

When I had my breathing tube removed the FIRST words out of my mouth were,"WHO the F**K do you mother-F***ers thin you are?!!?!?!"

Before my Tx I was very meek-manared and quiet. But this "new" me was not "me". I never cussed at alll splaeon a "M-F" is ot something  would feel comfortable with; yet the words flowed off my tongue as if I'd been driving a truch for decades now! AND I was not embarrassed at all!!

I think this was from "cell-memory"; memories from the doner who was liberal with his loose tongue! After weeks of abuse and after-thought I HAD to apologize to my doctors and nurses for my uncommon behavior and vocabulary!!!!

I do believe in "cell=memory" as many other unusual things have happened that normally would NOT have happened during "MY" life!!!!!!

At 4:14pm on January 24, 2011, Marce said…
Muakkkk!
At 10:37am on January 21, 2011, Suzanne said…

Thanks to you for all my wonderful friends on here! I am happy to be connected to you. XX OO

At 7:10am on January 21, 2011, Suzanne gave TransplantCafe.com a gift
At 10:06am on December 31, 2010, Kimberly Munoz said…
Hello!  Thank You for sharing me on FB :)  I love new blog readers, Im glad you like it! Wishing you nothing but the best in 2011!  Happy New Years.  Oh and I sent you an email. About my silly email issues.  Hope you got it.
At 10:10pm on December 11, 2010, Sue R. said…

Wishing you all the best this Holiday Season Nelson. May your heart be filled with  joy, peace and happiness as we celebrate the gift of Jesus Christ, our savior's birth.

At 12:58pm on December 07, 2010, Lili Feldman gave TransplantCafe.com a gift
At 6:27am on November 12, 2010, Herbert Maldonado said…
Hey thanks for the advice, definitely going to try and give that book a try. I do have some books like Joel Osteen and they do keep me motivated and positive but only sometimes. I guess I have to really put my mind into it to grasp what the author is trying to say.
At 1:49pm on October 29, 2010, Karen Weddick said…
Well Hello there youself Nelson. I am well and doing just fine as can be. I love all your pictures and enjoyed viewing them. I really wish I could have gone to Australia for that is one place I've always wanted to go. Hope you are well and good hearing from you.
Happy Halloween Pictures, Images and Photos
At 11:45am on October 28, 2010, Sue R. said…

 
 
 

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Latest Activity

ATUL YADAV is now a member of TransplantCafe.com - The Gift of eLife!
6 hours ago
Karen Weddick left a comment for Dawn J. Adams
"Hi Dawn: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
yesterday
Terri Lynne posted a photo
Monday
Dawn J. Adams updated their profile
Monday
Terri Lynne replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
"Hi, still in rejection, posted update on my page. I wasn't sick or anything. I felt fine, just went in for labs like usual and here I am 3 months later. Thanks for the concern and checking in on me! I am getting labs again Thursday. Terri"
Monday
Terri Lynne posted a blog post

STILL IN REJECTION

I haven't posted since this started but still in rejection. September 11th, it will be 3 months since this started. It kind of was getting better so doc lowered prednisone to 15mg and let me go a month till next labs. I had those labs August 17th and they went up, a lot. He raised my Prednisone to 40mg for 7 days, 30mg for another 7 days. I am almost done with the 30mg and it will go back to 20mg. I am getting labs again Thursday. I've pretty much been getting labs every two weeks since this started.You can go to my main blog to read the updates to this.http://terri7291.blogspot.com/Current med listPrograf 3mg twice a dayCellcept 500mg twice a dayPrednisone 30mg once a dayMotropolol 25mg once a day (blood pressure)Terri24 Year Liver Transplant SurvivorSee More
Monday
Terri Lynne updated their profile
Monday
Dawn J. Adams is now a member of TransplantCafe.com - The Gift of eLife!
Monday
Miguel sewer and Karen Weddick are now friends
Sunday
Miguel sewer left a comment for Miguel sewer
"Thanks so much for your encouragement after 27 years post transplant,  please let me know how I can encourage others. Miguel"
Sunday
Janet Hart and Paula Maine are now friends
Sunday
Don Kosolofski liked Karen Weddick's profile
Sunday
Profile IconMiguel sewer and Paula Maine joined TransplantCafe.com - The Gift of eLife!
Saturday
Don Kosolofski posted a blog post

Hello all. New to this site 9 months post Liver Finding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? Welcome Anyone and anyth…

Hello all. New to this site 9 months post LiverFinding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? WelcomeAnyone and anything is fineSee More
Aug 27
Profile IconDon Kosolofski and Clifford Hanson joined TransplantCafe.com - The Gift of eLife!
Aug 26
Patricia D. liked Patricia D.'s profile
Aug 24

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