Welcome to TransplantCafe.com's (Nelson's) Page!

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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Sep 16
Lloyd Hopes liked TransplantCafe.com's group Share Your Transplant Story
Sep 15
Lloyd Hopes joined TransplantCafe.com's group
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Latest Transplant News From Around The World

View the latest transplant news videos added to the internet and find links to the latest news stories!
Sep 10
Lloyd Hopes joined TransplantCafe.com's group
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Share Your Transplant Story

Transplant stories are all amazing and inspiring. Join this group and share your transplant story with the world.
Sep 10
Laura M. Laria joined TransplantCafe.com's group
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Latest Transplant News From Around The World

View the latest transplant news videos added to the internet and find links to the latest news stories!
Jul 11
Robert Geyer Jr. joined TransplantCafe.com's group
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Team Prograf

This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Jul 8
TransplantCafe.com left a comment for Eilidh
"Hi Eilidh, Welcome to Transplant Cafe! Enjoy the community. :)"
Jun 19
TransplantCafe.com left a comment for Allison Raines
"Hi Allison, Welcome to Transplant Cafe! Enjoy the community. :)"
Jun 19
Peter McQueen joined TransplantCafe.com's group
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Residents of Australasia touched by transplantation

Join this group if you have, or are waiting for a transplant, are a living donor, donor family member, work in the field of transplantation and you live in any of the countries that compose "Australasia."
Jun 6
Müriel C. commented on TransplantCafe.com's group France residents touched by transplantation
"Hello Mbro88 I am answering you to show that at least someone has read your post, but I am unable to help you. I used to feel very sleepy, but it was before my tx (liver). Since I've had tx, I no longer suffer with it. Regarding the list,…"
Jun 4
TransplantCafe.com left a comment for Rick Early
"Hi Rick, welcome to the cafe!"
Mar 25
Eric Beasley joined TransplantCafe.com's group
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Team Prograf

This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Jan 25
Bornali joined TransplantCafe.com's group
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Ideas for Increasing Awareness

This is where we get creative with ideas for increasing donor awareness. Should the government, foundations, groups, hospitals, organizations, etc. be doing more? Or, have you ever thought of a new way that might motivate donor sign ups?
Dec 27, 2013
Lyndsay Long joined TransplantCafe.com's group
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AlloMap for All Heart Transplant Patients and Recipients

Join the AlloMap Group to stay informed about the best innovations to care for and manage your heart transplant!See More
Nov 15, 2013
Lyndsay Long joined TransplantCafe.com's group
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Team Prograf

This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Nov 8, 2013
TransplantCafe.com liked Bobbiejo Winfrey's discussion Thanks to all on my 8th year multivisceral transplant anniversary
Oct 27, 2013
TransplantCafe.com liked steve sullivan's blog post Life is short play HARD!!
Oct 24, 2013
Profile IconTransplantCafe.com - The Gift of eLife! now has Translated Content
Oct 8, 2013
mary stjohn liked TransplantCafe.com's group Team Prograf
Sep 20, 2013
Joyce Allison liked TransplantCafe.com's group Team Prograf
Aug 5, 2013

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I have so many people to thank for being here today that I would need another website like this one just for them. So, I'll keep it simple:

TransplantCafe.com is dedicated to:

1. My mom, dad, uncle, brother and Kari without whom I would not have lived through the rough times after transplantation.

2. Dr. Imagawa at UCI Medical Center and the entire 1998 Liver Transplant Team who became and will always be family and without whom I (or my mom) wouldn't have lived through surgery.

3. All donors; living donors, those who register with their state, or country as donors and those who think life for someone else they have never met, when the life of their loved one is taken away.

4. My donors Jack and Ruth for the gift of life at a time when life was taken from them with the sudden death of their son Gary.

5. To you, the transplant recipient for being a great example of the human will to live and showing the world how successful transplantation can be.

6. Lastly, to the world itself which still needs our help to change it's attitude towards donation.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
Prograf, Cellcept
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
Internet Marketing
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
My name is Nelson. I'm a Liver transplant recipient since 1998. I had to have an emergency life saving liver transplant after I had been prescribed a thyroid medication (by a well meaning doctor) to which I had an allergic reaction causing me fulminate liver failure.

My experience with transplantation was a bit different than with most recipients who unfortunately have to wait a long time to receive their transplant. I had no idea I needed a transplant until after I woke up with a new liver. It was a weird feeling suddenly waking up into a whole new paradigm without prior knowledge of needing a transplant until after transplantation.

Transplantation has brought me a lot of amazing experiences and friendships that I would not want to be without today if it meant not having ever had my transplant. Having a transplant has allowed me to see great places like France for the World Transplant Games in 2003 and many US cities with the US Transplant Games, with more games and travel on the horizon.

It was those experiences and friendships that inspired TransplantCafe.com. It was an idea that evolved from a simple thought to author some sort of "fun things having a transplant will allow you to do more of or faster" type of manual or book. Being an Internet marketer, it was easy to see that "web2.0" and user generated content social networking would serve the transplant community much more.

I hope you'll enjoy the site and make TransplantCafe.com your new home to connect and share your experience with the transplant community and the world!

Nelson
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
We thought the transplant community would benefit from a tool like this that promotes and allows for more and a deeper interaction.
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Music: Reggae, Hip-Hop, R&B, Latin Jazz, Jazz, Afro beats, House, Rock (U2, Hendrix, Kravitz, Ben Harper..).

Movies: Pulp Fiction, True Romance, Crimson Tide, Crouching Tiger Hidden Dragon, Amores Perros, S.S. Redemption, The Secret..

Books: The Science of Getting Rich, As a Man Thinketh, The 4-hour Workweek, Power Vs. Force, and other Human behavior, psychology and marketing books.
What is Your Favorite Quote(s)?
"Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it's the only thing that ever has"
~Margaret Mead

"God is the DJ, You are the Music, Life is the Dance floor"
~Pink

"The possible ranks higher than the actual"
~Martin Heidegger

"Who let the dogs out?" ;~)
~Baja Men

Your Personal (non-commercial) Website, Page, or Blog URL:
http://TransplantCafe.com
My Facebook Page URL:
http://www.facebook.com/freytes

Contacting Transplant Cafe:

Website Support: Before emailing for website support, click the link below to visit the Transplant Cafe support forum where you can search support discussions for answers to any technical questions.

Click Here to visit the Transplant Cafe support forum! *If your technical or other website question isn't already addressed there, create a new discussion thread with your question and a staff member or fellow community member will reply to your thread to help you.

Contact Us: 1. Send Nelson a private message by clicking "Send a Message" under the profile photo above (must first become friends on TC to use this feature). Or, 2. For other professional inquiries, please email us at   transplantcafe@gmail.com.

& GO:      



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TransplantCafe.com's Blog

Remembering Ana Stenzel (1972-2013)

Posted on October 24, 2013 at 9:00pm 1 Comment

The message below was the email sent from The Power of Two. I had the pleasure of meeting Ana and her sister Isa Stenzel a few times over the past 10 years and am deeply saddened by Ana's passing. Her life and her…

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Patient returns to Keck Hospital April 5 during special event supporting organ donation

Posted on March 27, 2013 at 1:30pm 0 Comments

A man who has made it his life mission to raise awareness about organ donation is returning to Keck Hospital of USC, where, 10 years ago, he received a life-saving lung transplant. And when he comes April 5, Bill Widen will bring with him his Donate Life car. Widen drives the…

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New York is facing a crisis - Nearly 10,000 New Yorkers are waiting for a life-saving organ transplant

Posted on August 29, 2012 at 7:50am 1 Comment

NY is facing a crisis. Nearly 10,000 New Yorkers are waiting for a life-saving organ transplant. However, only 19% of the adult population is enrolled to be an organ donor (as compared to the national average of 43%).  As a result, every 15 hours, another New Yorker dies waiting for an organ.

It doesn’t have to be this way. Did you know that just one organ donor alone can save up to eight lives? If you think about this in terms of the typical family, the number eight…

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Attention New York Residents: Please help pass Lauren's Law in NY..

Posted on June 15, 2012 at 10:33am 0 Comments

Below is a message from Save Lives Now New York for your immediate consideration:
 
Dear Friends of SAVE LIVES NOW NEW YORK,

 …

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Comment Wall (462 comments)

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Join TransplantCafe.com - The Gift of eLife!

At 2:33pm on June 28, 2012, Gina DeLorenzo said…

Thanks so much!

At 6:30am on June 15, 2012, elaine dufault said…

  Time to enjoy the sunny weather today after all the rain.  Ejoy life.

At 9:54am on August 30, 2011, Jay Robare said…
I have been trying to post an animated happy birthday on Karen Weddicks page but the .gif file doesn't work anymore, is there a trick?
At 1:01am on August 26, 2011, Karen Weddick said…
At 10:16pm on August 15, 2011, Marce said…

Hola Nelson, todos mis cariños para ti, acá en Chile estamos trabajando duro, te cuento que estamos creando una nueva entidad capaz de dar apoyo a quienes más lo necesiten, lo mismo en Argentina junto a German Montenegro que también pertenece a  tu adorable cafetería, deseanos suerte, se nos viene mucho trabajo. Gracias por inspirarnos mi buen amigo!

Te deseo lo mejor sobre todo en la salud, tu amiga la chilena :)

At 3:26pm on June 20, 2011, Tara Yasmin Jones said…

Thankyou for your kind welcome , cant believe it has takenme this long to find a site like this, it will be great to hear and chat to others about they're stories!

Tara

At 7:55pm on May 10, 2011, Marce said…

Amigo queridoooo tanto tiempo, había estado con poco tiempo por el trabajo, pero igualmente feliz ya que tengo la oportunidad de destinar un día de la semana para trabajar en una escuela intrahospitalaria que trabaja con niños enfermos de cáncer y también Insuficiencia Renal crónica entre otras, imaginate!, poder compartir con los niños que más lo necesitan y los que más disfrutan estudiando. Ahora ya con el tiempo más organizado estaré de vuelta.

Te mando un fuerte abrazo desde la distancia, pero con el cariño de siempre.

At 10:02pm on April 10, 2011, Sunil Khanal said…
Thank you so much Sir, i found so many things from here. So many people i have meet..They always encourage me to do something..And they give their company while in my pain.
I was total frustration after my Transplant but now i feel good to communicate so many people and days are being good for me..

Thank you so much again, it's all because of your good work..


With Respect
Sunil Khanal
Kathmandu,Nepal
At 2:08pm on February 25, 2011, Arleen Dodson gave TransplantCafe.com a gift
Gift
Happy February, we used to celebrate this month with red ribbons, to teach the kids JUST SAY NO TO DRUGS, and also it was heart awareness mont
At 8:12pm on February 23, 2011, Lili Feldman gave TransplantCafe.com a gift
At 4:35pm on February 5, 2011, Jueregen ZADROCK said…

When I had my breathing tube removed the FIRST words out of my mouth were,"WHO the F**K do you mother-F***ers thin you are?!!?!?!"

Before my Tx I was very meek-manared and quiet. But this "new" me was not "me". I never cussed at alll splaeon a "M-F" is ot something  would feel comfortable with; yet the words flowed off my tongue as if I'd been driving a truch for decades now! AND I was not embarrassed at all!!

I think this was from "cell-memory"; memories from the doner who was liberal with his loose tongue! After weeks of abuse and after-thought I HAD to apologize to my doctors and nurses for my uncommon behavior and vocabulary!!!!

I do believe in "cell=memory" as many other unusual things have happened that normally would NOT have happened during "MY" life!!!!!!

At 4:14pm on January 24, 2011, Marce said…
Muakkkk!
At 10:37am on January 21, 2011, Suzanne said…

Thanks to you for all my wonderful friends on here! I am happy to be connected to you. XX OO

At 7:10am on January 21, 2011, Suzanne gave TransplantCafe.com a gift
Gift
Thank you for creating Transplant Cafe! :)
At 10:06am on December 31, 2010, Kimberly Munoz said…
Hello!  Thank You for sharing me on FB :)  I love new blog readers, Im glad you like it! Wishing you nothing but the best in 2011!  Happy New Years.  Oh and I sent you an email. About my silly email issues.  Hope you got it.
At 10:10pm on December 11, 2010, Sue R. said…

Wishing you all the best this Holiday Season Nelson. May your heart be filled with  joy, peace and happiness as we celebrate the gift of Jesus Christ, our savior's birth.

At 12:58pm on December 07, 2010, Lili Feldman gave TransplantCafe.com a gift
Gift
Thank you for your continued support of The Funny Bone. You are my rock. Merry Christmas.
At 6:27am on November 12, 2010, Herbert Maldonado said…
Hey thanks for the advice, definitely going to try and give that book a try. I do have some books like Joel Osteen and they do keep me motivated and positive but only sometimes. I guess I have to really put my mind into it to grasp what the author is trying to say.
At 1:49pm on October 29, 2010, Karen Weddick said…
Well Hello there youself Nelson. I am well and doing just fine as can be. I love all your pictures and enjoyed viewing them. I really wish I could have gone to Australia for that is one place I've always wanted to go. Hope you are well and good hearing from you.
Happy Halloween Pictures, Images and Photos
At 11:45am on October 28, 2010, Sue R. said…

 
 
 

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Latest Activity

Karen Weddick left a comment for Pamela Sigmon
"Hi Pamela: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
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Pamela Sigmon is now a member of TransplantCafe.com - The Gift of eLife!
Monday
Caring 4 Carrie posted a blog post

The Month Of September is 'National Hispanic Heritage Month.'

According to Life Scan, Diabetes is the 6th leading cause of death among Hispanics/Latinos in the United States and the 4th leading cause of death among Hispanic women and elderly. Nugget: Exercise =Prevention.See More
Sunday
Caring 4 Carrie posted a status
"Someone's Story: This is Teresa. She's seeking a kidney donor. Kindly consider to visit her Facebook page. Thanks! http://j.mp/YyjiQ9"
Sunday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Gotta love him!"
Friday
Profile Iconolivia, Salma Jihyun Ahmad Qureshi, RogerGarage and 1 more joined TransplantCafe.com - The Gift of eLife!
Thursday
Parent of B replied to Parent of B's discussion Cardiac biopsy - how often?
"Tx for reply, Wendy! How often do you run Allomapping blood test? Allomapping is not yet the gold standard suggested/used by NewYork-Presbyterian, nor is it available where we're at now, so it's not really an option for us. My key…"
Sep 25
Parent of B and Wendy are now friends
Sep 25
Wendy replied to Parent of B's discussion Cardiac biopsy - how often?
"Wow I had to only to the biopsy for 6 months then they did the allomapping test. They now can tell if I have rejection thru blood work. Those are so uncomfortable! Prayers do her!! My transplant was in Nov 2013. Methodist Hospital in Houston Texas."
Sep 24
Wendy liked Ali Barton's profile
Sep 24
Wendy is now a member of TransplantCafe.com - The Gift of eLife!
Sep 24
Wendy liked Parent of B's discussion Cardiac biopsy - how often?
Sep 23
Caring 4 Carrie posted a status
"Someone's Story: This is Micah. He's seeking a kidney donor. Kindly consider to visit his Facebook page. http://j.mp/XJdwdO"
Sep 21
Caring 4 Carrie posted a blog post

The Month Of September is 'National Hispanic Heritage Month.'

According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.See More
Sep 21
Ramona replied to Stefan's discussion Hello, I am new here
"Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
Sep 19
Parent of B posted a discussion

Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Sep 19

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