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TransplantCafe.com
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TransplantCafe.com's Groups
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Team TC | Transplant Ath…
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The Funny Bone
23 members
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Chile Residents Touched…
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S.I.U.T.
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Fans of Three Rivers on…
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Nepal residents touched…
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Body Image & Self Esteem
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World Kidney Day 2010
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Holdol's TC Kitchen
106 members
TransplantCafe.com's Discussions
Anyone from New Jersey ?
Replied Mar 10
TransplantCafe.com's Events
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Walk for Life
May 1, 2010 all day – Cal State Fullerton
Fullerton 5k walk/run for life
Organized by donatelife.org | Type: fundraiser
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U.S. Transplant Games, 2010 - Madison, Wisconsin
July 30, 2010 at 6pm to August 4, 2010 at 6pm – Madison, Wisconsin
REGISTRATION NOW OPEN!! We are excited to announce that registration for the 2010 National Kidney Foundation U.S. Transplant Games® will open on Monday, February 8, 2010 at 10:00 AM EST. For registr…
Organized by National Kidney Foundation | Type: athletic, competition
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TransplantCafe.com & Transplant Wisconsin Members- Transplant Games Party!!!
August 1, 2010 at 7pm to August 2, 2010 at 2am – The Great Dane Pub
It's Party Time & It's Official - We will party together in Madison on Sunday, August 1st at 7pm - Be There!!!We've partnered with Dr. Michael Hofmann and Transplant Wisconsin to organize an awe…
Organized by TransplantCafe.com & Transplant Wisconsin | Type: transplant, cafe, /, wisconsin, party
Nelson's Transplant Corner
Gifts Received (6)
Red Ribbon
From Jane Tucker
Red Ribbon
From Arleen Dodson
Thank You!
From Hari Narayan Sharma
Thank You!
From Karen Weddick
Snowy Owl
From Lili Feldman
Pink Ribbon
From Candie
Latest Activity
Hi Jackie,
I'm not aware of any, but also wasn't aware there ever were any?
For current & prospective authors with transplants, or listed for one & all who write about transplantation. A place for helping, networking & sharing!
Are there any magazines decided totally to transplantation out there anymore?
Subscribe to and discuss your favorite health magazines, articles, publications and magazine issues!
Are you a fan of CBS's new transplant drama TV series 'Three Rivers?' Then this is the group for you to meet other fans and discuss your favorite episodes!
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Hello Fellow Teammates! I am so delighted to be part of this great group again and going to my sixth Games. I would also like to invite you to participate in the Donate Life Run/Walk on May 1 at Cal State Fullerton. I am in charge of teams with 25+…
This group is for all Members of US Transplant Games Team Southern California. Join and discuss everything related to the games, find teammates, set up event practice, meetings etc.!
Hi there... New to this group... I am on prograf...have had no real problems, no signs of hair loss, though leading up to and directly after my transplant, I was losing hair. It might have been a nutrition problem as I dropped to 91 pounds after the…
I'm happy to be apart of TeamSoCal again. What a great experience!
Leeds liver tx 14/11/2008
Hello,
Anyone out there that had a liver transplant at the Royal Free London? Just curious
Regards
Hi there, Im from London although had my kidney and pancreas transplant in Oxford in March 2007 (was 3 years ago Monday). I am keeping really well and enjoying life! Hope everyone is okx
Hi there. I am from Aylesbury. You are even more more recent than me. Hope all is going well? Cheers.
hi is anyone from the North West?
U.S. Transplant Games, 2010 - Madison, Wisconsin at Madison, Wisconsin
July 30, 2010 at 6pm to August 4, 2010 at 6pm
REGISTRATION NOW OPEN!!
We are excited to announce that registration for the 2010 National Kidney Foundation U.S. Transplant Games® will open on Monday, February 8, 2010 at 10:00 AM EST. For registration and housing details and to register, log on…
Hey Mike. If you look in the groups area here on TC, you'll find a Hep C group with a few members you can connect with.
Best,
Nelson
Participate in thesecond edition of the Relay for the importance and awareness of organ and tissue donation on april 25 in Sherbrooke (Quebec). Form a team of 2 to 6 people for running or walking. The event will lasts 4 hours (time for a heart trans…
Profile Information
- What is your city / state and country of residence?
- "The OC," CA - USA
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Liver
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- I have so many people to thank for being here today that I would need another website like this one just for them. So, I'll keep it simple:
TransplantCafe.com is dedicated to:
1. My mom, dad, uncle, brother and Kari without whom I would not have lived through the rough times after transplantation.
2. Dr. Imagawa at UCI Medical Center and the entire 1998 Liver Transplant Team who became and will always be family and without whom I (or my mom) wouldn't have lived through surgery.
3. All donors; living donors, those who register with their state, or country as donors and those who think life for someone else they have never met, when the life of their loved one is taken away.
4. My donors Jack and Ruth for the gift of life at a time when life was taken from them with the sudden death of their son Gary.
5. To you, the transplant recipient for being a great example of the human will to live and showing the world how successful transplantation can be.
6. Lastly, to the world itself which still needs our help to change it's attitude towards donation.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- Prograf, Cellcept
- What is your hospital and, or doctor's name, city / state and country?
- UCI Medical Center, Orange California.
My transplant and current doctor is Dr. David Imagawa.
- What do you do for a living?
- Internet Marketing
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- My name is Nelson. I'm a Liver transplant recipient since 1998. I had to have an emergency life saving liver transplant after I had been prescribed a thyroid medication (by a well meaning doctor) to which I had an allergic reaction causing me fulminate liver failure.
My experience with transplantation was a bit different than with most recipients who unfortunately have to wait a long time to receive their transplant. I had no idea I needed a transplant until after I woke up with a new liver. It was a weird feeling suddenly waking up into a whole new paradigm without prior knowledge of needing a transplant until after transplantation.
Transplantation has brought me a lot of amazing experiences and friendships that I would not want to be without today if it meant not having ever had my transplant. Having a transplant has allowed me to see great places like France for the World Transplant Games in 2003 and many US cities with the US Transplant Games, with more games and travel on the horizon.
It was those experiences and friendships that inspired TransplantCafe.com. It was an idea that evolved from a simple thought to author some sort of "fun things having a transplant will allow you to do more of or faster" type of manual or book. Being an Internet marketer, it was easy to see that "web2.0" and user generated content social networking would serve the transplant community much more.
I hope you'll enjoy the site and make TransplantCafe.com your new home to connect and share your experience with the transplant community and the world!
Nelson
- Please help us reach other members by telling us how you found Transplant Cafe:
- We thought the transplant community would benefit from a tool like this that promotes and allows for more and a deeper interaction.
- What is your relationship status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Music: Reggae, Hip-Hop, R&B, Latin Jazz, Jazz, Afro beats, House, Rock (U2, Hendrix, Kravitz, Ben Harper..).
Movies: Pulp Fiction, True Romance, Crimson Tide, Crouching Tiger Hidden Dragon, Amores Perros, S.S. Redemption, The Secret..
Books: The Science of Getting Rich, As a Man Thinketh, The 4-hour Workweek, Power Vs. Force, and other Human behavior, psychology and marketing books.
- What is Your Favorite Quote(s)?
- "Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it's the only thing that ever has"
~Margaret Mead"God is the DJ, You are the Music, Life is the Dance floor"
~Pink"The possible ranks higher than the actual"
~Martin Heidegger"Who let the dogs out?" ;~)
~Baja Men
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://TransplantCafe.com
- My "MySpace" Page (copy and paste your profile page URL):
- http://myspace.com/1nels
- My Facebook Page (copy and paste your profile page URL):
- http://www.facebook.com/freytes
Contacting Transplant Cafe:
Website Support: Before emailing for website support, click the link below to visit the Transplant Cafe support forum where you can search support discussions for answers to any technical questions.
Click Here to visit the Transplant Cafe support forum! *If your technical or other website question isn't already addressed there, create a new discussion thread with your question and a staff member or fellow community member will reply to your thread to help you.
Contact Us: 1. Send Nelson a private message by clicking "Send a Message" under the profile photo above (must first become friends on TC to use this feature). Or, 2. For other professional inquiries, please email us at transplantcafe@gmail.com.
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TransplantCafe.com's Blog
My uncle Victor, Transplant Cafe & my 12th transplant anniversary..
I never really celebrate my txp. anniversary, but I think it's time to start now! Exactly 12 years ago, I had my life saving liver transplant after a severe reaction to a thyroid medication. Tonight I will go celebrate with my youngest sister who is always in charge of the party department each time I visit my family in Puerto Rico. Well, we're actually celebrating that it is Friday, but I'll throw in my anniversary into the mix!
Also, I want to tell you about one of my favorite people… Continue
Also, I want to tell you about one of my favorite people… Continue
Posted on March 5, 2010 at 5:30pm — 8 Comments
The Transplant Cafe Art Gallery!
Purchase Beautiful Drawings, Paintings & Digital Art Created by Very Talented Artists, Members of Transplant Cafe!
We're proud to announce that select Transplant Cafe member work is now available as museum-quality framed prints on paper or canvas!
Customize your print with several high quality papers, canvases, frames and non-glare glass. Just click on any of the pieces below to explore what it would look like on your wall or as a gift - even test different wall colors to e
… ContinuePosted on September 15, 2009 at 8:00pm — 4 Comments
Have you developed New Talents AFTER your transplant? Splash News wants to interview you! $$
Hello everyone!
Recently I was contacted by Laura Johnston, a writer who works for a company called "Splash News and Picture Agency," a worldwide publisher of newsworthy stories.
Laura would like to feature some stories (the more outrageous and 'far out' or extreme the better) of transplant recipients who have developed new talents that they feel were passed on to them from their organ donor.
To have an idea what this is all about,… Continue
Recently I was contacted by Laura Johnston, a writer who works for a company called "Splash News and Picture Agency," a worldwide publisher of newsworthy stories.
Laura would like to feature some stories (the more outrageous and 'far out' or extreme the better) of transplant recipients who have developed new talents that they feel were passed on to them from their organ donor.
To have an idea what this is all about,… Continue
Posted on September 10, 2009 at 8:30pm — 2 Comments
Apple CEO, Steven Jobs Appears On Stage - Discusses Liver Transplant!
SAN FRANCISCO -
Apple Inc. CEO Steve Jobs has returned to his showman role, taking the stage Wednesday at a product launch event for the first time since his nearly six-month-long medical leave.
Jobs, who had a liver transplant this spring, got a standing ovation. Looking thin and speaking quietly and with a scratchy voice, he told the audience he had received the liver of a young... clic… Continue
Apple Inc. CEO Steve Jobs has returned to his showman role, taking the stage Wednesday at a product launch event for the first time since his nearly six-month-long medical leave.
Jobs, who had a liver transplant this spring, got a standing ovation. Looking thin and speaking quietly and with a scratchy voice, he told the audience he had received the liver of a young... clic… Continue
Posted on September 9, 2009 at 2:06pm —
Busting Myths and Misconceptions About Organ Donation
Have you ever heard someone say something like "if you're an organ donor and are in a bad accident and in critical condition, doctors will let you die so that they can take your organs for transplant" ?? Or, "oh no, I can't become a donor, because if I do, something horrible may happen to me!" ?
Even some of us who have transplants, may even be guilty of having entertain similar misconceptions before ever needing a transplant.
Many foundations and organizations have tried to bring these myths… Continue
Even some of us who have transplants, may even be guilty of having entertain similar misconceptions before ever needing a transplant.
Many foundations and organizations have tried to bring these myths… Continue
Posted on August 6, 2009 at 7:54pm — 18 Comments
Comment Wall (479 comments)
- At 9:13pm on March 10, 2010,
Emma Hilton said… - i dnnt have a clueeeeeee what u mean by that..but thewsan again...im wayy to drunnllkk to undrrrstanndd nitee x x
- At 9:04pm on March 10, 2010,
Emma Hilton said…
- loool it iss !! haha sorrryyy to disappoint x x
- At 8:52pm on March 10, 2010,
Emma Hilton said…
- nooo thats brendann!! looooool!! x
- At 8:37pm on March 10, 2010,
Emma Hilton said…
- matee what is your comment about x x
- At 12:22am on March 05, 2010, Jane Tucker gave TransplantCafe.com a gift…
Hi Nelson, i wonder if we may get this ribbon in our transplant green colour instead? of red, or as well as? I attached the red ribbon so you would know what i am speaking of. Many thanks. Jane
- At 10:08pm on March 2, 2010,
Marcelita Cea said… 
- At 3:00pm on February 28, 2010,
m. Joshua Morris said… - Hi Nelson, saw u opened up a Chilean group, so i'm adding "good wishes, thoughts and prayers here as well...
- At 4:29pm on February 15, 2010, Arleen Dodson gave TransplantCafe.com a gift…
- It's a great thing you started. My friend Fran also has a liver transplant. We met at the transplant games at UCLA. I know all about transplants now, ,and have a wonderful dr. Minasian.
- At 4:24pm on February 15, 2010,
Arleen Dodson said…
- Hoping to do the walk in March, just before my bday March l8. I raised almost l000 dollars last year. My son and I walked at Santa Monica, the ocean was so clear, but it was so windy.
- At 6:24am on February 10, 2010,
Terri Lynne Willis said… - btw you gotta love my So. Cal shirt hahaa I may as well be an honorary member since I spend a lot of time cheering your vball team on. Now next time I do that, I'll have my own shirt to wear :o)
- At 6:23am on February 10, 2010,
Terri Lynne Willis said…
- Hey, thought I would come play on here since I haven't done it in a while. Hope you are doing well.
- At 9:47am on February 06, 2010, Hari Narayan Sharma gave TransplantCafe.com a gift…
- Thank you Nelson for supporting and encouraging me. I am very grateful to you and all of my TC friends. Its going on positively & now have lots of hope for success of this, with all of you.
- At 1:39pm on February 4, 2010,
Marcelita Cea said…
- Hola, de nada, es agradable encontrar comentarios en español de vez en cuando ejeejje :). Como me decía Joshua Morris, este sitio es adictivo, hace muchos años he tenido My space, facebook y otros, pero en ninguno había tenido la oportunidad de compartir con esa parte especial que llevamos cada uno de nosotros y que nos une aquí, por eso gracias a ti.
Besos y cariños amigo.
- At 2:35pm on February 3, 2010,
Paula M. Rice said…
- You have any idea wy tis posting came in twice? It's happened several times. My husband suggested it's "echoes. Hey, he's the comp. geek, not me! Huhs & blessings, Paula
- At 2:17pm on February 3, 2010,
Paula M. Rice said…
- Found him!!!!! He's Herbet Maldonado & he's planning on talking to a couple of TC friends I tink can help. & they've offered their help. He & I have talked & I did pass sme advice along,to which he was receptive. TY, so much, for you timely response. Believe it or not,you did help, just by being there & isn't that what the Cafe is for?!
Hugs & Blessings, Paula
- At 10:24pm on February 2, 2010,
Paula M. Rice said…
- Thank you for responding. I ddn't respond to him or chat with him as I wanted to talk to Don. O., a real time friend. I only saw his post & was so upset, it didn't occur to me to get his particulars. The problem isn't just the lack of name, but,I don't remember which site I was in, as I check several during the day & evening. I did a general "shout" & 1 also in the chat room. I did check the liver site, but, no one fit the profile. I was hoping that someone else had also seen the post, but none of my friends have & there's been no response any other way. My name is auto. on the chat line& I left Don O.s. Any suggestions? Was hoping someone monitored the posts, to keep out porn, etc.? We R waiting & praying he contacts 1 of us. Blessings, Paula
- At 1:37pm on February 2, 2010,
Marcelita Cea said…
- Hola, sólo pasaba a desearte lo mejor y felicitarte por el sitio, mucha información, especialmente el contacto con personas en iguales condiciones.
Besitos para ti y que Dios te bendiga siempre con mucha salud.
Tu amiga Chilena
- At 12:41am on February 2, 2010,
Paula M. Rice said…
- A young man, saying he needed a liver TX, was in college or had been, was 21ys. (or so) & felt guilty causing his liver failure by his lifestyly drinking & desperately needed to talk to someone. I was tired & failed to get his name & was wondering if you could help. The thng is. he soundedso desperate & I've pretty much exhausted all the doors I knw how to get into I am NOT very comp. savvy & thougt you'd know where to look. It was an open chat, not in the chat room. If you do find him, would you please direct him to Don O. who's agreed to talk to him. He's also on the waiting list because of alcohol. With much appreciation, Paula
- At 4:20pm on January 30, 2010,
Thomas Klauset Aurdal said… - Dear Nelson, I don't know if it is you who have access to the front page. Would you please like to post this on the front page. Anthony Atala on growing new organs.
http://www.ted.com/talks/anthony_atala_growing_organs_engineering_tissue.html
- At 12:18pm on January 27, 2010,
Arleen Dodson said…
- Happy new year, yes it's great that you started this Transplant Cafe. YOU MUST BE A COMPUTER TECKY. Thanks for your dedication.
Latest Activity
Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
I was not on interferon after transplant, and I have had a biopsy recently and when he looked at it he said that it looked good, but how would I grade good. They do not want to do nothing for a year and then give me another biopsy to see how much it…
Hi Jackie,
I'm not aware of any, but also wasn't aware there ever were any?
For current & prospective authors with transplants, or listed for one & all who write about transplantation. A place for helping, networking & sharing!
Are there any magazines decided totally to transplantation out there anymore?
Subscribe to and discuss your favorite health magazines, articles, publications and magazine issues!
Thank you so much for your insights. It is very hard for me to know what it feels like to take some of these drugs. It has been very hard watching my son struggle to "feel good"! They have been adjusting his meds since his August transplant... and h…
Two Finnish hunters from Michigan hired a pilot to fly them to Thunder Bay to hunt moose. They bagged four.
As they started loading the plane for the return trip home, the pilot tells them the plane can take only two moose.
The two Finns objected st…
I am on 3 mg of prograf 2x daily I drink alot since they say it can be toxic to your body I don't mind taking it at all it does give you stomach upsets, I know I have trouble going to the bathroom sometimes I need to take colace, sometimes I need to…
Thanks all for the high hopes it can be stressful I was in nyc yesterday and I walked about 12-20 miles through the city I was feeling great and felt that Iam accomplishing things, I try to beat the stress best as possible I think getting myself a j…
What gets me most frustrated is unresponsible dog parents! I think you can figure out what I mean and even in dog parks!
What has been your most favorite recent movie? The most recent movie I have seen which was real funny was Cop Out. Just the la…
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