mel mac's Groups
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The Young Ones
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Lung Transplants
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mel mac's Discussions
OFFICIALLY LISTED AND BEEPER ACTIVATED...NOW THE WAIT BEGINS
Started 19 hours ago
I GOT THE CALL TODAY ...THEY ARE LISTING ME..DOUBLE LUNG
8 Replies
Started this discussion. Last reply by Bill Widen Oct. 29, 2009.
Sooo Thankful for this site
5 Replies
Started this discussion. Last reply by Diane Elaine Johnson Oct. 6, 2009.
mel mac's Page
Latest Activity
IT WAS A ROUGH DAY IN MANY WAYS BUT I COME ON HERE AND SEE HOPE
Hi Mel,
Life is about change and how we handle it. It is never stagnant. That said, if by normal you mean having a family and a job, yes life can be normal. But it can also be better than normal; stellar even. Transplant can be an opportunity to do…
thanks richard and everyone for the positive words!!! It seems just when I get into a rut and thinking about it all....I come on here and it brings me around. To be honest...I can deal with the transplant. The family fighting and issues over fundrai…
Mel,I'm not sure what your getting a transplant for but if it's cystic fibrosis,I can tell you that,hell yes!!,life will be better after a double lung tx.I was 47 when I had a double lung tx.There's no doubt that the first couple weeks are rough.I m…
Hi Mel: I had a single lung transplant 15 years ago this past May. I was diagnosed with BOOP (Bronculitis Obliterians) caused from RA. My native lung is really no good and the transplanted lung is doing wonderfully. I have had a few rejections and s…
Hi Mel,
Everyone has a different journey when they receive new lungs. Mine was rough at first but it only got better. I was only 11 years old when I got my new lungs for cystic fibrosis. I had never had a "normal" life before my transplant because…
i have a little guy who is 5...i will be going on the list in the next couple months for lungs...i am a single mom so this whole process is quite scary....how old is your little one?
Hi Mel.
I had a double lung transplant in April 2005. I am able to do anything that anybody else can. I just turned 69 and I actually feel better every day. Don't worry you will be fine and never miss a beat. Good Luck
Profile Information
- What is your city / state and country of residence?
- Charlottetown PEI Canada
- How are you touched by transplantation?
- I am on the Transplant Waiting List
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Not a Recipient
- If you are on the transplant waiting list, when were you listed?
- May 30, 2009
- If you are on the transplant waiting list, what type of transplant are you waiting for?
- Double Lung
- If you are on the transplant waiting list, please use this space to write about your experience:
- I am just new to the transplant program and am starting the process with consults with the transplant team in Toronto.
- What do you do for a living?
- appreciate everyday
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I am a single mom of a wonderful 5 year old boy and live in PEI Canada. This transplant word has been a scary word for a long time....so once it became time to make it a reality and actually consider it....tons of emotions.
- Please help us reach other members by telling us how you found Transplant Cafe:
- googled it
- What is your relationship status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- I like anything in music pretty much....rock, blues, R&B....I consider myself open to anything that would broaden my outlook on life. Movies....Brave heart? Or Fried Greeen Tomatoes....something to make you feel.
- What is Your Favorite Quote(s)?
- you rest, you rust.......one i made up on my own ;)
mel mac's Photos
Comment Wall (9 comments)
- At 11:58am on November 8, 2009,
Tara said…
- Who will your transplant surgeon be? Just curious because my transplant surgeon was originally from Toronto. He came to Cleveland, OH and within the last 8 years went back to Toronto and is doing transplants there now.
- At 7:53am on November 4, 2009,
mel mac said…
- so true sara he gets me up and going everyday and i hope to continue on our routine before surgery and then ride bikes with him after!!! I don't want him to see me in hospital right after but once i am able...the unfortunate part of this is his father...who has caused great grief and has no compassion whatsover towards this wants to go to court over this....there is no way i am leaving him behind!!! especially since he only goes with him every second weekend now....i am in for a battle....and really hope a judge has more sense and compassion than him!!!
- At 7:46am on November 4, 2009,
Sara Pietrzak said…
- Hi Mel, I too noticed not many people on here have children. They add a whole new set of risk factors (germs anyone??), but they also gave me a reason to keep going when just for me wasn't enough. Can't wait to chat with you.
- At 4:49pm on September 7, 2009,
Kathryn Flynn said…
- Hi Mel- my daughter is 17 now and a senior in high school. We lived near my transplant center so moving wasn't an issue. But I would not leave your child behind. Every minute is precious. I did not let my daughter see me in the ICU but she did visit me in the hospital once I was in the step-down unit. She told us when the time was right before she was 2 and asked if Mommy was sick.. Now she doesn't remember my being sick or on oxygen. She does hate the smell of hospital soap, though, and always notices when I have gone to clinic. I am very close to my daughter. She is the light of my life and the light of her Father's life.
- At 1:59pm on July 18, 2009,
Justine said… - Hey...i had my double lungs 3 years ago! Life before that was horrible, painful, and too much suffering. I waited a year before I was allowed to travel and went through Europe. the pictures u have seen recently were from my holiday on the cruise this April. But I also did the travelling thing as mentioned after a year for 2 months on my own..5 countries - 14 cities!! I had the most amazing time, and never got ill or picked up any bugs....I live my life now - free from living in a bubble. I am very positive too! How long have u been waiting for? what illness do u have? x
- At 10:51am on July 17, 2009,
Holdol said… - Hey Mel, I just wanted to say hi and welcome you to the cafe! You will love it here, there are so many wonderful people and support :) There's some really fun groups on here too. Feel free to send me a message anytime or leave me a comment if you wanna chat...:) Stay positive, I know your dream will come true!
- At 9:45pm on July 14, 2009,
Terri Lynne Willis said… - Hi Mel, welcome to TC! Wishing you a new liver quick....take a look around and enjoy yourself. Let us know if you have any questions!
Terri
liver tx - 7/2/91
- At 9:12pm on July 14, 2009,
Karen Weddick said… - Hi Mel:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care, Karen
Kidney Tx 1972 & 2007
glitter-graphics.com
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I was invited to this site by a friend. I am 61/2 years out.
Heart Recipients can get to know one another. Discuss medication, issues, blessings, concerns, etc.
Dear Carol,
I had more trouble due to malnutrition with hair loss (even developing a bald spot on the back of my head) before my transplant. I had to cut off most of my hair because it was in such poor shape. If the Prograf did affect my hair negati…
When I talked to one of my doctors about it, he emphasized that the main drug was in the generic, but problems seemed arise sometimes from reactions to how it is packaged which can be different from the brand name of Prograf. He says he has had to c…
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