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mary stjohn
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mary stjohn's Discussions
double lung
Started this discussion. Last reply by Ron Bird Dec 11, 2011. 2 Replies 0 Likes
I am on the list now, been on since late October,i am at the top due to my blood type A B Positive , scared ,u betcha ,,, but scared i won't get it either ,,, theirs a lot i don't really…Continue
double lung
Started this discussion. Last reply by Billie Ann Russell Jul 15, 2012. 12 Replies 2 Likes
HELLO EVERY-ONE.. I AM NOW ON THE LIST , SCARED TO DEATH ,, I AM AT THE TOP BECAUSE OF BLOOD TYPE,,, WOW !!! Continue
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Latest Activity
Billie Ann Russell replied to mary stjohn's discussion double lung"The reason I was to have a double was because of my lung disease. Alpha 1, I have it in both lungs. I waited for 22 months for my transplant and got really sick in July of 1998. I was called in seven times. On the seventh time they…"
mary stjohn replied to mary stjohn's discussion double lung"In January they talked of me possibly having a single lung maybe i should not pass it up waiting on a double, which i dont understand that reasoning i mean if one will work why not have the other too if thats what i should have ,not…"
mary stjohn replied to mary stjohn's discussion double lung"thank you so much for your well wishes,, i wish and hope the same for you and all on a list,,i pray all will get well an enjoy their lives here on out,,,:)"
Billie Ann Russell replied to mary stjohn's discussion double lung"Why was the reason you needed a lung transplant? I'm an Alpha, if you know what that means."
Billie Ann Russell replied to mary stjohn's discussion double lung"I remember when I was put on the list. I wasn't at the top though. I would wonder about you if you weren't somewhat scared!! I was to have a double lung but it just didn't work out. I had a single lung in…"
Constanza Manríquez Alarcón replied to mary stjohn's discussion double lung"Hello :)
I'm from Chile, that means that my english is not so well (dont mean that people from my contry cant not speak it well... whatever :( )
i'm waiting for the double lung transplant too
well, in my case they will take away my two…"
Curtis Lewis & wife, Denise replied to mary stjohn's discussion double lung"Haven't been on transplant cafe for a while - just saw your post. My husband had a heart transplant and he was on the top of the list because of the blood type also. We had a false alarm soon after he was listed, but the heart was…"
Orrin Grosjean replied to mary stjohn's discussion double lung"That's great. Keep a positive and upbeat attitude. Keep as strong as you can and try not to catch colds,flu etc. use all the caution you can mask, sanitizers etc. You will be in evryone's prayers."
mary stjohn replied to mary stjohn's discussion double lung"Hi Debbie,,,Loved your reply,, really helps me to hear this ,, i am really thankful for the info,, i will remember this,, now i just need called,, i am so ready,,, i just keep getting worse ,,i hope i get it…"
mary stjohn replied to mary stjohn's discussion double lung"Thank you so much , i really needed the pep talk ,i try to stay active as much as possible, plus i go to respiratory 2 times a week , i guess i am just really worried about getting it but i am ohhhh so ready,,, i have been dealing with…"
Debbie Koski replied to mary stjohn's discussion double lung"They will have you very sedated and they will totally take over and take care of you. The waiting and prepping at the hospital is scary but once it is over you will be so happy you did it!"
Ron Bird replied to mary stjohn's discussion double lung"This is the beginning of your new life. Along with transplants and the recovery, comes the gift of things in which you have only dreamed. The hard part is the surgeons job..yours is to follow directions and think positively. …"
Nulungs95 replied to mary stjohn's discussion double lung"Hi Mary,
I received a double lung transplant 16 years ago (1995).
They R watching your antibodies to make sure U don't reject immediately following transplant.. They also want to make sure U R CMV+ ( a VERY common antibody) so if UR donor is…"
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- If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
- I am in need of a lung transplant I am so scared , I just need to talk to someone who has a lung transplant. They say They don't know till they get in if i need 1 or a double transplant .
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- I am in need of a lung transplant, I am so very scared . I am sure all patients are, i am afraid to ask questioons and get the answers, I have read books and I find i am afraid to keep reading on some of the stuff i have learned.
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Comment Wall (8 comments)
- At 6:27am on November 4, 2011,
John Clark said… Mary, Had my double on May 24th 2011, spent about 11 days total in Hospital. Ask away, I'll answer what I can. JC
- At 12:04am on October 5, 2011,
TC AdminKaren Weddick said…
- At 1:15pm on October 5, 2010,
Sue R. said… 
- At 11:06pm on October 4, 2010,
TC AdminKaren Weddick said… 
- At 7:04pm on April 28, 2010,
Tracy & Nancy said… - Hi Mary,
Praying for you and wisdom for the Drs who are taking care of you on this.
God bless you, Tracy
- At 11:25am on April 27, 2010,
Holly Werlein (Holdol) said… - Mary, I just wanted to say hi and welcome you to the Cafe! This site is amazing and you will find so much support and meet a lot of wonderful people here. I truly hope you receive your gift of life soon! Click here to join my kitchen for some yummy recipes and tips on how to stay healthy! Also, click here for a helpful link to show you around the cafe and an easy way to put a picture on your profile. It's super easy! Please let me know if you have any questions at all or just want to chat :) Take care and enjoy the site...
- At 9:46pm on April 25, 2010,
Catherine (Cathy) said… 
Hello & Welcome From Cathy Liver Transplant August 30 2008
Praying You Receive Your Gift Of Life Soon! Blessings To You Ask Your Questions There Isn't Enough Words To Express How Supportive Everyone Here Is............
- At 8:10pm on April 25, 2010,
TC AdminKaren Weddick said… - Hi Mary:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
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Latest Activity
Arleen Dodson replied to Diana Petersen's discussion How long has your transplanted kidney lasted"I have been blessed I feel, and so I have dedicated my life to singing at church to the Lord since I received the gift of life! I have been in the choir at St. John Vianney church since 1987, we moved here to Hacienda Heights. I was still in it,…"
Audrée Descheneaux posted a status"Yes, almost 10 years!!! What a great milestone to reach! Thanks and congratulation as well!"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"You know, much of the transplant success stories we hear about now are due to the advances the transplant docs have made and the new anti-rejection protocols being tailored to each patient according to their lab results. The only rejections…"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"What a wonderful post! Thank you so much! It is immensely encouraging to everyone to learn about the Quarter Century Club and those of you who have exceeded 30 yrs! Being an older person already, I compare my body to an old car now when parts…"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"Wow, Arleen, you are one of those that inspires the rest of us with the way you have become so active and how long your kidney has lasted! You are proof of the importance of encouraging people to sign their donor cards! That's…"
TC AdminKaren Weddick commented on Lili Feldman's group The Funny Bone
"O.M.G.!!!! David I applaud you!"
David Goodman commented on Lili Feldman's group The Funny Bone"Three dogs were sitting in the waiting room at the vet's when they struck up a conversation.The Yellow Labrador turned to the Black Labrador and said, "So whyare you here?"The Black Lab replied, "I'm a pisser. I piss on…"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"Arleen, have you looked up high purine foods on the internet? If you have not done that, I highly recommend it. You might find foods you enjoy eating are the culprit, not just beer. A half cup serving is pretty much what every food is…"
Arleen Dodson replied to Diana Petersen's discussion How long has your transplanted kidney lasted"You are lucky that your ins agent didn't receive a cadaver kidney that's prob why it has lasted so long. I am an only child, and i try not to drink, once in a while a small glass of wine. I do believe beer causes me to get gout, so i stay…"
Belinda Todjo commented on Donnia's group Prednisone Sucks :)"New to group. I'm 4.5 months out liver transplant. Been off prednisone for 5 weeks but no matter what I do I can't get the10 pounds I gained off! It is driving me crazy insane. I have also developed cellulite on my tighs. Any suggestions?"
Belinda Todjo joined Donnia's group
Prednisone Sucks :)
This group is a place for all to come and share their experiences with Prednisone. We are also here to offer support.See More
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