" Hi Kathy , I waited 5 months for a lung transplant. I also had very high antibodies. I had a 4 percent chance of finding a match. It was very discouraging at times but I am a woman of strong faith and my faith never wavered. I knew…"
"I was listed over 4 years in Dallas and then listed in San Antonio have high antibiotic count, but yesterday I celebrated my 3 month anniversary for a double lung tx that was done in San Antonio after being listed only 6 months. I feel if I had not…"
"Hi, I had a double lung transplant 1 year and 4 days ago. I had very high antibodies as I had 5 children. I was 39 when I had my respiratory arrest - I do not have alpha 1. My doctors had me on very large doses of Intragam. I waited over 4 years for…"
"Hi There my name is Belinda. I have had Alpha 1 for almost 7 years and I have been on the list for 3 months waiting dor a double lung transplant. During this time I have been called twice only to be called back and told that I was not a possible…"
I have been on the transplant list for 18 months when they first told me my antibodies were high. They said they kept bouncing around like 78,81,80 77,79. Who knows what that means but I am now wondering if this is going to be too hard to…"
"My name is Rusty. 5 months post tx dbl lung. I had antibodies that made tough matching. Tampa Florida, I believe is the best and shortest waiting time in the country as well as one of the best survival rates. When I was placed on the list June 20,…"
"Karen thanks so much for sharing this very moving story, I was wipe the tears from my eyes, I turely believe in Angels. That little boy touched so many hearts, that is what Life is about, how we treat each other. Thanks again, prayers to you and to…"
"I would like to pray and ask every one who knew Rachael Wakefield, she recieved her long awaited lung transplant. She needs all the prayers we can give her as she only had days to live before transplant. THANK YOU GOD."
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Not a Recipient
If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
I have alpha 1, I am on a waiting list in Mn, I am trying to double list in Boston Mass. I had 1 dry run in Sept. The Dr. found high antibodies. I am on 6 liter's of oxygen.
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I have not worked since 1995, I had to go on oxygen after I had lung reduction done.
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I have met so many people going through some very hard thing's. I have noticed that the people I meet seem to have 1 thing in common. We do not tkae life for granted. We are strong we have faith and we can never lose hope.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
On Face book
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I love to read, I read the bible and books about alot of dirrerent subject;s
What is Your Favorite Quote(s)?
Fear not tomorrow God is already there.
Your Personal (non-commercial) Website, Page, or Blog URL:
Nice to hear from you, on Christmas Day too!
I was feeling a bit low that day, but it is something I have been giving some thought to, in relation to the relationship question too (I received a card from a Christian couple with a photo on the front of their joyous, loving, fun family of 3 boistrous sons, and it got me wondering how some people get all those blessings and as my therapist commented: 'You get jackshit'...
Ironically, my kidney problems haven't given me such a hard time spiritually or philosophically - but that may be because I haven't let them...
I'll have been on dialysis more or less ten years come April 2010, and not holding my breath for a new kidney though I'm on the Transplant List. If I thought about it too much I'd feel quite irked at how much time is wasted 'out of the loop', especially workwise and all the financial benefits and security that brings.
All the best to you,
What a wonderful and sweet thing to say, you made my evening. Thank you for being my new friend and look forward to getting to know you. I want to wish you and yours a very Merry Christmas and a Happy and hopeful New Year.
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
1972 & 2007 imikimi - Customize Your World!
Kathy, I just wante to say hi and welcome you to the Cafe! This site is amazing and you will find so much support and meet a lot of wonderful people here. I truly hope you recieve your gift of life soon. Come check out my kitchen, http://www.transplantcafe.com/group/holdolstckitchen for some delish holiday recipes! Your in my thoughts and prayers. Take care and enjoy the site..
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Welcome to TransplantCafe.com - The Gift of eLife!
Its been a while since I've been on this site. Almost 6 years since my donation, thankfully we are all doing amazing. I am writing today to help spread the word for a friends 8 month old daughter who is in dire need of her own Liver Donation. She lives in the Toronto area Every avenue we can use to help spread the word it crucial. As a liver donor myself I know how hard it is to find suitable matches. Here is the link to her father’s facebook page and story. If you or anyone you know can help or just spread the word yourself I thank you kindly. The family can be reached through the facebook page or message me. https://www.facebook.com/photo.php?fbid=10152722228816307&set=a.10150303650936307.332967.555311306&type=1&theater¬if_t=like – story link with photo…See More
Hello group, just a follow up to discussion concerning graft vs Host after a liver transplant. Wondering if anyone had additional information concerning this discussion. Know or anyone? Heard about it?...Anyone please..thank you.See More
"Michelle, many transplant centers have support groups made up of recipients and caregivers. Some have groups just for caregivers. I would check with the transplant center. The heart transplant support group where my husband had his heart transplant…"
"Does anyone have an advice or know where I can go for support as a caregiver? My mother will soon be placed on the Wait List for a liver and kidney. My sister and I are to be her caretakers when she comes home. I'm beginning to be a nervous…"
Support group for caregivers and family members of transplant recipients - pre or post op. Talk to other family members, spouses & significant others who have 'been there, done that' to find help to keep you going through the rough times.See More