kathy hogan
  • Female
  • Rochester, MN
  • United States
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  • Hallie Russell
  • natasha lambert
  • Rachael Wakefield
  • Selma Tennant
  • Cristina Cagliari
  • Janette
  • Jay Robare
  • Stacey and Rachel Sweet
  • Pam Eneff
  • Melissa Schaal
  • NFT
  • nancy settanni
  • Catherine von Ruhland
  • Karen Weddick
  • Kim Jacques

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Latest Activity

Kathryn Flynn replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
"Thank you for your inspiring story. I know of someone who has been waiting for 4 yeas so far.  "
May 30, 2011
Mary E. Leal replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
" Hi Kathy , I waited 5 months for a  lung transplant. I also had very high antibodies. I had a 4 percent chance of finding a match. It was very discouraging at times but I am a woman of  strong faith and my faith never wavered. I knew…"
May 30, 2011
Pam Eneff replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
"I was listed over 4 years in Dallas and then listed in San Antonio have high antibiotic count, but yesterday I celebrated my 3 month anniversary for a double lung tx that was done in San Antonio after being listed only 6 months. I feel if I had not…"
Oct 30, 2010
Janette replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
"Hi, I had a double lung transplant 1 year and 4 days ago. I had very high antibodies as I had 5 children. I was 39 when I had my respiratory arrest - I do not have alpha 1. My doctors had me on very large doses of Intragam. I waited over 4 years for…"
Oct 25, 2010
Cristina Cagliari left a comment for kathy hogan
Sep 29, 2010
Sue R. left a comment for kathy hogan
Sep 28, 2010
Belinda Green replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
"Hi There my name is Belinda. I have had Alpha 1 for almost 7 years and I have been on the list for 3 months waiting dor a double lung transplant. During this time I have been called twice only to be called back and told that I was not a possible…"
Sep 2, 2010
nancy settanni replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
"Hi Pam, I have been on the transplant list for 18 months when they first told me my antibodies were high. They said they kept bouncing around like 78,81,80 77,79. Who knows what that means but I am now wondering if this is going to be too hard to…"
Aug 16, 2010
TJames Russell Poole replied to kathy hogan's discussion High Antibodie's. in the group Lung Transplants
"My name is Rusty. 5 months post tx dbl lung. I had antibodies that made tough matching. Tampa Florida, I believe is the best and shortest waiting time in the country as well as one of the best survival rates. When I was placed on the list June 20,…"
Jul 5, 2010
Janette and kathy hogan are now friends
Apr 22, 2010
kathy hogan and Hallie Russell are now friends
Mar 31, 2010
kathy hogan commented on Holly Werlein (Holdol)'s group Prayer & Blessings
"Karen thanks so much for sharing this very moving story, I was wipe the tears from my eyes, I turely believe in Angels. That little boy touched so many hearts, that is what Life is about, how we treat each other. Thanks again, prayers to you and to…"
Mar 23, 2010
kathy hogan commented on Holly Werlein (Holdol)'s group Prayer & Blessings
"I would like to pray and ask every one who knew Rachael Wakefield, she recieved her long awaited lung transplant. She needs all the prayers we can give her as she only had days to live before transplant. THANK YOU GOD."
Mar 16, 2010
kathy hogan commented on Kathryn Flynn's group Lung Transplants
"For every one who knows Rachael she had her lung transplant after a very long wait please pray for her."
Mar 16, 2010
kathy hogan updated their profile
Jan 27, 2010

Profile Information

Recipient: What Type of Donor Did You Receive your Gift of Life From?
Not a Recipient
If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
I have alpha 1, I am on a waiting list in Mn, I am trying to double list in Boston Mass. I had 1 dry run in Sept. The Dr. found high antibodies. I am on 6 liter's of oxygen.
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I have not worked since 1995, I had to go on oxygen after I had lung reduction done.
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I have met so many people going through some very hard thing's. I have noticed that the people I meet seem to have 1 thing in common. We do not tkae life for granted. We are strong we have faith and we can never lose hope.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
On Face book
What Is Your Relationship Status?
Single
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I love to read, I read the bible and books about alot of dirrerent subject;s
What is Your Favorite Quote(s)?
Fear not tomorrow God is already there.
Your Personal (non-commercial) Website, Page, or Blog URL:
http://same as my e-mail
My Facebook Page URL:
http://Kathy Hogan angel@hotmail,com

Comment Wall (10 comments)

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At 3:01am on September 29, 2011, Karen Weddick said…
HB03 Pictures, Images and Photos
At 5:03am on September 29, 2010, Cristina Cagliari said…

At 10:56am on September 28, 2010, Sue R. said…

At 3:30am on September 28, 2010, Karen Weddick said…
happy Pictures, Images and Photos
At 3:57am on December 29, 2009, Catherine von Ruhland said…
Hi Kathy,
Nice to hear from you, on Christmas Day too!
I was feeling a bit low that day, but it is something I have been giving some thought to, in relation to the relationship question too (I received a card from a Christian couple with a photo on the front of their joyous, loving, fun family of 3 boistrous sons, and it got me wondering how some people get all those blessings and as my therapist commented: 'You get jackshit'...
Ironically, my kidney problems haven't given me such a hard time spiritually or philosophically - but that may be because I haven't let them...
I'll have been on dialysis more or less ten years come April 2010, and not holding my breath for a new kidney though I'm on the Transplant List. If I thought about it too much I'd feel quite irked at how much time is wasted 'out of the loop', especially workwise and all the financial benefits and security that brings.
All the best to you,
Catherinex
At 12:50am on December 17, 2009, natasha lambert said…
aw that's lovely! wish i could say something nice back but i'm no good with words!

hope you are keeping well

tasha xox
At 6:21pm on December 16, 2009, kathy hogan said…
Thanks Karen that is to cool.
At 7:04pm on December 15, 2009, Karen Weddick said…
Kathy:
What a wonderful and sweet thing to say, you made my evening. Thank you for being my new friend and look forward to getting to know you. I want to wish you and yours a very Merry Christmas and a Happy and hopeful New Year.
Hugs, Karen

merry Pictures, Images and Photos
At 5:58pm on December 15, 2009, Karen Weddick said…
Hi Kathy:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
imikimi - Customize Your World!
At 5:47pm on December 15, 2009, Holly Werlein (Holdol) said…
Kathy, I just wante to say hi and welcome you to the Cafe! This site is amazing and you will find so much support and meet a lot of wonderful people here. I truly hope you recieve your gift of life soon. Come check out my kitchen, http://www.transplantcafe.com/group/holdolstckitchen for some delish holiday recipes! Your in my thoughts and prayers. Take care and enjoy the site..
 
 
 

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Latest Activity

Ramona replied to Stefan's discussion Hello, I am new here
"Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
yesterday
Parent of B posted a discussion

Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Friday
Stefan posted a discussion

Hello, I am new here

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
Friday
Stefan liked Stefan's profile
Friday
Stefan left a comment for Stefan
"My wife is a double lung transplant of 15 years"
Friday
Stefan is now a member of TransplantCafe.com - The Gift of eLife!
Thursday
Jeff Clardy posted a discussion

Surgery after transplant

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
Wednesday
Karen Harrill replied to Phil Keyes's discussion Post transplant blues
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
Tuesday
Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
Tuesday
Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
Tuesday
Karen Harrill joined TransplantCafe.com's group
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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Tuesday
Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
Tuesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Makes sense to me. Good one David."
Tuesday
Ali Barton and Karen Weddick are now friends
Tuesday
Ali Barton updated their profile
Monday
Lloyd Hopes liked TransplantCafe.com's group Share Your Transplant Story
Monday

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