"Thank you for your reply. I've deceided to make an appointment with my local nephrologist since I don't go back to Jackson Memorial in Miami until September. My creatine is 0.8 really good so I'm sure there is nothing wrong with it…"
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deborah sacchi
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Protruding kidney
Started this discussion. Last reply by deborah sacchi May 12. 2 Replies 0 Likes
I am 6 mo. out today. My kidney is protruding so much it looks abnormal. My nephologist (@ Jackson Memorial) told me to Loose weight. I've lost 12 lbs. doesn't seem to matter. The kidney is huge! I…Continue
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TANk GiRL replied to deborah sacchi's discussion Protruding kidney"I hear that hernias hurt. A lot.
The side where my kidney's located is a bit more bulgy than the other side and my belly has a funny shape. Other people can't tell but from my point of view is very evident.
Your kidney is probably…"
pam best commented on deborah sacchi's blog post Hair Loss after kidney transplant"I take the same meds for transplant as well as for my thyroid. I too have lost allot of hair. Mine continues to fall out. I just tried Keranique. I will let you know how it works....hugs, I know how you feel."
deborah sacchi posted a discussionProtruding kidney
I am 6 mo. out today. My kidney is protruding so much it looks abnormal. My nephologist (@ Jackson Memorial) told me to Loose weight. I've lost 12 lbs. doesn't seem to matter. The kidney is huge! I had an ultrasound and all looks good. I am so grateful for this kidney and it is working very well. I am concerned about the largeness of it...Is this normal? Could it be a hernia?See More
deborah sacchi posted a status"My kidney is protruding...Had a ultrasound all looks good. I am 6 months out is this normal?"
TANk GiRL commented on deborah sacchi's blog post Hair Loss after kidney transplant"Prograf is known to cause hairloss, but don't worry it goes away with time and/or as they lower your dosage.
When I first got sick they thought my kidney disease was secondary to lupus. So they treated the imaginary lupus in order to get my…"
Bobbiejo Winfrey commented on deborah sacchi's blog post Hair Loss after kidney transplant"I too heard of people mentioning that they were experiencing hair loss while on Prograf.I have also been on Prograf since my multivisceral transplant. I am not sure if I was at first or not experiencing problems with my hair simply due to…"
David Goodman commented on deborah sacchi's blog post Hair Loss after kidney transplant"Prograf can do that, but it usually abates over time. Of course it could be other meds causing the hair loss. I don't take the other meds you're taking."
deborah sacchi posted a blog postHair Loss after kidney transplant
I was transplanted on 10/22/12. I am on 5 mg. of prednisone, prograf, mifortin for rejection. I'm on sensipar for my parathyroid. I am experiencing alot of hair loss. I see it all over my floor. Has anyone experienced this? If so, what were you advised to do? Thanks for any advice!See More
Bobbiejo Winfrey commented on deborah sacchi's blog post I got a kidney!"How wonderful! My heart is doing a jig of joy for you at receiving your new kidney and then doing so well afterwards. I hope you may continue to have good health and adjust well to your medications. Although I did not get a kidney (I had a…"
deborah sacchi posted a blog postI got a kidney!
On October 21st @9:30 p.m. I got a call from Jackson Memorial that they had a perfect match! I was transplanted on the 22nd. Home and doing well! Release after 5 days.See More
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- If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
- I have been on the waiting list for a kidney for 1.8 yrs. I had cryoglobuenemia which is in remission. My son has been tested and matches. I am nervous that if i get the transplant my cryo will flare up. I'm looking for anyone who has cryo and got a kidney transplant.
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- retired special ed teacher
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- I am 62 years old. Was diagnosed with hep C in 1982. I subsequently was treated @ Jackson Memorial Hospital with varying doses of interferon. Cleared the hep C and cryo in remission but my kidneys failed in 1998. I was on hemo for 3 years and have been on peritioneal dialysis since. My son has A- blood and I have A+ I never dreamed he would match. Finally asked my doctor about blood types and he said to have him tested. He matched. We have been going tru alot of testing @ Jackson memorial in Miami. It's a zoo. My son had all the tests done 2 weeks ago and still no word. I'm getting nervous as my antibody levels are @ 99. too high!
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Deborah sacchi's Blog
Hair Loss after kidney transplant
Posted on April 11, 2013 at 7:23pm 4 Comments 0 Likes
I was transplanted on 10/22/12. I am on 5 mg. of prednisone, prograf, mifortin for rejection. I'm on sensipar for my parathyroid. I am experiencing alot of hair loss. I see it all over my floor. Has anyone experienced this? If so, what were you advised to do? Thanks for any advice!
I got a kidney!
Posted on October 31, 2012 at 10:46am 1 Comment 0 Likes
On October 21st @9:30 p.m. I got a call from Jackson Memorial that they had a perfect match! I was transplanted on the 22nd. Home and doing well! Release after 5 days.
Comment Wall (3 comments)
- At 7:40am on April 22, 2013,
TC AdminKaren Weddick said… Deborah: I read your blog and when you say your kidney is huge and protuding, are you talking about your lower abdomen being rounded out? I have had two kidney transplant and my second one came from my husband. I am only 4'10" tall and his kidney was big. My lower abdomen sort of protrudes out a bit like a little "baby bump". Since I've had two C-sections and transplants, my muscles are streched out and this causes the protrusion. Remember that kidneys grow or shrink to accomodate the size of the recipient. Such as you can put an adult kidney in a baby and it will shrink to meet the baby's needs and grow or hypertrophy as the baby grows. Hope this helps a bit.
Yours in the gift of life and living, Karen
- At 8:30am on May 29, 2012,
TC AdminKaren Weddick said…
- At 10:36pm on April 1, 2012,
TC AdminKaren Weddick said… Hi Deborah:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985Take care,
Karen
Kidney Tx1972 & 2007
imikimi -
not a member yet?
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Latest Activity
Clare mcgee replied to vickie steers's discussion Hair loss"Hi viki,
Having the same problem with Prograf!! Loosing my mind with the amount of hair going down the drain!
Am in the uk & my consultant has mentioned cyclo but said it would have to be MY choice.
I would love to spk with you bout your…"
Clare mcgee replied to Kelly McInnes's discussion New from Aus :)"Hi Kelly,
I'm new to this group too & have read your story...rough! Sure hope you are still doing well and your spirits are up!
As you probably know there are ups and downs emotionally post transplant.
I was diagnosed when I was 16 with…"
David Goodman commented on Lili Feldman's group The Funny Bone"A young New York woman was so depressed that she decided to end her life
by throwing herself into the ocean.
But just before she could throw herself from the docks, a handsome young
man stopped her.
"You have so much to live for," said…"
David Goodman commented on Lili Feldman's group The Funny Bone"My wife found out that our dog (a Schnauzer) could hardly hear, so she took it to the veterinarian. The vet found that the problem was hair in the dog's ears. He cleaned both ears, and the dog could then hear fine.The vet then proceeded to tell…"
David Goodman commented on TransplantCafe.com's group Team Prograf"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
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