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Valerie
- 37, Female
- Oklahoma
- United States
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- Discussions (1)
- Events (1)
- Groups (9)
- Photos (11)
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Valerie's Groups
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Latest Transplant News F…
181 members
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Cafe Shop - Health & Per…
23 members
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Fans of Three Rivers on…
67 members
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Holdol's TC Kitchen
69 members
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Prayer & Blessings
52 members
Valerie's Events
Valerie's Page
Gifts Received
Valerie has not received any gifts yet
Latest Activity
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Team Ok is GREAT!
I love the show . Sadly we don't have TV, So I went to work with my grandma last night watch it.
The only thing I noticed about this episode is it was poorly written. The girl goes in for the transplant and it just skips to her already awake saying…
I also give the show an 8-10 rating.Just getting the word out is important enough.And I realize everyones situation is different,and some have it alot easy time than others,but I really don't feel if there were numbers to show that there would be th…
I never had a vent post surgery, and never had the neck line either. Just saying its not "wrong" in showing a situation where those things take place without them, and that they really can't get every situation covered in the entertainment venue the…
Profile Information
- What is your city / state and country of residence?
- Claremore, Oklahoma
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Double Lung
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- I am so grateful to my 15 1/2 year old donor Colbey. She was in a vehicle accident.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- Prednisone 5 mg a day
Cellcept 750 mg twice a day
Prograf 1mg in the am and 1/2 mg in the pm
- What is your hospital and, or doctor's name, city / state and country?
- Barnes Jewish
St Louis, Mo.
USA
- What do you do for a living?
- Housewife
work out at the gym to stay healthy
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I have Cystic Fibrosis and was diagnosed when I was 6 1/2 weeks old. I was on the transplant waiting years for 2 years. I wore oxygen for those 2 years 24 hours a day. I was inpatient when I got "my call" and had a lung function of 16% left and my carbon dioxide level was 119. I have had a relationship with my donor's family since about 7 months after my transplant. They are basically a part of our family now and we celebrate birthdays and Christmas together. I just celebrated my 17 year wedding anniversary, and have a 2 1/2 year old neice that is the light of my life. I have participated in 3 transplant olympics and this year will be my 4th. I have run in 3 5K runs, and just recently fulfilled one of my dreams of riding horses on the beach. I love life and live every day to the fullest. God Bless.
- Please help us reach other members by telling us how you found Transplant Cafe:
- My transplant olympic team manager
- What is your relationship status?
- Married
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://www.myspace.com/loveboxerdogs2
Valerie's Photos
Comment Wall (17 comments)
- At 8:32pm on August 20, 2009,
Tim Bishop said… - Hi Valerie!
- At 10:21pm on May 18, 2009,
Carl L. Johnson Sr. said…
- Hey Val, I went to join and found out I was a member already. Got a new P/W and here I am, I just need to fill out some of the profile. April I got a bad head/chest cold, 1st one in five years. Lung function dropped like a rock, but has turned around again to nearly where it was before getting sick. I started YOGA tonight, you know that really works the breathing. I got home did my hand held spirometer, and all the numbers were better than before getting sick. WOW !!! was I surprised, I sure won't need a bronc when I go to Barnes next month for my clinics. Check ya later, C
- At 4:31pm on January 8, 2009,
Neil Willens said… - Happy birthday, Valerie. Believe it or not, each year on my birthday, I bring a large birthday sheet cake to my hospital transplant center. I've been doing this for 8 years. Believe it or not, last year, one of the transplant coordinators said I'm the only one who ever does this. For my part, I just thought they should participate in the celebration so long as I am still alive to continue enjoying the birthdays now possible, which would not be without them. Of course, LOL, in the case I need to go back there as a patient again, they'll have a more vested interest.
Best wishes for many, many happy returns in good health.
Neil
(Liver transplant recipient, June 5, 2000)
- At 3:47pm on September 23, 2008,
Lisa Muscutt said… - Hi Valerie,
Reading your profile seems so similar to me. I too have CF and was on oxygen and in wheelchair for 2 years before my transplant. I had mine double lung 27th April 07 so just reached a year. You look great.
- At 10:18am on August 9, 2008,
Valerie said…
- I will check, and if I don't I am sure one of my team mates will.
- At 1:16pm on August 8, 2008,
Kim Jacques said… - Hey Valerie!
Quick question: Do you have any more Team Oklahoma pins? PLEASE TELL ME YES!! Your team pin is one of the few I wasn't able to get. Please let me know either way. Thanks!
Hugs!
Kim
- At 12:40pm on July 19, 2008,
Meghann M. said… - Hi Valerie! My name is Meghann. I just read your page and your story sounds a lot like mine. I also have only 16% lung function and I've been on oxygen 24 hours a day for the past 15 years. I waitied for over 3 years the first time I was on the list, then went inactive. I've just recently been reevaluated and am in the process of being listed again. :) I'd love to talk and get to know you!
- At 4:48pm on July 15, 2008,
Justine said… - hey another double lung lass!! great to read you are doing so well post transplant!! xx
- At 10:31am on July 10, 2008,
Kathryn Flynn said… - Hi Valerie!
Hope you are doing well.
- At 11:43pm on July 3, 2008,
PHILIP JONES JR said… - im doing bowling track and basketball
im with team so cal
wat team are you with
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