"Good night Sweetheart. RIP You will be missed."
-
Tara Maynard
- 30, Female
- Coalinga, CA
- United States
- Blog Posts (3)
- Discussions (15)
- Events
- Groups (16)
- Photos (39)
- Photo Albums (1)
- Videos
Tara Maynard's Groups
Gifts Received (23)
Crystal Tiara
From Lili Feldman
Red Ribbon
From Tracy & Nancy
Stack of Gifts
From Lili Feldman
Red Ribbon
From Michael Strane
..::TaRa LeEaNn MaYnArD::..
Latest Activity
Catherine von Ruhland replied to Tara Maynard's discussion How do you know when it's time to start Dialysis? in the group dialysis"For me, it was when I was effectively wasting away! I couldn't keep any food down at all. My haemoglobing levels were very low too but it's difficult to realise that you yourself are breathless unless someone else points…"
Holly Werlein (Holdol) left a comment for Tara Maynard"Hey Tara, just wanted to let you know I'm thinking about you and sending prayers your way. I hope the new year brings you happiness, smiles and good health. We are all thinking about you here and please keep us updated. Sending…"
Sue R. left a comment for Tara Maynard"Tara, Wishing you a wonderful holiday season filled with peace, joy, laughter and happiness. I hope you are feeling stronger and all is going well.
"
Tara Maynard left a comment for Tara Maynard"Thanks everyone for the love, support, thoughts & prayers. As well as the Birthday wishes they helped a lot! It has been a very busy & stressful 3 weeks for me. So glad to be back home finally. Got lots of new stuff to get used to until I am…"
Sue R. left a comment for Tara Maynard"Tara, What a long 3 weeks you have had. We have missed you a lot. You are a strong person and I am thrilled that you will soon be going home. Stay strong in your faith and know that you have a lot of people here who care about you and are praying…"
Michael Burdock left a comment for Tara Maynard"Just celebrated my first transplant birthday on 3 November (kidney/pancreas). Hope everything goes well for you.
Michael"
Diane Burke, Kidney 03 left a comment for Tara Maynard"You are always in my thoughts and prayers, Hang in there. Just know you have a ton of friends pulling for you. You are always in my prayers....If you ever want to chat I am here.....ü"
Sue R. left a comment for Tara Maynard"Hi Tara, Wanted to let you know that I was thinking about you today and hope that all is going well much better and that you are well on your way to a speedy recovery. We miss you."
Holly Werlein (Holdol) left a comment for Tara Maynard"Thinking about you Tara! Stay strong and you will get through this. Thoughts and prayers are coming your way from everyone here on TC :) Hugs!"
Richard J Wadzinski Jr left a comment for Tara Maynard"Hi Tara,
I am almost 14 yrs S/P liver Tx, hope that things are working out and that you get better soon, keep the faith and get well soon.
HUGZZZZ
Richard"
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Double Lung
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- I am grateful to the donor and the family who unselfishly gave for me to be here today. I haven't been able to find out or contact them but they are in my thoughts and prayers daily.
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Deceased Donor
- Which Transplant Medication(s) Do You Take?
- Prednisone, Prograf, Rapamune, Labetalol, Clonidine, Calcitriol, Zofran, Zithromax, Amoxicillin, Acyclovir, Sulfasalazine, Lasix, Singulair, Prevacid, Humalog insulin, Aquadek vit, Vit A, Vit E, Iron, Potassium, Calcium Acetate, Magnesium, Ambien, Creon 20, Aviane, Tylenol #3, Flector Patches, Pulmicort nasal washes, Miralax
- If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
- I am no longer on the waiting list for lungs; but I waited 11 months. I am now being listed & going through the testing for a kidney transplant. My husband is going to be tested to see if we are a match. If so, he will donate a kidney to me.
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am a stay at home wife. I stay at home and take care of my health. Since it is a full time job.
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- I was diagnosed with Cystic Fibrosis at 18 months of age. I wasn't hospitalized for a tune-up until I was 12 years old. After that I was hospitalized 2-3 times a year. When I was 14 years old I had a Nissan Fundoplication/Wrap. Tube feed put in to help me gain and maintain the much needed weight. In June of 1998 I was finally listed at CHLA for a double lung transplant. 11 months later at the age of 16 1/2 I recieved the call and got my new lungs. Since my transplant I have developed diabetes, high blood pressure, Valley Fever {Cocci} & kidney disease. I've had one bout of rejection that was mild and treated with 10 days of high doses of Prednisone. May 27th 2010 will be my 11 year post transplant anniversary.
I am now 11yrs 7 4 months post dble lung tx & am now needing a kidney tx due to kisney disease. Many years of anti-rejection meds have caused damage to my kidney's. I am going to start the testing for a kidney tx & my husband is going to be tested to see if we are a match. If so, he will donate a kidney to me.
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- I heard about it from a great tx recipient friend. She is also on Cystic-L support group, Myspace and Facebook.
- What Is Your Relationship Status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- I like to listen to all kinds of music, it just depends on what kind of mood im in at the time.
Books: Im a big fan of book and reading. Love anything that has to do with Cystic Fibrosis and Transplantation. My mother wrote a book about our experience with Cystic Fibrosis. It's called "Inner Strength; One Family's Experience with Cystic Fibrosis" author Cloyce A. Jones
- What is Your Favorite Quote(s)?
- "Live for today, because tomorrow is never guaranteed!"
"Don't take your organs to Heaven, heaven knows we need them here"
"The truth is you don't know what is going to happen tomorrow. Life is a crazy ride and nothing is guaranteed"
Tara Maynard's Photos
Tara Maynard's Blog
My Life is a Rollercoaster Ride...
Posted on October 10, 2010 at 12:48pm 0 Comments 0 Likes
Well today is sunday Oct. 10th 2010. Chris is home today, but had to go to work yesterday & put in a full day becasue he was gone 3 days this past week. He got off around lunch time on tuesday because it was raining & there was nothing else for him to do. Wednesday morning we got up, got our stuff and headed out the door to drive down to LA. Chris' car wouldn't start. The battery was dead. So he called Jimmy at work & so he came and… Continue
My 11 year Post Double Lung Transplant Annviersary!
Posted on May 27, 2010 at 11:49pm 2 Comments 0 Likes
Last year on this date I wrote this blog. I am very grateful to be here today and to be able to live my life each day as if it were my last. This past year has been a rough one for me. Id say, it's probably been the roughest so far. I am going to fight on to live another day. Recently I was told that the immunosupressant medications I have been taking to keep me alive are now causing really bad kidney damage. In the real near future I will be talking with my kidney dr and talking to him…
Continue 10 years ago today...May 27th 1999!
Posted on May 27, 2009 at 2:43pm 7 Comments 0 Likes
10 years ago today on May 27th 1999 I had my double lung transplant due to Cystic Fibrosis. I was 16 1/2 years old at the time & at the end of my Junior year of high school. Now I am 26 years old and happilly married to the love of my life Christopher. Honestly I never thought I would make it/live this long or even be here 10 years later. It doesn't even seem like it's been 10 years already. It kind of feels like it was just yesterday. Over the years I have been through a lot, as does… Continue
Comment Wall (92 comments)
- At 9:09am on November 2, 2011,
TC AdminKaren Weddick said…
- At 5:26pm on July 27, 2011,
Lili Feldman said… - Good night Sweetheart. RIP You will be missed.
- At 10:10pm on January 2, 2011, Holly Werlein (Holdol) said…
Hey Tara, just wanted to let you know I'm thinking about you and sending prayers your way. I hope the new year brings you happiness, smiles and good health. We are all thinking about you here and please keep us updated. Sending prayers and many hugs your way :) xoxo
- At 12:55am on December 25, 2010, Lili Feldman gave Tara Maynard a gift…
- At 10:37pm on December 11, 2010, Sue R. said…
Tara, Wishing you a wonderful holiday season filled with peace, joy, laughter and happiness. I hope you are feeling stronger and all is going well.
- At 7:39pm on November 24, 2010, Tracy & Nancy gave Tara Maynard a gift…
- At 11:20am on November 18, 2010, Tara Maynard said…
- Thanks everyone for the love, support, thoughts & prayers. As well as the Birthday wishes they helped a lot! It has been a very busy & stressful 3 weeks for me. So glad to be back home finally. Got lots of new stuff to get used to until I am able to have my kidney transplant. Was trying to avoid dialysis all together, but that just wasn't to be. So many years on anti-rejection medications for my double lung transplant 11 1/2 years ago has damaged my kidney's. I am now waiting til my heart heals enough after my heart attack on Nov. 1st to be cleared by the cardiologist to be listed for a kidney. As well as the acute-rejection and pseudomonas to be cleared up. Then I will officially be listed for transplant. As soon as i am listed my husband will finish his testing to be a living donor.
- At 10:35am on November 16, 2010, Sue R. said…
- Tara, What a long 3 weeks you have had. We have missed you a lot. You are a strong person and I am thrilled that you will soon be going home. Stay strong in your faith and know that you have a lot of people here who care about you and are praying for you.
- At 3:25am on November 6, 2010, Michael Burdock said…
- Just celebrated my first transplant birthday on 3 November (kidney/pancreas). Hope everything goes well for you.
Michael
- At 9:06pm on November 5, 2010, Diane Burke, Kidney 03 said…
- You are always in my thoughts and prayers, Hang in there. Just know you have a ton of friends pulling for you. You are always in my prayers....If you ever want to chat I am here.....ü
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Latest Activity
TC AdminKaren Weddick commented on Neil Willens's status
"Congratulations Neil on your book become a Best Seller; that is awesome. I so thrilled, happy and proud of you. Way to Go!!!"
Neil Willens posted a status""Thoughts of a Lifetime" has, in almost three weeks since it became available from the publisher been placed onto their "Best Seller" List."
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !"Hi Hugh,
I am doing well. And my health and kidney everything is well.. What about you> Hows' going your life?? want to hear as soon as possible about you.. Thank you so much."
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !"Thank you so much Paula M Rice, I am glad to have friends like you here in Transplant cafe. Thank you so much i hope everybody will help here for everybody.."
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !"Hi Preet, thank you so much. Yeah That was my first and last time. I hope i will never miss the dose. I am fine and doing well.What about you my dear friend.?"
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !"Thank you so much dear friends Kats, It's very delay to reply you but i am happy that you said true and my MD told me that.. Thank you so much for your suggest. I really appreciate for this. "
Lili Feldman commented on Lili Feldman's group The Funny Bone"A little girl was talking to her teacher about whales. The teacher said itwas physically impossible for a whale to swallow a human because eventhough it was a very large mammal its throat was very small. The little girl stated that Jonah was…"
Lili Feldman commented on Jay Robare's group Inspirational Stories"Appropriate Attire
One Sunday morning an old cowboy entered a church just before services were to begin. Although the old man and his clothes were spotlessly clean, he wore jeans, a denim shirt and boots that were very worn and ragged. In his hand…"
Walter s replied to Tai's discussion eating shellfish post transplant"I ate shrimp before but I stopped because I wasn't sure .. I was wondering the same thing because my favorite food is lobster and steamers :/"
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