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Susie Ingram
- Female
- Brighton, MI
- United States
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Susie Ingram's Discussions
Rejection
Started this discussion. Last reply by Bill Widen Jun 11, 2012. 3 Replies 1 Like
I was just told after my kidney biopsy (one year check) that I am having what they call "mild rejection" and I am to take 200 mg of prednisone for 3 days. Has anyone experienced this and how did it…Continue
Change in Mental Attitude
Started this discussion. Last reply by Jennifer Lynn Querusio Apr 2, 2012. 1 Reply 0 Likes
Has anyone experienced times of unexplained meaness towards family-specifically, my husband. I have been blowing up for things that I used to let go very easily. This is really affecting our…Continue
Change in Mental Attitude
Started this discussion. Last reply by Matthew J Litkie May 28, 2012. 13 Replies 1 Like
Has anyone experienced times of unexplained meaness towards family-specifically, my husband. I have been blowing up for things that I used to let go very easily. This is really affecting our…Continue
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Susie Ingram's Page
Latest Activity
Susan E Roth left a comment for Susie Ingram"Sorry it took me so long to get back to you. I don't goo on this site much. Kombucha is a beverage made with type of fungi starter, called a scobie for short. It is now available in stores. I love it, because I can't handle caffeine, aand…"
Bill Widen replied to Susie Ingram's discussion Rejection"We all go through ruff patches with our meds. Sometimes we fly off the handle just like that on high doses of steroids & write after we have been in the hospital.... Roid rage is normal and the less you take the better you'll feel over time"
Matthew J Litkie replied to Susie Ingram's discussion Change in Mental Attitude"What a Great discussion! I think 90% of us have the same trouble with our attitude.
I think its the Tacro. & Cellcep. I'm comin up on 5 years Liver, I get so mad sometimes
I want, well you know. "
Louise Cousins replied to Susie Ingram's discussion Change in Mental Attitude"Hey Susie, I can def relate to your experiences ~ i get such weird mood swings sometimes, silly things will make my blood boil & i can't help but snap at those closest to me, it's never a truer saying than you take things out…"
Susie Ingram replied to Susie Ingram's discussion Change in Mental Attitude"Debbie, I got my transplant in April of 2011. I am now taking 5mg of prednisone once @ day. I begged for my doctor to lower it to 2.5 but he tells me that they tried lowering to this dose but too many people started rejecting."
Debbie Koski replied to Susie Ingram's discussion Change in Mental Attitude"How much prednisone are most people taking after one year?"
Bobbiejo Winfrey replied to Susie Ingram's discussion Rejection"I am sorry that you are experiencing this mild rejection. My doctors have said I have had moments of minor rejection, but I suppose they must not have been very bad at all because my doctors did not put me on steroids or anything like that at…"
king carroll replied to Susie Ingram's discussion Rejection"i had a liver transplant in 1999 in 2003 i had mild rejection and was given prednisone which lasted five years from this i got weight gain i became a diabetic it is a useful drug with a lot of side effects"
Susie Ingram replied to Susie Ingram's discussion Change in Mental Attitude"Thank you, Burnie. I'm settling down, too."
Susie Ingram replied to Susie Ingram's discussion Change in Mental Attitude"Thanks Kats, This is EXACTLY what I am feeling and I have been doing the same this as you. I know that these things are unwarranted and it's all something in my mind. I prove to myself that I am wrong all the time. …"
Burnie Schultz replied to Susie Ingram's discussion Change in Mental Attitude"Susie.......For what it is worth. When I was put on synthroid drug for low thyroid. The Dr. put me on way to much and it made me so hyper and short w/ppl. After readjusting I settled down to my normal self.--Burnie"
Susie Ingram joined Florina's group
New Organ
New Organ is a crowd funded prize to stimulate and award the team that creates the first complex organ - heart, lung, pancreas, liver, or kidney - from one's own cells.It incentivizes regenerative medicine research and development for a real solution to the worldwide organ shortage. Giving just $10 (the cost of 2 drinks at Starbucks!) today or monthly will help grow the prize and…See More
Kats King replied to Susie Ingram's discussion Change in Mental Attitude"Just remember: "no Susie you are not crazy , you will
Just feel like you are!" kats"
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Kidney
- Donor Family Members And Families Who Donated Their Loved One's Organs / Tissue - Optional: Here Feel Free to Tell Us Anything You'd Like About Your Loved One And Your Experience:
- I received the perfect kidney and so far, I'm doing awesome.
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- Words cannot express how grateful I am. I am now able to enjoy my family , especially my grandchildren. Bless this family.
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Deceased Donor
- Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
- Everyone at the University of Michigan was compassionate, professional and informative. I had a written list of questions and they were answered before I had a chance to ask. Go Blue!!
- Which Transplant Medication(s) Do You Take?
- The big three- Prograf, Prednisone and Mycophenolate, Nystatin, Zovirax, Bactrim, Colace Prilocec, Metoprolol XL, Clondine Patch, and Cardura+
- If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
- I was listed in 2008 so I waited 3 years for the call. I was totally planning my dialysis mode, not thinking about the chance of transplantation at all. I was so surprised when they called. I had the transplant 10 hours after admission.
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am a retired owner of a preschool/kindergarten. I taught in the program also. My passion is for my home and family. I love to shop with my girls and spend lots of time with my 7 grandchildren.
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- Please encourage everyone you know to put Organ Donation on their license. It gives people like us a second chance at life. The second half will probably be better than the first.
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- Friend
- What Is Your Relationship Status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- All kinds of music. I especially like, Michael Buble and Andrea Bucelli and Celine Dione
- What is Your Favorite Quote(s)?
- " No job is worth doing unless you do it well"
- My Facebook Page URL:
- http://susieingram@comcast.net
Comment Wall (4 comments)
- At 7:24am on August 17, 2012,
TC AdminKaren Weddick said…
- At 5:29am on August 1, 2012, Susan E Roth said…
Sorry it took me so long to get back to you. I don't goo on this site much. Kombucha is a beverage made with type of fungi starter, called a scobie for short. It is now available in stores. I love it, because I can't handle caffeine, aand it makes a wonderful pick me up. IT is made with sugar and tea, but the organism changes them into a different beverage, that is slightly fizzy can be very acidic if you let it go too long, and can be flavored. It is probiotic, and very good for your gut. The only people I don't recommend drink it are ones with yeast or candida problems, Some with those conditions can tolerate it, but check with the health care professional you are consulting. I have been so lazy this Summer, I have been buying it instead of making it, but it is so expensive, I have got to get myself back in the grove! Being August (already) I have piles of produce that need to be saved, and herbs to be cut and dried. That means the Kombucha will probably still be store bought for awhile. It was nice to talk to you. Susan
- At 1:52am on August 18, 2011,
TC AdminKaren Weddick said…
- At 1:55pm on April 18, 2011,
TC AdminKaren Weddick said… - Hi Susie:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
imikimi -
not a member yet?
Photos
Latest Activity
David Goodman commented on TransplantCafe.com's group Team Prograf"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
Matt Lawson commented on TransplantCafe.com's group Team Prograf"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Dottie welker commented on TransplantCafe.com's group Team Prograf"wow sorry for all the typos !! teach me to read before hitting enter lol
"
Dottie welker commented on TransplantCafe.com's group Team Prograf"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
Dottie welker joined TransplantCafe.com's group
Team Prograf
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Dottie welker replied to Tai's discussion eating shellfish post transplant"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
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