Susan C.Carter
  • Female
  • Danville, IL
  • United States
Share on Facebook
Share

Susan C.Carter's Friends

  • Dan Bonner
  • Peter james goodman
  • Gustavo
  • Jan Ward
  • Allie
  • Tara Maynard
  • Catherine (Cathy)
  • Karen Weddick

Susan C.Carter's Discussions

Cellcept and Osteoporosis

Started this discussion. Last reply by Bobbiejo Winfrey Jul 5, 2010. 1 Reply

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the…Continue

Introduction to the transplant Community

Started Jun 20, 2010 0 Replies

Hi, my name is Susan and I am a post liver transplant patient of 10 years this coming September.  I came across this site while searching the web, via yahoo, for transplant recipients.  During the 10…Continue

 

Susan C.Carter's Page

Latest Activity

Susan C.Carter commented on Gabrielle's group Liver Transplants
"I am so thankful to be living life and realizing some of my dreams since both my liver transplant, both of which were performed in the year 2000.  In September, 2012, I will be twelve years out.  Yes, I still have some physical challenges…"
May 27, 2012
Susan C.Carter received a gift from Tara Maynard
Sep 28, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 31, 2010
Allie left a comment for Susan C.Carter
"How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!"
Aug 22, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 2, 2010
Susan C.Carter commented on Catherine (Cathy)'s group Who's On Cellcept?
"I will be 10 years out in Sept. I have taken cell cept for 9 of those years (two 500mg tab twice a day - am and pm). As best I can tell the cellcept did not cause bad side effects for me until the doctor noticed two years ago during a bone density…"
Jul 7, 2010
Susan C.Carter joined Catherine (Cathy)'s group
Thumbnail

Who's On Cellcept?

Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
Jul 7, 2010
Susan C.Carter gave a gift to Peter james goodman
Jul 5, 2010
Susan C.Carter received a gift from Peter james goodman
Jul 5, 2010
Bobbiejo Winfrey replied to Susan C.Carter's discussion Cellcept and Osteoporosis
"Dear Susan, The bone scan I had about two years ago showed that I had either mild osteoporosis or severe osteopenia, depending on which scores one looks at (it also makes it a little more complicated because I have not come close to menopause yet,…"
Jul 5, 2010
Susan C.Carter joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Jul 4, 2010
Susan C.Carter posted a discussion

Cellcept and Osteoporosis

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the bone especially at the t7 level.  I am taking calcium and have been doin so since my transplants in 2000. I was wondering if anyone else is experiencing a thinning of the bones and what meds u r using to fight it ?  I am also taking 70 mg tablets of alendronate  sodium tabs once a week.  As social…See More
Jul 4, 2010
Peter james goodman left a comment for Susan C.Carter
"Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete"
Jun 27, 2010
Susan C.Carter is now friends with Gustavo, Jan Ward, Allie and 2 more
Jun 25, 2010
Susan C.Carter received a gift from Jan Ward
Jun 25, 2010
Susan C.Carter left a comment for Peter james goodman
"Hi Peter. Look forward to talking with you on line. Are you a liver transplant patient as well? I've been through two transplants: August and September, 2000. Ive had my share of woes, but Ive also had some wonderful successes. Would love to…"
Jun 25, 2010

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God, my donor families, my primary physician, the doctors, nurses, aids, and surgeons who saw me thru the transplantation, my family and friends who were with me every step of the way. the many many people who prayed for me day and night and continue to pray for my success in life. I dont know who my donor families are but wherever they are, I just want them to know how grateful and thankful I am for this gift of life.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
micophenolate, gengraf, lyvoxyl, nefidipine, metoprolol, propoxyphene, alendronate, crestor, lorazepam, cyclobenzaprine, zolpidem
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a retired Administrator for a federal housing development
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am a married, African American female in her late 50"s who lives in the midwest. Over ten years ago I was diagnosed with walking pneumonia. During my hospitalization I went thru gall bladder surgery afterwhich my specialist noted high level liver enzymes. After further testing, I wasdiagnosed with a failing liver. My initital diagnosis was binary something and final diagnosis was primary schlerosing cholangitis. I can remember my food going straight thru me and the stentch that always followed my eating a meal. Problems with my eyes developed and I was sent to a specialist who diagnosed me with graves disease and graves eye disease. I was vitamin adk deficient and found it very difficult to walk without my legs filling like 50 pound weights. After having experienced a couple infections, my primary physician became very aggressive in getting my case looked at by the transplant team at Barnes Jewish Hospital in St.Louis, Mo. The doctors made several attempts to surgically unblock the arteries in my liver but were unsuccessful. They werre successful in placing stints in two of the arteries(veins/). Thanks to the hard work of my primary physician I was placed on the transplant list. After a year on the list, I was called in for a transplant in August, 2000. The donor, I am told was an ll year old girl who was killed in an autmobile accident. The transplanted liver lasted twelve days and rejection began to take place. I returned to Barnes Hospital's Intensive care unit where I remained 12 days until the second liver was harvested and made available to me on Sept. 12, 2000. I do not know who the donor was this time but I am so very thankful to him/her for this gift of life.
The first liver rejected because of a blockage in the hepatic artery. Again the doctors tried to unblock the artery but was unsuccessful before a second liver was sought. My kidneys were only functioning at about25-30% when the second liver was located. Thank God for all those who worked diligently on my behalf. My first year post transplant went well with the exception of my energy level. I seem to be operating at about 50% of the energy level I did prior to my illness. I received 10 lazer treatments to dry up the fluid that had accumulated behind my eyeballs. My thyroid seems to be functioning pretty much normally because of the medication I am on. I am now 10 years post transplant. My eye site is not the best. I am now experiencing effects of osteoporosis in my back and have a fractured vertebrae I'm recovering from. No more itching, thank God! Swelling occurs in my knees, legs and ankles usually when I've been on them too much. I'm starting to experience sinus infections regularly as well as urinary tract infections, and my bones are thinning more than they should be. I suffer from pain in my joints (shoulders) and get injections in them every 6-8 months so that they remain mobile and am having headaches and difficulty breathing, as well as insomnia. All of these problems mentioned are symptoms of the meds that I am taking. The liver is functioning wonderfully. Its the side effects of the medicine that are causing me grief. Overall I'd say that I'm in great shape, after ten years and I thank God and all those responsible for giving me this gift of life. I expect to live a long long time and see my grandchildren born and grow up (I dont have any as yet)
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Yahoo
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
gospel and jazz. I love romantic movies, action-packed movies, and suspenseful movies. Love to read the bible, time magazine, ebony magazine and essence magazine.
What is Your Favorite Quote(s)?
"Just do it!" "All things are possible to them that believe". "I am more than a conqueror thru Him...." "Trust in the Lord and lean not unto your own understanding..In all they ways acknowledge him and he will direct your path"

Susan C.Carter's Blog

Feeling Lost

Posted on June 19, 2010 at 11:30pm 3 Comments

This is my first time on this website. I come online from time to time to try and find a site where I can meet and talk with other transplant patients. I want to know how others are living with their gift of life, what problems they are experiencing, especially due to side effects of medications taken, and how they are faring, physically, emotionally. Even tho I've been blessed to be 10 years post transplant, i really feel like i'm out here alone. Is it just me, or does anyone… Continue

Comment Wall (14 comments)

You need to be a member of TransplantCafe.com - The Gift of eLife! to add comments!

Join TransplantCafe.com - The Gift of eLife!

At 8:47am on February 28, 2012, Karen Weddick said…
At 4:04pm on September 28, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:59pm on August 31, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:03am on August 22, 2010, Allie said…
How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!
At 9:45pm on August 02, 2010, Tara Maynard gave Susan C.Carter a gift
At 8:23pm on July 05, 2010, Peter james goodman gave Susan C.Carter a gift
Gift
Hey Susan, I look forward to helping you in any way I can, I will include you in my prayers tonight! Peace and good journey--Bearman
At 9:26pm on July 4, 2010, Marce said…
I am made happy by much that you like the site, really it is very good, satiates information and the best people with are interested jointly.
Fondness for you

At 2:23pm on July 1, 2010, Marce said…

At 8:40pm on June 27, 2010, Peter james goodman said…
Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete
At 5:35pm on June 25, 2010, Jan Ward gave Susan C.Carter a gift
Gift
Welcome, Susan
 
 
 

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Kelly Butts posted a blog post

Baby girl needs a Liver (toronto area) please help

Its been a while since I've been on this site.  Almost 6 years since my donation, thankfully we are all doing amazing.  I am writing today to help spread the word for a friends 8 month old daughter who is in dire need of her own Liver Donation.  She lives in the Toronto area Every avenue we can use to help spread the word it crucial.  As a liver donor myself I know how hard it is to find suitable matches. Here is the link to her father’s facebook page and story.  If you or anyone you know can help or just spread the word yourself I thank you kindly.  The family can be reached through the facebook page or message me. https://www.facebook.com/photo.php?fbid=10152722228816307&set=a.10150303650936307.332967.555311306&type=1&theater&notif_t=like – story link with photo…See More
20 hours ago
Laura updated their profile
Tuesday
Ralph N. Johnson posted a status
"Graft vs Host after a liver transplant"
Sunday
Ralph N. Johnson posted a discussion

Survived Graft vs Host after a liver transplant

Hello group, just a follow up to discussion concerning  graft vs Host after a liver transplant. Wondering if anyone had additional information concerning this discussion. Know or anyone? Heard about it?...Anyone please..thank you.See More
Sunday
Ralph N. Johnson posted a status
"Hello, group just a follow up to my previous discussion...Suggestions?"
Sunday
Profile IconPrissy Sanchez and Ralph Hamilton joined TransplantCafe.com - The Gift of eLife!
Friday
Ramona commented on Flo Berry's group Caregivers, family members of transplant patients
"Good luck Michelle - it can be difficult, but it's nice to know that you are not alone on this endeavor...having your sister there will help.  I hope all goes smoothly and quickly for you all! "
May 18
Michelle commented on Flo Berry's group Caregivers, family members of transplant patients
"Thank you!!"
May 18
Michelle commented on Flo Berry's group Caregivers, family members of transplant patients
"Thank you!!"
May 18
Beth Haven commented on Flo Berry's group Caregivers, family members of transplant patients
"Michelle, many transplant centers have support groups made up of recipients and caregivers. Some have groups just for caregivers. I would check with the transplant center. The heart transplant support group where my husband had his heart transplant…"
May 18
Michelle commented on Flo Berry's group Caregivers, family members of transplant patients
"Does anyone have an advice or know where I can go for support as a caregiver? My mother will soon be placed on the Wait List for a liver and kidney. My sister and I are to be her caretakers when she comes home. I'm beginning to be a nervous…"
May 18
Michelle joined Flo Berry's group
Thumbnail

Caregivers, family members of transplant patients

Support group for caregivers and family members of transplant recipients - pre or post op. Talk to other family members, spouses & significant others who have 'been there, done that' to find help to keep you going through the rough times.See More
May 18
Michelle is now a member of TransplantCafe.com - The Gift of eLife!
May 18
Ann Haynes updated their profile
May 17
Carrie Boutelle was featured
May 14
Carrie Boutelle is now a member of TransplantCafe.com - The Gift of eLife!
May 14

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service