Susan C.Carter
  • Female
  • Danville, IL
  • United States
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Susan C.Carter's Discussions

Cellcept and Osteoporosis

Started this discussion. Last reply by Bobbiejo Winfrey Jul 5, 2010. 1 Reply

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the…Continue

Introduction to the transplant Community

Started Jun 20, 2010 0 Replies

Hi, my name is Susan and I am a post liver transplant patient of 10 years this coming September.  I came across this site while searching the web, via yahoo, for transplant recipients.  During the 10…Continue

 

Susan C.Carter's Page

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God, my donor families, my primary physician, the doctors, nurses, aids, and surgeons who saw me thru the transplantation, my family and friends who were with me every step of the way. the many many people who prayed for me day and night and continue to pray for my success in life. I dont know who my donor families are but wherever they are, I just want them to know how grateful and thankful I am for this gift of life.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
micophenolate, gengraf, lyvoxyl, nefidipine, metoprolol, propoxyphene, alendronate, crestor, lorazepam, cyclobenzaprine, zolpidem
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a retired Administrator for a federal housing development
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am a married, African American female in her late 50"s who lives in the midwest. Over ten years ago I was diagnosed with walking pneumonia. During my hospitalization I went thru gall bladder surgery afterwhich my specialist noted high level liver enzymes. After further testing, I wasdiagnosed with a failing liver. My initital diagnosis was binary something and final diagnosis was primary schlerosing cholangitis. I can remember my food going straight thru me and the stentch that always followed my eating a meal. Problems with my eyes developed and I was sent to a specialist who diagnosed me with graves disease and graves eye disease. I was vitamin adk deficient and found it very difficult to walk without my legs filling like 50 pound weights. After having experienced a couple infections, my primary physician became very aggressive in getting my case looked at by the transplant team at Barnes Jewish Hospital in St.Louis, Mo. The doctors made several attempts to surgically unblock the arteries in my liver but were unsuccessful. They werre successful in placing stints in two of the arteries(veins/). Thanks to the hard work of my primary physician I was placed on the transplant list. After a year on the list, I was called in for a transplant in August, 2000. The donor, I am told was an ll year old girl who was killed in an autmobile accident. The transplanted liver lasted twelve days and rejection began to take place. I returned to Barnes Hospital's Intensive care unit where I remained 12 days until the second liver was harvested and made available to me on Sept. 12, 2000. I do not know who the donor was this time but I am so very thankful to him/her for this gift of life.
The first liver rejected because of a blockage in the hepatic artery. Again the doctors tried to unblock the artery but was unsuccessful before a second liver was sought. My kidneys were only functioning at about25-30% when the second liver was located. Thank God for all those who worked diligently on my behalf. My first year post transplant went well with the exception of my energy level. I seem to be operating at about 50% of the energy level I did prior to my illness. I received 10 lazer treatments to dry up the fluid that had accumulated behind my eyeballs. My thyroid seems to be functioning pretty much normally because of the medication I am on. I am now 10 years post transplant. My eye site is not the best. I am now experiencing effects of osteoporosis in my back and have a fractured vertebrae I'm recovering from. No more itching, thank God! Swelling occurs in my knees, legs and ankles usually when I've been on them too much. I'm starting to experience sinus infections regularly as well as urinary tract infections, and my bones are thinning more than they should be. I suffer from pain in my joints (shoulders) and get injections in them every 6-8 months so that they remain mobile and am having headaches and difficulty breathing, as well as insomnia. All of these problems mentioned are symptoms of the meds that I am taking. The liver is functioning wonderfully. Its the side effects of the medicine that are causing me grief. Overall I'd say that I'm in great shape, after ten years and I thank God and all those responsible for giving me this gift of life. I expect to live a long long time and see my grandchildren born and grow up (I dont have any as yet)
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Yahoo
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
gospel and jazz. I love romantic movies, action-packed movies, and suspenseful movies. Love to read the bible, time magazine, ebony magazine and essence magazine.
What is Your Favorite Quote(s)?
"Just do it!" "All things are possible to them that believe". "I am more than a conqueror thru Him...." "Trust in the Lord and lean not unto your own understanding..In all they ways acknowledge him and he will direct your path"

Susan C.Carter's Blog

Feeling Lost

Posted on June 19, 2010 at 11:30pm 3 Comments

This is my first time on this website. I come online from time to time to try and find a site where I can meet and talk with other transplant patients. I want to know how others are living with their gift of life, what problems they are experiencing, especially due to side effects of medications taken, and how they are faring, physically, emotionally. Even tho I've been blessed to be 10 years post transplant, i really feel like i'm out here alone. Is it just me, or does anyone… Continue

Comment Wall (14 comments)

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At 8:47am on February 28, 2012, Karen Weddick said…
At 4:04pm on September 28, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:59pm on August 31, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:03am on August 22, 2010, Allie said…
How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!
At 9:45pm on August 02, 2010, Tara Maynard gave Susan C.Carter a gift
At 8:23pm on July 05, 2010, Peter james goodman gave Susan C.Carter a gift
Gift
Hey Susan, I look forward to helping you in any way I can, I will include you in my prayers tonight! Peace and good journey--Bearman
At 9:26pm on July 4, 2010, Marce said…
I am made happy by much that you like the site, really it is very good, satiates information and the best people with are interested jointly.
Fondness for you

At 2:23pm on July 1, 2010, Marce said…

At 8:40pm on June 27, 2010, Peter james goodman said…
Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete
At 5:35pm on June 25, 2010, Jan Ward gave Susan C.Carter a gift
Gift
Welcome, Susan
 
 
 

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Terri Lynne replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
"Hi, still in rejection, posted update on my page. I wasn't sick or anything. I felt fine, just went in for labs like usual and here I am 3 months later. Thanks for the concern and checking in on me! I am getting labs again Thursday. Terri"
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STILL IN REJECTION

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