Susan C.Carter
  • Female
  • Danville, IL
  • United States
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Susan C.Carter's Friends

  • Dan Bonner
  • Peter james goodman
  • Gustavo
  • Jan Ward
  • Allie
  • Tara Maynard
  • Catherine (Cathy)
  • Karen Weddick

Susan C.Carter's Discussions

Cellcept and Osteoporosis

Started this discussion. Last reply by Bobbiejo Winfrey Jul 5, 2010. 1 Reply

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the…Continue

Introduction to the transplant Community

Started Jun 20, 2010 0 Replies

Hi, my name is Susan and I am a post liver transplant patient of 10 years this coming September.  I came across this site while searching the web, via yahoo, for transplant recipients.  During the 10…Continue

 

Susan C.Carter's Page

Latest Activity

Susan C.Carter commented on Gabrielle's group Liver Transplants
"I am so thankful to be living life and realizing some of my dreams since both my liver transplant, both of which were performed in the year 2000.  In September, 2012, I will be twelve years out.  Yes, I still have some physical challenges…"
May 27, 2012
Susan C.Carter received a gift from Tara Maynard
Sep 28, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 31, 2010
Allie left a comment for Susan C.Carter
"How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!"
Aug 22, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 2, 2010
Susan C.Carter commented on Catherine (Cathy)'s group Who's On Cellcept?
"I will be 10 years out in Sept. I have taken cell cept for 9 of those years (two 500mg tab twice a day - am and pm). As best I can tell the cellcept did not cause bad side effects for me until the doctor noticed two years ago during a bone density…"
Jul 7, 2010
Susan C.Carter joined Catherine (Cathy)'s group
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Who's On Cellcept?

Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
Jul 7, 2010
Susan C.Carter gave a gift to Peter james goodman
Jul 5, 2010
Susan C.Carter received a gift from Peter james goodman
Jul 5, 2010
Bobbiejo Winfrey replied to Susan C.Carter's discussion Cellcept and Osteoporosis
"Dear Susan, The bone scan I had about two years ago showed that I had either mild osteoporosis or severe osteopenia, depending on which scores one looks at (it also makes it a little more complicated because I have not come close to menopause yet,…"
Jul 5, 2010
Susan C.Carter joined Gabrielle's group
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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Jul 4, 2010
Susan C.Carter posted a discussion

Cellcept and Osteoporosis

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the bone especially at the t7 level.  I am taking calcium and have been doin so since my transplants in 2000. I was wondering if anyone else is experiencing a thinning of the bones and what meds u r using to fight it ?  I am also taking 70 mg tablets of alendronate  sodium tabs once a week.  As social…See More
Jul 4, 2010
Peter james goodman left a comment for Susan C.Carter
"Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete"
Jun 27, 2010
Susan C.Carter is now friends with Gustavo, Jan Ward, Allie and 2 more
Jun 25, 2010
Susan C.Carter received a gift from Jan Ward
Jun 25, 2010
Susan C.Carter left a comment for Peter james goodman
"Hi Peter. Look forward to talking with you on line. Are you a liver transplant patient as well? I've been through two transplants: August and September, 2000. Ive had my share of woes, but Ive also had some wonderful successes. Would love to…"
Jun 25, 2010

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God, my donor families, my primary physician, the doctors, nurses, aids, and surgeons who saw me thru the transplantation, my family and friends who were with me every step of the way. the many many people who prayed for me day and night and continue to pray for my success in life. I dont know who my donor families are but wherever they are, I just want them to know how grateful and thankful I am for this gift of life.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
micophenolate, gengraf, lyvoxyl, nefidipine, metoprolol, propoxyphene, alendronate, crestor, lorazepam, cyclobenzaprine, zolpidem
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a retired Administrator for a federal housing development
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am a married, African American female in her late 50"s who lives in the midwest. Over ten years ago I was diagnosed with walking pneumonia. During my hospitalization I went thru gall bladder surgery afterwhich my specialist noted high level liver enzymes. After further testing, I wasdiagnosed with a failing liver. My initital diagnosis was binary something and final diagnosis was primary schlerosing cholangitis. I can remember my food going straight thru me and the stentch that always followed my eating a meal. Problems with my eyes developed and I was sent to a specialist who diagnosed me with graves disease and graves eye disease. I was vitamin adk deficient and found it very difficult to walk without my legs filling like 50 pound weights. After having experienced a couple infections, my primary physician became very aggressive in getting my case looked at by the transplant team at Barnes Jewish Hospital in St.Louis, Mo. The doctors made several attempts to surgically unblock the arteries in my liver but were unsuccessful. They werre successful in placing stints in two of the arteries(veins/). Thanks to the hard work of my primary physician I was placed on the transplant list. After a year on the list, I was called in for a transplant in August, 2000. The donor, I am told was an ll year old girl who was killed in an autmobile accident. The transplanted liver lasted twelve days and rejection began to take place. I returned to Barnes Hospital's Intensive care unit where I remained 12 days until the second liver was harvested and made available to me on Sept. 12, 2000. I do not know who the donor was this time but I am so very thankful to him/her for this gift of life.
The first liver rejected because of a blockage in the hepatic artery. Again the doctors tried to unblock the artery but was unsuccessful before a second liver was sought. My kidneys were only functioning at about25-30% when the second liver was located. Thank God for all those who worked diligently on my behalf. My first year post transplant went well with the exception of my energy level. I seem to be operating at about 50% of the energy level I did prior to my illness. I received 10 lazer treatments to dry up the fluid that had accumulated behind my eyeballs. My thyroid seems to be functioning pretty much normally because of the medication I am on. I am now 10 years post transplant. My eye site is not the best. I am now experiencing effects of osteoporosis in my back and have a fractured vertebrae I'm recovering from. No more itching, thank God! Swelling occurs in my knees, legs and ankles usually when I've been on them too much. I'm starting to experience sinus infections regularly as well as urinary tract infections, and my bones are thinning more than they should be. I suffer from pain in my joints (shoulders) and get injections in them every 6-8 months so that they remain mobile and am having headaches and difficulty breathing, as well as insomnia. All of these problems mentioned are symptoms of the meds that I am taking. The liver is functioning wonderfully. Its the side effects of the medicine that are causing me grief. Overall I'd say that I'm in great shape, after ten years and I thank God and all those responsible for giving me this gift of life. I expect to live a long long time and see my grandchildren born and grow up (I dont have any as yet)
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Yahoo
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
gospel and jazz. I love romantic movies, action-packed movies, and suspenseful movies. Love to read the bible, time magazine, ebony magazine and essence magazine.
What is Your Favorite Quote(s)?
"Just do it!" "All things are possible to them that believe". "I am more than a conqueror thru Him...." "Trust in the Lord and lean not unto your own understanding..In all they ways acknowledge him and he will direct your path"

Susan C.Carter's Blog

Feeling Lost

Posted on June 19, 2010 at 11:30pm 3 Comments

This is my first time on this website. I come online from time to time to try and find a site where I can meet and talk with other transplant patients. I want to know how others are living with their gift of life, what problems they are experiencing, especially due to side effects of medications taken, and how they are faring, physically, emotionally. Even tho I've been blessed to be 10 years post transplant, i really feel like i'm out here alone. Is it just me, or does anyone… Continue

Comment Wall (14 comments)

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At 8:47am on February 28, 2012, Karen Weddick said…
At 4:04pm on September 28, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:59pm on August 31, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:03am on August 22, 2010, Allie said…
How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!
At 9:45pm on August 02, 2010, Tara Maynard gave Susan C.Carter a gift
At 8:23pm on July 05, 2010, Peter james goodman gave Susan C.Carter a gift
Gift
Hey Susan, I look forward to helping you in any way I can, I will include you in my prayers tonight! Peace and good journey--Bearman
At 9:26pm on July 4, 2010, Marce said…
I am made happy by much that you like the site, really it is very good, satiates information and the best people with are interested jointly.
Fondness for you

At 2:23pm on July 1, 2010, Marce said…

At 8:40pm on June 27, 2010, Peter james goodman said…
Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete
At 5:35pm on June 25, 2010, Jan Ward gave Susan C.Carter a gift
Gift
Welcome, Susan
 
 
 

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Latest Activity

Ramona replied to Stefan's discussion Hello, I am new here
"Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
20 hours ago
Parent of B posted a discussion

Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
yesterday
Stefan posted a discussion

Hello, I am new here

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
yesterday
Stefan liked Stefan's profile
yesterday
Stefan left a comment for Stefan
"My wife is a double lung transplant of 15 years"
yesterday
Stefan is now a member of TransplantCafe.com - The Gift of eLife!
Thursday
Jeff Clardy posted a discussion

Surgery after transplant

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
Wednesday
Karen Harrill replied to Phil Keyes's discussion Post transplant blues
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
Tuesday
Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
Tuesday
Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
Tuesday
Karen Harrill joined TransplantCafe.com's group
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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Tuesday
Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
Tuesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Makes sense to me. Good one David."
Tuesday
Ali Barton and Karen Weddick are now friends
Tuesday
Ali Barton updated their profile
Monday
Lloyd Hopes liked TransplantCafe.com's group Share Your Transplant Story
Monday

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