Susan C.Carter
  • Female
  • Danville, IL
  • United States
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Susan C.Carter's Friends

  • Dan Bonner
  • Peter james goodman
  • Gustavo
  • Jan Ward
  • Allie
  • Tara Maynard
  • Catherine (Cathy)
  • Karen Weddick

Susan C.Carter's Discussions

Cellcept and Osteoporosis

Started this discussion. Last reply by Bobbiejo Winfrey Jul 5, 2010. 1 Reply

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the…Continue

Introduction to the transplant Community

Started Jun 20, 2010 0 Replies

Hi, my name is Susan and I am a post liver transplant patient of 10 years this coming September.  I came across this site while searching the web, via yahoo, for transplant recipients.  During the 10…Continue

 

Susan C.Carter's Page

Latest Activity

Susan C.Carter commented on Gabrielle's group Liver Transplants
"I am so thankful to be living life and realizing some of my dreams since both my liver transplant, both of which were performed in the year 2000.  In September, 2012, I will be twelve years out.  Yes, I still have some physical challenges…"
May 27, 2012
Susan C.Carter received a gift from Tara Maynard
Sep 28, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 31, 2010
Allie left a comment for Susan C.Carter
"How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!"
Aug 22, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 2, 2010
Susan C.Carter commented on Catherine (Cathy)'s group Who's On Cellcept?
"I will be 10 years out in Sept. I have taken cell cept for 9 of those years (two 500mg tab twice a day - am and pm). As best I can tell the cellcept did not cause bad side effects for me until the doctor noticed two years ago during a bone density…"
Jul 7, 2010
Susan C.Carter joined Catherine (Cathy)'s group
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Who's On Cellcept?

Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
Jul 7, 2010
Susan C.Carter gave a gift to Peter james goodman
Jul 5, 2010
Susan C.Carter received a gift from Peter james goodman
Jul 5, 2010
Bobbiejo Winfrey replied to Susan C.Carter's discussion Cellcept and Osteoporosis
"Dear Susan, The bone scan I had about two years ago showed that I had either mild osteoporosis or severe osteopenia, depending on which scores one looks at (it also makes it a little more complicated because I have not come close to menopause yet,…"
Jul 5, 2010
Susan C.Carter joined Gabrielle's group
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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Jul 4, 2010
Susan C.Carter posted a discussion

Cellcept and Osteoporosis

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the bone especially at the t7 level.  I am taking calcium and have been doin so since my transplants in 2000. I was wondering if anyone else is experiencing a thinning of the bones and what meds u r using to fight it ?  I am also taking 70 mg tablets of alendronate  sodium tabs once a week.  As social…See More
Jul 4, 2010
Peter james goodman left a comment for Susan C.Carter
"Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete"
Jun 27, 2010
Susan C.Carter is now friends with Gustavo, Jan Ward, Allie and 2 more
Jun 25, 2010
Susan C.Carter received a gift from Jan Ward
Jun 25, 2010
Susan C.Carter left a comment for Peter james goodman
"Hi Peter. Look forward to talking with you on line. Are you a liver transplant patient as well? I've been through two transplants: August and September, 2000. Ive had my share of woes, but Ive also had some wonderful successes. Would love to…"
Jun 25, 2010

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God, my donor families, my primary physician, the doctors, nurses, aids, and surgeons who saw me thru the transplantation, my family and friends who were with me every step of the way. the many many people who prayed for me day and night and continue to pray for my success in life. I dont know who my donor families are but wherever they are, I just want them to know how grateful and thankful I am for this gift of life.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
micophenolate, gengraf, lyvoxyl, nefidipine, metoprolol, propoxyphene, alendronate, crestor, lorazepam, cyclobenzaprine, zolpidem
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a retired Administrator for a federal housing development
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am a married, African American female in her late 50"s who lives in the midwest. Over ten years ago I was diagnosed with walking pneumonia. During my hospitalization I went thru gall bladder surgery afterwhich my specialist noted high level liver enzymes. After further testing, I wasdiagnosed with a failing liver. My initital diagnosis was binary something and final diagnosis was primary schlerosing cholangitis. I can remember my food going straight thru me and the stentch that always followed my eating a meal. Problems with my eyes developed and I was sent to a specialist who diagnosed me with graves disease and graves eye disease. I was vitamin adk deficient and found it very difficult to walk without my legs filling like 50 pound weights. After having experienced a couple infections, my primary physician became very aggressive in getting my case looked at by the transplant team at Barnes Jewish Hospital in St.Louis, Mo. The doctors made several attempts to surgically unblock the arteries in my liver but were unsuccessful. They werre successful in placing stints in two of the arteries(veins/). Thanks to the hard work of my primary physician I was placed on the transplant list. After a year on the list, I was called in for a transplant in August, 2000. The donor, I am told was an ll year old girl who was killed in an autmobile accident. The transplanted liver lasted twelve days and rejection began to take place. I returned to Barnes Hospital's Intensive care unit where I remained 12 days until the second liver was harvested and made available to me on Sept. 12, 2000. I do not know who the donor was this time but I am so very thankful to him/her for this gift of life.
The first liver rejected because of a blockage in the hepatic artery. Again the doctors tried to unblock the artery but was unsuccessful before a second liver was sought. My kidneys were only functioning at about25-30% when the second liver was located. Thank God for all those who worked diligently on my behalf. My first year post transplant went well with the exception of my energy level. I seem to be operating at about 50% of the energy level I did prior to my illness. I received 10 lazer treatments to dry up the fluid that had accumulated behind my eyeballs. My thyroid seems to be functioning pretty much normally because of the medication I am on. I am now 10 years post transplant. My eye site is not the best. I am now experiencing effects of osteoporosis in my back and have a fractured vertebrae I'm recovering from. No more itching, thank God! Swelling occurs in my knees, legs and ankles usually when I've been on them too much. I'm starting to experience sinus infections regularly as well as urinary tract infections, and my bones are thinning more than they should be. I suffer from pain in my joints (shoulders) and get injections in them every 6-8 months so that they remain mobile and am having headaches and difficulty breathing, as well as insomnia. All of these problems mentioned are symptoms of the meds that I am taking. The liver is functioning wonderfully. Its the side effects of the medicine that are causing me grief. Overall I'd say that I'm in great shape, after ten years and I thank God and all those responsible for giving me this gift of life. I expect to live a long long time and see my grandchildren born and grow up (I dont have any as yet)
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Yahoo
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
gospel and jazz. I love romantic movies, action-packed movies, and suspenseful movies. Love to read the bible, time magazine, ebony magazine and essence magazine.
What is Your Favorite Quote(s)?
"Just do it!" "All things are possible to them that believe". "I am more than a conqueror thru Him...." "Trust in the Lord and lean not unto your own understanding..In all they ways acknowledge him and he will direct your path"

Susan C.Carter's Blog

Feeling Lost

Posted on June 19, 2010 at 11:30pm 3 Comments

This is my first time on this website. I come online from time to time to try and find a site where I can meet and talk with other transplant patients. I want to know how others are living with their gift of life, what problems they are experiencing, especially due to side effects of medications taken, and how they are faring, physically, emotionally. Even tho I've been blessed to be 10 years post transplant, i really feel like i'm out here alone. Is it just me, or does anyone… Continue

Comment Wall (14 comments)

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At 8:47am on February 28, 2012, Karen Weddick said…
At 4:04pm on September 28, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:59pm on August 31, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:03am on August 22, 2010, Allie said…
How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!
At 9:45pm on August 02, 2010, Tara Maynard gave Susan C.Carter a gift
At 8:23pm on July 05, 2010, Peter james goodman gave Susan C.Carter a gift
Gift
Hey Susan, I look forward to helping you in any way I can, I will include you in my prayers tonight! Peace and good journey--Bearman
At 9:26pm on July 4, 2010, Marce said…
I am made happy by much that you like the site, really it is very good, satiates information and the best people with are interested jointly.
Fondness for you

At 2:23pm on July 1, 2010, Marce said…

At 8:40pm on June 27, 2010, Peter james goodman said…
Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete
At 5:35pm on June 25, 2010, Jan Ward gave Susan C.Carter a gift
Gift
Welcome, Susan
 
 
 

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Latest Activity

Clare mcgee replied to Andrea Gaskin's discussion Anyone out there had a Liver Transplant and now need a Kidney due to prograft?
"Hi Andrea, You have certainly had a rough time on top of the usual transplant roller coaster. Unfortunately the drugs we rely on bring its own problems. I am very pleased you have a supportive family to keep you strong. You are young & strong in…"
16 hours ago
Beverly L. Senzee was featured
Wednesday
Profile IconBeverly L. Senzee and Keeleigh John joined TransplantCafe.com - The Gift of eLife!
Wednesday
Andrea Gaskin replied to Andrea Gaskin's discussion Anyone out there had a Liver Transplant and now need a Kidney due to prograft?
"Hi Clare, I started off taking problably around 9mg 2x a day of prograft and 1000mg of Cellcept 2x a day. It was eventually tapered down to 4mg then in Feb down to 2mg and cellcept to 500mg 2x a day. My dose has fluctuated quite a bit in the last 2…"
Monday
Caring 4 Carrie posted a blog post

Kidney Fact: Diabetics Can Still Enjoy Easter Too! :)

 Easter Can Still Be Sweet For Those With Diabetes. The ultimate goal is to watch your glucose sugar level if you're planning on having chocolates.Here's options for Diabetics on Easter:  1) Sugar free- family fun activities/ exercise 2) Chocolates- major portion control 3) Non food gifts- gift of flowers or plant 4) Sweet Alternatives- Simnel cake or hot cross buSee More
Monday
Caring 4 Carrie posted a status
"This Afeera. She's needing a kidney. Visit her FB page:…"
Monday
Clare mcgee replied to Andrea Gaskin's discussion Anyone out there had a Liver Transplant and now need a Kidney due to prograft?
"Hi Andrea, Unfortunately This is more common than you may think . Not my personal experience granted but have heard & read of this happening. Out of curiosity what were your Prograf levels over the 2 yr period? & doses? As this plays a…"
Sunday
Brian Primack replied to Phil Keyes's discussion Post transplant blues
"Ipad my heart transplant 8 months ago and I also am on 2x 1500mg Cellcept, 12.5 of prednisone and prograf. I don't feel very good either. I keep wondering when I am going to feel better?"
Saturday
Brian Primack liked Donnia's group Prednisone Sucks :)
Saturday
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Andrea Gaskin left a comment for Breanna Williams
"Welcome to the Transplant Cafe Family!!!"
Saturday
Andrea Gaskin posted a discussion

Anyone out there had a Liver Transplant and now need a Kidney due to prograft?

I had my liver transplant March 2012 and now last month almost 2 yrs after my liver transplant, I'm in kidnwy failure and on dialysis 3x a week. I am currently being evauated for a kidney transplant at MUSC in Charleston, SC. I hate dialysis! I need my life back!See More
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