Susan C.Carter
  • Female
  • Danville, IL
  • United States
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Susan C.Carter's Friends

  • Dan Bonner
  • Peter james goodman
  • Gustavo
  • Jan Ward
  • Allie
  • Tara Maynard
  • Catherine (Cathy)
  • Karen Weddick

Susan C.Carter's Discussions

Cellcept and Osteoporosis

Started this discussion. Last reply by Bobbiejo Winfrey Jul 5, 2010. 1 Reply

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the…Continue

Introduction to the transplant Community

Started Jun 20, 2010 0 Replies

Hi, my name is Susan and I am a post liver transplant patient of 10 years this coming September.  I came across this site while searching the web, via yahoo, for transplant recipients.  During the 10…Continue

 

Susan C.Carter's Page

Latest Activity

Susan C.Carter commented on Gabrielle's group Liver Transplants
"I am so thankful to be living life and realizing some of my dreams since both my liver transplant, both of which were performed in the year 2000.  In September, 2012, I will be twelve years out.  Yes, I still have some physical challenges…"
May 27, 2012
Susan C.Carter received a gift from Tara Maynard
Sep 28, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 31, 2010
Allie left a comment for Susan C.Carter
"How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!"
Aug 22, 2010
Susan C.Carter received a gift from Tara Maynard
Aug 2, 2010
Susan C.Carter commented on Catherine (Cathy)'s group Who's On Cellcept?
"I will be 10 years out in Sept. I have taken cell cept for 9 of those years (two 500mg tab twice a day - am and pm). As best I can tell the cellcept did not cause bad side effects for me until the doctor noticed two years ago during a bone density…"
Jul 7, 2010
Susan C.Carter joined Catherine (Cathy)'s group
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Who's On Cellcept?

Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
Jul 7, 2010
Susan C.Carter gave a gift to Peter james goodman
Jul 5, 2010
Susan C.Carter received a gift from Peter james goodman
Jul 5, 2010
Bobbiejo Winfrey replied to Susan C.Carter's discussion Cellcept and Osteoporosis
"Dear Susan, The bone scan I had about two years ago showed that I had either mild osteoporosis or severe osteopenia, depending on which scores one looks at (it also makes it a little more complicated because I have not come close to menopause yet,…"
Jul 5, 2010
Susan C.Carter joined Gabrielle's group
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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Jul 4, 2010
Susan C.Carter posted a discussion

Cellcept and Osteoporosis

I have been taking cellcept along with gengraf for 10 years now to fight organ rejection. Within the past two years I have been diagnosed with osteoporosis in my spine. There is a thinning out of the bone especially at the t7 level.  I am taking calcium and have been doin so since my transplants in 2000. I was wondering if anyone else is experiencing a thinning of the bones and what meds u r using to fight it ?  I am also taking 70 mg tablets of alendronate  sodium tabs once a week.  As social…See More
Jul 4, 2010
Peter james goodman left a comment for Susan C.Carter
"Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete"
Jun 27, 2010
Susan C.Carter is now friends with Gustavo, Jan Ward, Allie and 2 more
Jun 25, 2010
Susan C.Carter received a gift from Jan Ward
Jun 25, 2010
Susan C.Carter left a comment for Peter james goodman
"Hi Peter. Look forward to talking with you on line. Are you a liver transplant patient as well? I've been through two transplants: August and September, 2000. Ive had my share of woes, but Ive also had some wonderful successes. Would love to…"
Jun 25, 2010

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God, my donor families, my primary physician, the doctors, nurses, aids, and surgeons who saw me thru the transplantation, my family and friends who were with me every step of the way. the many many people who prayed for me day and night and continue to pray for my success in life. I dont know who my donor families are but wherever they are, I just want them to know how grateful and thankful I am for this gift of life.
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
micophenolate, gengraf, lyvoxyl, nefidipine, metoprolol, propoxyphene, alendronate, crestor, lorazepam, cyclobenzaprine, zolpidem
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a retired Administrator for a federal housing development
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am a married, African American female in her late 50"s who lives in the midwest. Over ten years ago I was diagnosed with walking pneumonia. During my hospitalization I went thru gall bladder surgery afterwhich my specialist noted high level liver enzymes. After further testing, I wasdiagnosed with a failing liver. My initital diagnosis was binary something and final diagnosis was primary schlerosing cholangitis. I can remember my food going straight thru me and the stentch that always followed my eating a meal. Problems with my eyes developed and I was sent to a specialist who diagnosed me with graves disease and graves eye disease. I was vitamin adk deficient and found it very difficult to walk without my legs filling like 50 pound weights. After having experienced a couple infections, my primary physician became very aggressive in getting my case looked at by the transplant team at Barnes Jewish Hospital in St.Louis, Mo. The doctors made several attempts to surgically unblock the arteries in my liver but were unsuccessful. They werre successful in placing stints in two of the arteries(veins/). Thanks to the hard work of my primary physician I was placed on the transplant list. After a year on the list, I was called in for a transplant in August, 2000. The donor, I am told was an ll year old girl who was killed in an autmobile accident. The transplanted liver lasted twelve days and rejection began to take place. I returned to Barnes Hospital's Intensive care unit where I remained 12 days until the second liver was harvested and made available to me on Sept. 12, 2000. I do not know who the donor was this time but I am so very thankful to him/her for this gift of life.
The first liver rejected because of a blockage in the hepatic artery. Again the doctors tried to unblock the artery but was unsuccessful before a second liver was sought. My kidneys were only functioning at about25-30% when the second liver was located. Thank God for all those who worked diligently on my behalf. My first year post transplant went well with the exception of my energy level. I seem to be operating at about 50% of the energy level I did prior to my illness. I received 10 lazer treatments to dry up the fluid that had accumulated behind my eyeballs. My thyroid seems to be functioning pretty much normally because of the medication I am on. I am now 10 years post transplant. My eye site is not the best. I am now experiencing effects of osteoporosis in my back and have a fractured vertebrae I'm recovering from. No more itching, thank God! Swelling occurs in my knees, legs and ankles usually when I've been on them too much. I'm starting to experience sinus infections regularly as well as urinary tract infections, and my bones are thinning more than they should be. I suffer from pain in my joints (shoulders) and get injections in them every 6-8 months so that they remain mobile and am having headaches and difficulty breathing, as well as insomnia. All of these problems mentioned are symptoms of the meds that I am taking. The liver is functioning wonderfully. Its the side effects of the medicine that are causing me grief. Overall I'd say that I'm in great shape, after ten years and I thank God and all those responsible for giving me this gift of life. I expect to live a long long time and see my grandchildren born and grow up (I dont have any as yet)
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Yahoo
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
gospel and jazz. I love romantic movies, action-packed movies, and suspenseful movies. Love to read the bible, time magazine, ebony magazine and essence magazine.
What is Your Favorite Quote(s)?
"Just do it!" "All things are possible to them that believe". "I am more than a conqueror thru Him...." "Trust in the Lord and lean not unto your own understanding..In all they ways acknowledge him and he will direct your path"

Susan C.Carter's Blog

Feeling Lost

Posted on June 19, 2010 at 11:30pm 3 Comments

This is my first time on this website. I come online from time to time to try and find a site where I can meet and talk with other transplant patients. I want to know how others are living with their gift of life, what problems they are experiencing, especially due to side effects of medications taken, and how they are faring, physically, emotionally. Even tho I've been blessed to be 10 years post transplant, i really feel like i'm out here alone. Is it just me, or does anyone… Continue

Comment Wall (14 comments)

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At 8:47am on February 28, 2012, Karen Weddick said…
At 4:04pm on September 28, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:59pm on August 31, 2010, Tara Maynard gave Susan C.Carter a gift
At 12:03am on August 22, 2010, Allie said…
How have you been doing Susan, have you heard about school? Hope all is well, still praying for you!
At 9:45pm on August 02, 2010, Tara Maynard gave Susan C.Carter a gift
At 8:23pm on July 05, 2010, Peter james goodman gave Susan C.Carter a gift
At 9:26pm on July 4, 2010, Marce said…
I am made happy by much that you like the site, really it is very good, satiates information and the best people with are interested jointly.
Fondness for you

At 2:23pm on July 1, 2010, Marce said…

At 8:40pm on June 27, 2010, Peter james goodman said…
Hey Susan TY for your note, would love to visit when you have time. Peace and Hugs-Pete
At 5:35pm on June 25, 2010, Jan Ward gave Susan C.Carter a gift
 
 
 

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Latest Activity

William R, Armstrong posted a status
"and i take my meds as my Doctors tell m too."
10 hours ago
William R, Armstrong posted a status
"I recieved my Liver Transplant at Tulane Medical Center In New Orleans La. on Nov. 3 2012 I have never had any type of complication"
10 hours ago
Carlos commented on TransplantCafe.com's group Team Prograf
"I’ll try to make this shorter as I accidentally deleted the comment I just made in response to Dave Goodman. Weaning is not for everyone, it may be a fatal mistake to try it.  You have been selected to receive a graft after a long and…"
11 hours ago
Hyung Paik is now a member of TransplantCafe.com - The Gift of eLife!
13 hours ago
Wes Cook commented on TransplantCafe.com's group Team Prograf
"I'm taking 2 x 2,  I want to ween lower but and have been temped but must have my Doctor on board with it. I will bug him again in a couple months. It has only been 4 months since it was lowered"
yesterday
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, Haven't your docs noticed that you're not taking prograf? What do they say about it? Same question for Wes."
yesterday
Wes Cook commented on TransplantCafe.com's group Team Prograf
"Hi, I'm two years out for Liver TP. Went into rejection after 3rd week. They had me on 4gm of Tacrolimus X 3. for a year, then 5mg X 2, and down to 2 x 2. My Tac level was 3.7 last test. Up from 3. They want you between 8 and 18. I was also on…"
yesterday
Carlos commented on TransplantCafe.com's group Team Prograf
"0.5 mg Prograf 3x/wk sounds weird.  If you are really taking that dosage you may not need Prograf. My transplant date was May 2003.  I have never had a rejection episode and after six years on Prograf alone I decided to taper off Prograf…"
yesterday
David Goodman commented on TransplantCafe.com's group Team Prograf
"Where did you receive your transplant?"
yesterday
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"i was put on .5 mg of prograf three times a week at first but the level stayed to high so they got it to a  .5mg capsule every 9 days and that has been for the last 30 months."
yesterday
David Goodman commented on TransplantCafe.com's group Team Prograf
"I have never heard of anyone taking .5 mg. of prograf every 9 days. Are you sure that's right? .5 mg. twice a day is the lowest dose I've heard of. I take 1 mg. twice a day and it's considered a low dose. Prograf is taken daily,…"
yesterday
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"this may sound stupid but  it felt like my bones would vibrate but after about 3 months that passed"
yesterday
Karen Weddick commented on TransplantCafe.com's group Team Prograf
"The main side effect I experienced was terrible trembling.  It was awful.  Finally the doctors switched me to Rapamune and life is now great!"
yesterday
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"can anyone tell me what the side effects of prograf are? i have only noticed the thinning of my body hair. I've always been bald so that isn't a problem. but i was always a Hairy Man until now."
yesterday
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"i recieved my new liver 32 months today Nov. 2 2012 MY 53 Birthday.  I was put on Prograf and have done very well.  I only take a .5mg capsule every 9 days. I assume that is great right?  is there ever a point where one  can be…"
yesterday
William R, Armstrong joined TransplantCafe.com's group
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Team Prograf

This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
yesterday

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