"Hi Tammy. I get it in my face an ankles all the time. I am on furosemide(generic for lasix). It helps, but not as much as I would like. I am waiting for a kidney. If you are having problems, maybe you can ask…"
"Hi Daniel. I am soooo sorry I am just responding to you after so long. I rarely come on here and I probably should. How are you doing? Did you ever get another transplant? I have actually had 4 myself, so I know how…"
"I don't think it is just a girl thing at all. I go through the same emotions, pretty much most of my adult life. I still have insecurities about my looks. As far as being "skinny," that is just what the…"
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
How are you? My name is Dan, Im 30 years old from Bristol, England. I hope you dont mind, but I am looking to increase the awareness of renal failure and what is required with regards to kidney dialysis. I had a previous transplant…"
How are you? My name is Dan, Im 30 years old from Bristol, England. I hope you dont mind, but I am looking to increase the awareness of renal failure and what is required with regards to kidney dialysis. I had a previous transplant attempt last year from my father but unfortunately failed, and now I have developed antibodies against my mother so I need desensitisation therapy first.
I was recently rejected for making a disability claim from my local council offices in the UK and I think this is wrong and that more renal patients should be given better access to help when required so I have set up a petition website at:
Its free to sign up and you will be helping potentially hundreds if not thousands in the UK with recognition. I am approaching people with kidney failure or who have come through the other side, as Im sure you will understand the difficulties experienced first hand.'
I live in the Frankford section of Phila, but love to go down town and to Penn's landing,
I am healthy and here for a friend, to give her surrport.
I do understand what You are going thought, I had a Family member that was on kidney dialysis, He recieved a kidney now , about 1 year and is doing well.
I keep You in my prayers that You recieve a new kidney. Wishing You a Good Day my Friend ~ Hugs, Peggy
p.s. I will join the Three Rivers Club, I like that show alot.
I had an acute abdomen. Intestines died. Once on TPN, other organs began to fail. Eventually needed six organs. Prior to the transplant I was a professional educator for nearly 20 years. My illness/transplant forced me into retirement disability, but I like to think of myself a "differently-abled":-) I miss my passion, my career, but I am blessed with a grandson -almost 9, a grandson -almost 4, and a granddaughter -almost 3. My grandson kept me going. My second grandson was born while I was awaiting a transplant in Miami. My granddaughter was born after I was home for good. I spent over a year in and out of hospitals. I try not to look back -only forwards. I awaken each day -work out the kinds -and try to be a positive role model for others -to be a blessing in others' lives. I am so grateful to have a wonderful husband who was my care taker when I was ill, loving an supportive parents, a best friend and daughter, her significant other, and my three grandchildren. Grands are so GRAND!
You have been through a lot. We all have. Adversity in our lives has made us stronger. I believe God writes our life stories...
Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days. I will keep you in my thoughts - and hope for the best possible…"
Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.