"Hi, Jeremy. My12-year-old daughter had a double lung transplant as an infat. My boyfriend had a kidney transplant when he was just under 20. I am here for you. I will also add you to my prayers. You will feel so much…"
"I have low bone density I am 6'1 146 I been a thin man all my life I have Osteopercnia so I take actonel once a week its sucks but prednisone has an effect on me I get lots of aches and muscle pains sometimes, Very hyper sometimes depends on if…"
I'm sorry to hear about Rachel. I was on prednisone for almost 18 years before my kidney transplant. During the end of prednisone journey, my doctor discovered through a bone density scan that my bones were becoming thinner and put me…"
"hi stacy...i am soooo sorry that im responding a couple months later...i really dont go on here, i resently moved to FL about 1 year and half ago......yes dr goldfarb was my doctor and i loved him...hes so nice and hes a great doctor i would…"
"Hi stacey, I have been waiting for a double lung transplant for 1375 days - and early on when I about 5 years ago whilst pregnant, my gp put me on a massive 50ml dose of prenisone throughout my prenancy as I had almost constant infections and…"
"I am taking Fosamax for my low bone density now. They rechecked it after a year and there was just a little improvement. The doctors told me to just continue as I am and they will recheck it in two more years. I hope the IV treatment works for her.…"
hi stacy...i am soooo sorry that im responding a couple months later...i really dont go on here, i resently moved to FL about 1 year and half ago......yes dr goldfarb was my doctor and i loved him...hes so nice and hes a great doctor i would recommend him to everybody.....im actully might move back to jersey where im from and if i move i will be going back to him lol. if u have any questions email me here email@example.com.....i hope u and ur baby girl are doing great happy hoildays...god bless u and ur family
Hi there...Thanks for the 10 year birthday/anniversary wishes! i had a nice relaxing peaceful day and enjoyed spending the day with my family!. sorry to hear Rachel has had a nasty cold. hope it finally went away. colds seem to be going around right now. i had one for about 3 weeks & i think its coming back. Right now i am feeling pretty good. Just getting through day by day. Well take care hope to hear back from you soon.
I Stacey and Rachel! I am so excited to hear how far out Rachel is. I got transplanted at Duke and my husband was stationed up here almost three years ago so we switched to B&W. Where did Rachel get her tx? Was it at The childrens Hospital in Boston?? Over a year ago I wasa diagnosed with Chronic Rejection but it seems to have stabilized. Like you said a lot of bumps in the road but it has been so worth it for me! Have a great weekend and KIT:)
Hi...thanks for your comment! How is your daughter? WOW...6 months old...that's amazing! I'm doing ok. TONS better than pre-transplant, considering I was literally on my death bed. I am currently in chronic rejection (since August of 2006). I've undergone treatment for it and it is stable right now. I had one episode of acute rejection last Spring. Unfortunately, I get pneumonia multiple times a year, which puts me in the hospital. I've been in the hospital twice this year, once for severe pneumonia, and another for severe bronchitis. But I still continue on with my life, and daily activities. I graduate from college this Saturday. I've worked 24-32 hours a week the past 3 years in addition to being a full time student. So despite struggles, I still am able to pursue my goals. I just have to handle those struggles/complications when they come. I'm watched very closely by my transplant team and are on more than the usual transplant medications. Currently, for the last 2 weeks, I've felt the best I've felt in about 2 years! I did have a fundoplication in 1996. I had a feeding tube put in, and they did the fundo at that time. I had the feeding tube taken out about 3.5 years later, but my fundo is still intact.
Hi there Stacey & Rachel, thanks for the add & the comment. I have not been diagnosed with chronic rejection. My transplant team said it was mild and on the right lung at the time. They said they caught it in time and that the 10 days of the prednisone boost they gave me was enough to get rid of it. I had the same question. Since I had rejection did that mean I always had rejection, they said no. I dont have any complications from my fundo. The mickey button/tube feed was taken out about a year after my double lung transplant. Since the night feeds were no longer needed for me to gain weight. Yes, that is a picture of my tattoo. It is on my ankle and says 65 Roses, for the Cystic Fibrosis story. I have 4 tattoos that I have gotten since my transplant. Ive also gotten my labrae pierced. Which is under the lip. My transplant team was okay with me getting this stuff done as long as it was in a sterile invironment. I also had to take an antibiotic 1 hour prior to having any of if done. Again, I wanted to say thanks for the add. I am also looking forward to my 10 year anniversary. Only 26 more days to go!
Take Care, I hope to hear back from you soon
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