-
Scott Michael Hedges
- Male
- Lawrence, KS
- United States
- Share
- Share on Twitter
- Share on Facebook
- Blog Posts (1)
- Discussions (21)
- Events
- Groups (1)
- Photos (17)
- Photo Albums
- Videos
Scott Michael Hedges's Discussions
Scott Michael Hedges's Page
Gifts Received
Scott Michael Hedges has not received any gifts yet
Latest Activity
In two weeks i will start using the generic brand [TACROLIMUS] of PROGRAF/FK506. My doctor has no problem of me switching to it. Printed out the forms from MEDCO site online. Took them over and had the Dr fill them out and Fax them into MEDCO.
One…
yes, have done so a few times over the past 11 years.. and got some in 2009! Thanks Scott
I explored the options early and got some assistance + always buy one of my anti-reject meds.
Scott,
Here is what you can do, Write or Email Lilly the company that make prograf and they may give your pills for free! Free is good, or at a discount go through them. I try that but I have Health Ins through my husband so I cant get them for fre…
Excellent. Thanks so much for I have heard your point too! What you have stated is what
my doc's are telling me somewhat .. I never get the whole story. Anyway, my doc's reduced
my prograf down to 7 pills a day and I'm still getting some Free Progra…
I think that this change to the generic from the brand name can occur unless the prescription written for the medication says specifically to fill out as written only. I was surprised too when I suddenly found that I had gotten the generic from the…
Well I may make an enemy here but here goes my 2 pennies, I was used as a Guinea pig by the military, never again by any 1 , the insurance wankers can piss off they do not have the training and MD after thier names to prescribe meds , thereby this g…
Profile Information
- What is your city / state and country of residence?
- Lawrence, KS
- How are you touched by transplantation?
- I am a Recipient
- Optional for those who donated their Loved One's organs, tissue, or both: in this space, feel free to write anything you want about your Loved One and your experience as a donor:
- Help Extend Coverage for Immunosuppressive Drugs (House)
People with organ transplants must take immunosuppressive drugs for the life of the transplant in order to reduce the likelihood of the organ being rejected by the body. Currently, Medicare pays for most transplants and covers drugs for 36 after the transplant if the person does not qualify for Medicare because of age or disability status. At the end of this time, the kidney recipient must pay for immunosuppressive drugs through private insurance, public or pharmaceutical programs or pay out-of-pocket.
Too often, kidney patients must choose between taking the medication they need or other living expenses, and they cut doses or stop taking the medication, causing the transplant to fail. Some dialysis patients don't even consider a transplant because they know they will not be able to pay for the drugs.
Although immunosuppressive drugs are very expensive, costing $10,000 -20,000 per year, if the kidney transplant fails, the person returns to dialysis at a cost of over $65,000 per year to Medicare. In addition, there are over 75,000 people on the waiting list for kidney transplant, and it's poor stewardship to lose a kidney because the patient can't afford the necessary drugs to keep it working.
Congressmen Dave Camp (R-MI) and Ron Kind (D-WI) have introduced H.R. 3282 that would extend Medicare for immunosuppressive drugs for the life of a kidney transplant. Patients would continue to receive these drugs under Part B of Medicare with the usual premium, but would not have access to other Medicare services or coverage. This is a big step forward to preserve the life of kidney transplants.
Click here for more information
Please write your Representative today and ask them to co-sponsor HR 3282. Share your story, or the story of a loved one, about the experience with immunosuppressive drug coverage.
- If you are a recipient, what type of transplant did you receive?
- Kidney
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- Michael Werth and family in Hayes, KS
His family of course who I have yet to meet!
I'm gracious and thankful beyond words!
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- Prograf and Myfortic
- What is your hospital and, or doctor's name, city / state and country?
- KU Med / Kansas University Hospital
- If you are on the transplant waiting list, when were you listed?
- June 15, 1996
- What do you do for a living?
- Real Estate Broker / Property Mgmt / Internet Marketing & advertising
XanGo Distributor - trying to help my fellow HEALTH FANATICS and make a buck while doing so. I love to start and grow business's .. I'm an expert at such.
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I have written my story many times... and must come back to complete this area.. it will take some time and I must go now...
- Please help us reach other members by telling us how you found Transplant Cafe:
- Midwest Transplant Network
- What is your relationship status?
- Married
- What is Your Favorite Quote(s)?
- In nature, miracles don't only happen.. they happen all the time!
If at first you don't succeed.. never give up and try until you can
try no more!
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://facebook.com/scotthedges
- My "MySpace" Page (copy and paste your profile page URL):
- http://www.myspace/scotthedges
- My Facebook Page (copy and paste your profile page URL):
- http://www.linkedIn.com
Scott Michael Hedges's Photos
Scott Michael Hedges's Blog
Celebrating 10 years out... but still have no communication with family of donor.
I have sent letters and dropped gold medals by Michael's grave in Hayes, KS for 10 yrs now.. annually honored him in my heart and in my dreams about his life.... annually, but I don't know his family and often wish I did. This is a void in my life...that either the donor family does not want the memory & pain surfacing again or perhaps they would rather not meet me. I understand and respect their wishes, but only wish I really knew what they were. Ummmm, I'm happy and still healthy but the d… Continue
Posted on October 18, 2008 at 4:30pm — 1 Comment
Comment Wall (18 comments)
- At 4:01pm on February 1, 2010,
Susan Friesen said…
- Congratulations on your 10 year anniversary! My oldest daughter just celebrated her 9th year post transplant. Another daughter is 6 years out with her new heart.
Hugs!
Susan
- At 9:53am on July 9, 2009,
Sharon Blea said… - I just don't understand how the government came up with the 3 year of medicare and then you are on your own. We still have to take the meds after the 3 years are up. I have a good job with the govt. but still struggle with buying all the meds I need.
- At 10:25am on June 14, 2009,
Amy Tippins said…
- Scott,
I have read multiple postings of yours on here and found them intriguing because I have been working on coming up with my life's purpose within the transplant community this past year. Seems like, the changes we both would like to see are somewhat in alignment and are linked together. Would love to email you about it and see if there is some idea sharing that we could do to help both of our efforts. I guess that I should state my involvement comes from being a 16+ yr liver patient. Please send your email to me either TC or antippins@hotmail.com
- At 1:35pm on February 9, 2009,
Sharon Blea said…
- I am just lucky I work for the government. I still have to pay for some of my meds and lab work. I don't know what I would do without insurance!
- At 10:41am on January 26, 2009,
Carol Becker said… - I think I read that you are receiving some of your pharmaceuticals from a Canadian pharmacy. Just wondering how these drugs are sent to you. I know that when I travel I have been told not to put my drugs in my checked luggage as it is too cold in the cargo area and this can jeopardize the quality of the drugs.
- At 3:36pm on January 25, 2009,
Carol Becker said…
- what do u think about the TC featured video 'NFT patients'?
- At 7:12am on January 21, 2009,
Angela Burrows said… - Sorry for all your struggles - it is hard with the economy in the dumps... I cannot imagine how hard it must be - you being self employed. That really sucks! Best of luck with everything, you need it with the rate things are going....
- At 10:58am on January 18, 2009,
Angela Burrows said…
- Thanks for the advise, I appreciate it! I think I will give it a shot. I really don't talk about my transplant much as it is, it makes me feel like an outsider, but maybe when it is brought up I will change the subject. I also agree that the doctors tend to scare us to death and perhaps I have fallen victim. Part of my fear is that I have Primary Immunodeficiency and so if I get sick I need medical intervention to help me get better. I have worn masks most my life but hate wearing them into public places - it sort of screams, look at me, I have something wrong with me. I need to just live and not over think, over fear... Perhaps I will go to the movies or something with my friends, they would be shocked! Hey thanks so much!!!!
- At 1:01pm on January 17, 2009,
Carol Becker said…
- read up on the author. his credentials are quite amazing. i too want to read the book. let me know how it goes.
- At 5:07pm on January 16, 2009,
Carol Becker said…
- here's a link to the book.
http://www.amazon.com/gp/reader/1586486624/ref=sib_dp_pt#reader-link
the book is called 'healthcare guaranteed'
Latest Activity
Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
I was not on interferon after transplant, and I have had a biopsy recently and when he looked at it he said that it looked good, but how would I grade good. They do not want to do nothing for a year and then give me another biopsy to see how much it…
Hi Jackie,
I'm not aware of any, but also wasn't aware there ever were any?
For current & prospective authors with transplants, or listed for one & all who write about transplantation. A place for helping, networking & sharing!
Are there any magazines decided totally to transplantation out there anymore?
Subscribe to and discuss your favorite health magazines, articles, publications and magazine issues!
Thank you so much for your insights. It is very hard for me to know what it feels like to take some of these drugs. It has been very hard watching my son struggle to "feel good"! They have been adjusting his meds since his August transplant... and h…
Two Finnish hunters from Michigan hired a pilot to fly them to Thunder Bay to hunt moose. They bagged four.
As they started loading the plane for the return trip home, the pilot tells them the plane can take only two moose.
The two Finns objected st…
I am on 3 mg of prograf 2x daily I drink alot since they say it can be toxic to your body I don't mind taking it at all it does give you stomach upsets, I know I have trouble going to the bathroom sometimes I need to take colace, sometimes I need to…
Thanks all for the high hopes it can be stressful I was in nyc yesterday and I walked about 12-20 miles through the city I was feeling great and felt that Iam accomplishing things, I try to beat the stress best as possible I think getting myself a j…
What gets me most frustrated is unresponsible dog parents! I think you can figure out what I mean and even in dog parks!
What has been your most favorite recent movie? The most recent movie I have seen which was real funny was Cop Out. Just the la…
Badge
Helpful Links
Transplant Cafe Chat! 
-
Invite anyone who can benefit from being a part of the Transplant Cafe family.
-
Get a Transplant Cafe Badge for your website, myspace / facebook page like the one below and other styles to choose from
Popular Cafe Destinations:
forums
- meet and welcome new members
- general discussion & community
- the "thank you" forum
- transplant movies and book reviews
- fun, games & cool benefits
- international members
- meds
- sports & fitness
- food & nutrition
- spirituality & transplantation
- health insurance
- all topics...
popular videos
- "because" - the story of an organ donor
- world kidney day
- i am. are you? donate life illinois
- steve's organ donation story..."the circle of life"
- fox news story on tom's donation
- all videos...
other links and cool features
- add fun 'open-social' applications to your profile page!
- advanced member search
- spread the word with a custom badge!
- newsletter archive
- member's guide
- community announcements
- latest transplant news
- transplant resources
- support forum
- member photos (2700+)
- member blogs (250+)
- transplant cafe to go... tc url for your mobile device!
popular groups
featured
- national foundation for transplants
- national transplant assistance fund
- look beyond the heart
- live life then give life
- caregivers, family members of transplant patients
- quarter century club
- transplant & education professionals
- donor families
- living organ donors
- dialysis
global community
|
|
other popular groups
- team prograf
- liver transplants
- team kidney
- heart transplants
- prednisone sucks
- lung transplants
- transplant creations
- team usa
- the "show off your scar" group
- the young ones
- living organ donors
- fund raisers unite
- ideas for increasing awareness
- authors
- hispanos con transplantes
Increasing transplant awareness through personal profiles, interactive tools, friendships, blogs, discussions, groups, events & networking!
© 2010 Created by TransplantCafe.com
