Sbuonomo
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  • Saint Augustine, FL
  • United States
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Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God bless the soul of my donor
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
ny presbyterian. the best. if it wasnt for these people id be dead
Which Transplant Medication(s) Do You Take?
50mg neoral 2x daily, cellcept 500mg 2x daily,
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am disable. I love guitar
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
had a real tough time , multiple complications ,3mos in hospital
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Google
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Blues
What is Your Favorite Quote(s)?
you have nothing without your health

Sbuonomo's Blog

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

Posted on August 3, 2011 at 6:22pm 0 Comments

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive… Continue

post liver transplant still hep c positive need to stop the virus

Posted on August 2, 2011 at 1:33pm 4 Comments

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c… Continue

Comment Wall (3 comments)

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At 5:02pm on July 22, 2012, Karen Weddick said…
At 8:13am on August 10, 2011, Jennifer Morgan said…

I have not had any complications with my kidneys so far, but that is one of my greatest fears. 

 

At 5:36pm on August 1, 2011, Karen Weddick said…
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
imikimi -
 
 
 

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carol schutt replied to Velina's discussion Life expectancy after a liver transplant? in the group Liver Transplants
"Hi Velina,  I started researching the positives of life expectancy many years ago.  I had my liver transplant in March, 1991.  So, I am 24 yr out!  Yeah!  My liver was from a deceased donor, she was 18 yr old, I was 35.…"
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Janet Hart posted a discussion

Niece in Need of Housing in Los Angeles

My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated.Thank you.See More
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