Sbuonomo
  • Male
  • Saint Augustine, FL
  • United States
Share on Facebook
Share
  • Blog Posts (2)
  • Discussions
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

Gifts Received

Gift

Sbuonomo has not received any gifts yet

Give a Gift

 

Sbuonomo's Page

Latest Activity

Jennifer Morgan left a comment for Sbuonomo
"I have not had any complications with my kidneys so far, but that is one of my greatest fears.   "
Aug 10, 2011
Sbuonomo left a comment for Jennifer Morgan
"are you having any kidnry problems due to the immunosuppressants?"
Aug 7, 2011
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?
Aug 5, 2011
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?
Aug 5, 2011
Sbuonomo posted a blog post

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive…See More
Aug 3, 2011
Bill S. commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
" Hep C is for some of us a lifetime sentence. I was transplanted 3/22/2005 and the virus was there immediately post tx. I tried the ribo last year with no response. I'm now stage 4 CKD and will probably need dialisis at some point. But you…"
Aug 3, 2011
A. Front commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
"You might want to look into doing the new current treatment for hep C which is proving more successful. I'd also suggest you post your question on the medhelp.org web site under hep C. There are a lot of knowledgeable people there who might be…"
Aug 2, 2011
Carlos commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
"Get a 2nd opinion or change doctors. Like bellybuttons, all institutions are collecting lint so they can publish according to their research protocol.  Perhaps someone decided you should be a control. You are ultimately responsible for your own…"
Aug 2, 2011
Sbuonomo posted a blog post

post liver transplant still hep c positive need to stop the virus

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c…See More
Aug 2, 2011
Sbuonomo is now a member of TransplantCafe.com - The Gift of eLife!
Aug 1, 2011

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God bless the soul of my donor
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
ny presbyterian. the best. if it wasnt for these people id be dead
Which Transplant Medication(s) Do You Take?
50mg neoral 2x daily, cellcept 500mg 2x daily,
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am disable. I love guitar
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
had a real tough time , multiple complications ,3mos in hospital
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Google
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Blues
What is Your Favorite Quote(s)?
you have nothing without your health

Sbuonomo's Blog

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

Posted on August 3, 2011 at 6:22pm 0 Comments

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive… Continue

post liver transplant still hep c positive need to stop the virus

Posted on August 2, 2011 at 1:33pm 4 Comments

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c… Continue

Comment Wall (3 comments)

You need to be a member of TransplantCafe.com - The Gift of eLife! to add comments!

Join TransplantCafe.com - The Gift of eLife!

At 5:02pm on July 22, 2012, Karen Weddick said…
At 8:13am on August 10, 2011, Jennifer Morgan said…

I have not had any complications with my kidneys so far, but that is one of my greatest fears. 

 

At 5:36pm on August 1, 2011, Karen Weddick said…
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
imikimi -
 
 
 

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Laura updated their profile
yesterday
Ralph N. Johnson posted a status
"Graft vs Host after a liver transplant"
Sunday
Ralph N. Johnson posted a discussion

Survived Graft vs Host after a liver transplant

Hello group, just a follow up to discussion concerning  graft vs Host after a liver transplant. Wondering if anyone had additional information concerning this discussion. Know or anyone? Heard about it?...Anyone please..thank you.See More
Sunday
Ralph N. Johnson posted a status
"Hello, group just a follow up to my previous discussion...Suggestions?"
Sunday
Profile IconPrissy Sanchez and Ralph Hamilton joined TransplantCafe.com - The Gift of eLife!
Friday
Ramona commented on Flo Berry's group Caregivers, family members of transplant patients
"Good luck Michelle - it can be difficult, but it's nice to know that you are not alone on this endeavor...having your sister there will help.  I hope all goes smoothly and quickly for you all! "
May 18
Michelle commented on Flo Berry's group Caregivers, family members of transplant patients
"Thank you!!"
May 18
Michelle commented on Flo Berry's group Caregivers, family members of transplant patients
"Thank you!!"
May 18
Beth Haven commented on Flo Berry's group Caregivers, family members of transplant patients
"Michelle, many transplant centers have support groups made up of recipients and caregivers. Some have groups just for caregivers. I would check with the transplant center. The heart transplant support group where my husband had his heart transplant…"
May 18
Michelle commented on Flo Berry's group Caregivers, family members of transplant patients
"Does anyone have an advice or know where I can go for support as a caregiver? My mother will soon be placed on the Wait List for a liver and kidney. My sister and I are to be her caretakers when she comes home. I'm beginning to be a nervous…"
May 18
Michelle joined Flo Berry's group
Thumbnail

Caregivers, family members of transplant patients

Support group for caregivers and family members of transplant recipients - pre or post op. Talk to other family members, spouses & significant others who have 'been there, done that' to find help to keep you going through the rough times.See More
May 18
Michelle is now a member of TransplantCafe.com - The Gift of eLife!
May 18
Ann Haynes updated their profile
May 17
Carrie Boutelle was featured
May 14
Carrie Boutelle is now a member of TransplantCafe.com - The Gift of eLife!
May 14
David Goodman commented on Lili Feldman's group The Funny Bone
"The other day I went over to a nearby CVS Pharmacy. When I got there, I went straight back to the back of the store to where the Pharmacists'>> Counter is located and took out my little brown bottle along with a teaspoon and laid them…"
May 12

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service