"I have not had any complications with my kidneys so far, but that is one of my greatest fears.
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Sbuonomo
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Sbuonomo left a comment for Jennifer Morgan"are you having any kidnry problems due to the immunosuppressants?"
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?Sbuonomo posted a blog postChinese herbal Fuzheng Huaya to reduce scarring from fibrosis
I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive…See More
Bill S. commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus" Hep C is for some of us a lifetime sentence. I was transplanted 3/22/2005 and the virus was there immediately post tx. I tried the ribo last year with no response. I'm now stage 4 CKD and will probably need dialisis at some point. But you…"
A. Front commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus"You might want to look into doing the new current treatment for hep C which is proving more successful.
I'd also suggest you post your question on the medhelp.org web site under hep C.
There are a lot of knowledgeable people there who might be…"
Carlos commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus"Get a 2nd opinion or change doctors. Like bellybuttons, all institutions are collecting lint so they can publish according to their research protocol. Perhaps someone decided you should be a control. You are ultimately responsible for your own…"
Sbuonomo posted a blog postpost liver transplant still hep c positive need to stop the virus
I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c…See More
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Liver
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- God bless the soul of my donor
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- Deceased Donor
- Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
- ny presbyterian. the best. if it wasnt for these people id be dead
- Which Transplant Medication(s) Do You Take?
- 50mg neoral 2x daily, cellcept 500mg 2x daily,
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am disable. I love guitar
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- had a real tough time , multiple complications ,3mos in hospital
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- Blues
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- you have nothing without your health
Sbuonomo's Blog
Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis
Posted on August 3, 2011 at 6:22pm 0 Comments 0 Likes
I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive… Continue
post liver transplant still hep c positive need to stop the virus
Posted on August 2, 2011 at 1:33pm 4 Comments 0 Likes
I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c… Continue
Comment Wall (3 comments)
- At 5:02pm on July 22, 2012,
TC AdminKaren Weddick said…
- At 8:13am on August 10, 2011,
Jennifer Morgan said… I have not had any complications with my kidneys so far, but that is one of my greatest fears.
- At 5:36pm on August 1, 2011,
TC AdminKaren Weddick said… - I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
imikimi -
not a member yet?
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Latest Activity
Clare mcgee replied to vickie steers's discussion Hair loss"Hi viki,
Having the same problem with Prograf!! Loosing my mind with the amount of hair going down the drain!
Am in the uk & my consultant has mentioned cyclo but said it would have to be MY choice.
I would love to spk with you bout your…"
Clare mcgee replied to Kelly McInnes's discussion New from Aus :)"Hi Kelly,
I'm new to this group too & have read your story...rough! Sure hope you are still doing well and your spirits are up!
As you probably know there are ups and downs emotionally post transplant.
I was diagnosed when I was 16 with…"
David Goodman commented on Lili Feldman's group The Funny Bone"A young New York woman was so depressed that she decided to end her life
by throwing herself into the ocean.
But just before she could throw herself from the docks, a handsome young
man stopped her.
"You have so much to live for," said…"
David Goodman commented on Lili Feldman's group The Funny Bone"My wife found out that our dog (a Schnauzer) could hardly hear, so she took it to the veterinarian. The vet found that the problem was hair in the dog's ears. He cleaned both ears, and the dog could then hear fine.The vet then proceeded to tell…"
David Goodman commented on TransplantCafe.com's group Team Prograf"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
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