Sbuonomo
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  • Saint Augustine, FL
  • United States
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Latest Activity

Jennifer Morgan left a comment for Sbuonomo
"I have not had any complications with my kidneys so far, but that is one of my greatest fears.   "
Aug 10, 2011
Sbuonomo left a comment for Jennifer Morgan
"are you having any kidnry problems due to the immunosuppressants?"
Aug 7, 2011
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?
Aug 5, 2011
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?
Aug 5, 2011
Sbuonomo posted a blog post

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive…See More
Aug 3, 2011
Bill S. commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
" Hep C is for some of us a lifetime sentence. I was transplanted 3/22/2005 and the virus was there immediately post tx. I tried the ribo last year with no response. I'm now stage 4 CKD and will probably need dialisis at some point. But you…"
Aug 3, 2011
A. Front commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
"You might want to look into doing the new current treatment for hep C which is proving more successful. I'd also suggest you post your question on the medhelp.org web site under hep C. There are a lot of knowledgeable people there who might be…"
Aug 2, 2011
Carlos commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
"Get a 2nd opinion or change doctors. Like bellybuttons, all institutions are collecting lint so they can publish according to their research protocol.  Perhaps someone decided you should be a control. You are ultimately responsible for your own…"
Aug 2, 2011
Sbuonomo posted a blog post

post liver transplant still hep c positive need to stop the virus

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c…See More
Aug 2, 2011
Sbuonomo is now a member of TransplantCafe.com - The Gift of eLife!
Aug 1, 2011

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God bless the soul of my donor
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
ny presbyterian. the best. if it wasnt for these people id be dead
Which Transplant Medication(s) Do You Take?
50mg neoral 2x daily, cellcept 500mg 2x daily,
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am disable. I love guitar
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
had a real tough time , multiple complications ,3mos in hospital
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Google
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Blues
What is Your Favorite Quote(s)?
you have nothing without your health

Sbuonomo's Blog

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

Posted on August 3, 2011 at 6:22pm 0 Comments

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive… Continue

post liver transplant still hep c positive need to stop the virus

Posted on August 2, 2011 at 1:33pm 4 Comments

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c… Continue

Comment Wall (3 comments)

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Join TransplantCafe.com - The Gift of eLife!

At 5:02pm on July 22, 2012, Karen Weddick said…
At 8:13am on August 10, 2011, Jennifer Morgan said…

I have not had any complications with my kidneys so far, but that is one of my greatest fears. 

 

At 5:36pm on August 1, 2011, Karen Weddick said…
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
imikimi -
 
 
 

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Peter james goodman commented on Gabrielle's group Liver Transplants
"Brother David so happy for you!  Gives me hope.  I pray for all of us to have the success like Ramona's husband and others.  God bless you sir and  all of my TX family.  Hugs Pete~"
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Caring 4 Carrie posted a blog post

Kidney Fact: A Kidney Transplant Myth- Does Organ Donations Really Work?

According to Donate Life, The success rate for organ transplants is between 80 and 90 percent. To learn more about organ donation, please visit: www.organdonor.govSee More
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Caring 4 Carrie posted a status
"On behalf of C4C, we're Grateful to God, for the 5th~Annual Carrie Kidney Bowling Fundraiser. Visit & 'Like' our FB page,Caring 4 Carrie."
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Caring 4 Carrie posted a photo
yesterday
Caring 4 Carrie posted a status
"Someone's Story: This is Jim. He's on dialysis and seeking a kidney donor. Please visit his FB page: https://www.facebook.com/KidneyStories"
yesterday
Bornali commented on Lawrence R. Decoste's group Nutrition & Supplement Drinks
"What Vitamin supplement must one take after liver transplant?"
yesterday
Jackie Randall is now a member of TransplantCafe.com - The Gift of eLife!
Friday
mary stjohn and Clare mcgee are now friends
Friday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Those are good David! Thx"
Friday
David Goodman commented on Lili Feldman's group The Funny Bone
"I was talking to a girl in the bar last night. She said,"If you lost a few pounds, had a shave and got yourhair cut, you'd look all right. "I said, "If I did that, I'd be talking to your friends over thereinstead of you."
Friday
David Goodman commented on Lili Feldman's group The Funny Bone
"I gotcaught taking a pee in the swimming pooltoday.Thelifeguard shouted at me so loud, I nearly fellin."
Friday
Beth left a comment for Jessica Conrad
"Jessica!  Oh girl, I am so happy to hear from you!! I dont have facebook aactivated these days. Can we email? Can I post my email here? I dont think anyone will abuse it. I will give you my span email and then once I hear from you there give…"
Friday
Pam Noble joined Lawrence R. Decoste's group
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Nutrition & Supplement Drinks

Tips on what to eat after your Transplant and how to stay healthy
Friday
Jessica Conrad left a comment for Beth
"Hey Beth! I am beyond happy you found me! So much time has gone by! What's new with you? How did you find me even? If you are on facebook add me! It's Jessica Buka. It will be easier to communicate there. I got this alert in my email and…"
Thursday
Ramona commented on Gabrielle's group Liver Transplants
"My husband is also coming up on his 5th Liverversary....for his second transplant.  His first one lasted 23 years!  Good health to all of you!  :)"
Thursday

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