Sbuonomo
  • Male
  • Saint Augustine, FL
  • United States
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Latest Activity

Jennifer Morgan left a comment for Sbuonomo
"I have not had any complications with my kidneys so far, but that is one of my greatest fears.   "
Aug 10, 2011
Sbuonomo left a comment for Jennifer Morgan
"are you having any kidnry problems due to the immunosuppressants?"
Aug 7, 2011
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?
Aug 5, 2011
Sbuonomo liked Marina's blog post Immune Tolerance: Could A Transplant Become Just Another Operation?
Aug 5, 2011
Sbuonomo posted a blog post

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive…See More
Aug 3, 2011
Bill S. commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
" Hep C is for some of us a lifetime sentence. I was transplanted 3/22/2005 and the virus was there immediately post tx. I tried the ribo last year with no response. I'm now stage 4 CKD and will probably need dialisis at some point. But you…"
Aug 3, 2011
A. Front commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
"You might want to look into doing the new current treatment for hep C which is proving more successful. I'd also suggest you post your question on the medhelp.org web site under hep C. There are a lot of knowledgeable people there who might be…"
Aug 2, 2011
Carlos commented on Sbuonomo's blog post post liver transplant still hep c positive need to stop the virus
"Get a 2nd opinion or change doctors. Like bellybuttons, all institutions are collecting lint so they can publish according to their research protocol.  Perhaps someone decided you should be a control. You are ultimately responsible for your own…"
Aug 2, 2011
Sbuonomo posted a blog post

post liver transplant still hep c positive need to stop the virus

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c…See More
Aug 2, 2011
Sbuonomo is now a member of TransplantCafe.com - The Gift of eLife!
Aug 1, 2011

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Liver
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
God bless the soul of my donor
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
ny presbyterian. the best. if it wasnt for these people id be dead
Which Transplant Medication(s) Do You Take?
50mg neoral 2x daily, cellcept 500mg 2x daily,
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am disable. I love guitar
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
had a real tough time , multiple complications ,3mos in hospital
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Google
What Is Your Relationship Status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Blues
What is Your Favorite Quote(s)?
you have nothing without your health

Sbuonomo's Blog

Chinese herbal Fuzheng Huaya to reduce scarring from fibrosis

Posted on August 3, 2011 at 6:22pm 0 Comments

I have been doing some research on chinese herbal medicine Fuzheng Huaya used to reverse and prevent liver fibrosis in hep c patients.This is what I found. Its been safely used in china for over 20 years and has minimal side effects.There are current trials going on in the US showing very promising results. I know its that curse word HERBS. Sounds better than tearing ourselves apart with interferon and ribavirin!!. Im currently trying to find out if it can be used in post tx -hep c positive… Continue

post liver transplant still hep c positive need to stop the virus

Posted on August 2, 2011 at 1:33pm 4 Comments

I am post tx with hep c positive. After 2 years my biopsy came back stage 2-3 grade -2. periportal fibrosis Im already half way on my way to needing another liver. The drs never treated me with interferon and ribovirin due to deppression and anemia. I feel this was a mistake. cyclosporine eating up kidneys (1.6 creatine), (36 bun), 48gfr). Is there anybody who is in my shoes and can recommend how I should proceed. Also what is your opinion about going on a trial for post transplant hep c… Continue

Comment Wall (3 comments)

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Join TransplantCafe.com - The Gift of eLife!

At 5:02pm on July 22, 2012, Karen Weddick said…
At 8:13am on August 10, 2011, Jennifer Morgan said…

I have not had any complications with my kidneys so far, but that is one of my greatest fears. 

 

At 5:36pm on August 1, 2011, Karen Weddick said…
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
imikimi -
 
 
 

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Terri Warren and Suzanne Giacherio are now friends
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Prem Dayal replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"Hope you take the same road for the health and live a long healthy life"
yesterday
Prem Dayal replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"I had my transplant in September 2010 as well, I do live on a controlled life, and Now I have started enjoying it as well. I made a point to myself to stay happy and strong and somehoe that's really affected my health as well. It has just gone…"
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Suzanne Giacherio posted a status
"My liver turned 5 y/o on 2/11/15! Grateful to be alive and to have my wonderful husband. He has been with me every step of the way."
yesterday
Suzanne Giacherio replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"Good for you! Be very careful with that new liver you have received as it will serve your body well. I was transplanted in 2010 and doing rather well but in a much more slower pace than ever before. Continue to celebrate life just take it easy on…"
yesterday
Prem Dayal replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"Hey, I'm doing great. I did go ahead with the limited amount of consumption twice in January. Both times it was a good whiskey (Blue Label) and till now nothing bad has shown up."
yesterday
Suzanne Giacherio replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"How are you doing now? I know this forum can be sketchy on being current - but here it is a little over a year later and there are no new comments from you Prem."
yesterday
Profile IconBrittany Offutt and Vince Abron joined TransplantCafe.com - The Gift of eLife!
Tuesday
Charles Pruitt updated their profile
Tuesday
Jennifer Harris-Roush joined Terri Lynne's group
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Relationships and Dating

Having a transplant, or waiting for one can affect a relationship and if you're single, makes dating interesting. Here is a place to share your stories, questions and anything else about these topics.
Monday
Misty Mountain and Mohamed Rouibah are now friends
Monday
Misty Mountain posted a discussion

Anyone experience acute rejection past the 1 year mark with double lung transplant?

My dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. His doctor told us that they only see this in 1% of patients. I'm wondering if anyone here has experienced this or knows of someone who has and what the outcomes were? Right now my dad's biggest fear is that there will be permanent damage to his lungs and he will be back on oxygen permanently. I honestly think he fears that more than dying. As you can imagine this is devastating to him and my family. On top of the emotional devastation comes the heavy burden of financial stress. For a shameless plug: if you are able to, please donate to help pay for his medical expenses and/or share the below link with your network.We are truly grateful for any help, support or prayers that you can offer for my family.Thank you!…See More
Monday
Misty Mountain posted a blog post

Acute rejection 1.5 years after double lung transplant

https://www.tilt.com/campaigns/the-mountain-familyMy dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. As you can imagine this is devastating to him and my family.On top of the emotional devastation comes the heavy burden of financial stress. If you are able to, please donate to help pay for his medical expenses and/or share the below link with your…See More
Monday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Oooooh noooooo!"
Sunday
Bill Wohl posted a video

15 years later Bill Wohl

February 22, 2000 the "gift of life" allowed me an amazing second chance to live and grow. All because my donor family said "YES." Thank you Brady Michaels, ...
Saturday

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