"Wishing you all the best for a very special birthday Sara!"
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Sara Pietrzak
- Female
- Hagerstown, MD
- United States
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Sara Pietrzak's Discussions
Hip Replacement anyone???
Started this discussion. Last reply by Sara Pietrzak Sep 3, 2010. 2 Replies 0 Likes
Went to the doctor for what I thought was a strained muscle, and was told I may have arterial necrosis. I'm scheduled for an mri. My primary doc was rather tight lipped about what it was and all I…Continue
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Latest Activity
Sara Pietrzak commented on Kathryn Flynn's group Lung Transplants"I'm 6.5 years post dbl lung txp. I'm very lucky as my husband carries our health insurance. I run a specialty baking business from my home part time. I've always wanted to go back to work, but my previous job was teaching in a middle…"
Sara Pietrzak replied to Sara Pietrzak's discussion Hip Replacement anyone???"Thanks Joe! It always helps to hear from someone who has been there. I'm actually the most sore I've been so far today, but I think it's because the doctor manipulated my hip so much during the exam yesterday. It's still not…"
Joe Berry replied to Sara Pietrzak's discussion Hip Replacement anyone???"I have heard that steroids can cause this and other issues - like cataracts. I was on prednisone only 7 months, but I think it impacted my need for cataract removal. I get a bone density test every two years to make sure that the other meds do not…"
Sara Pietrzak posted a discussionHip Replacement anyone???
Went to the doctor for what I thought was a strained muscle, and was told I may have arterial necrosis. I'm scheduled for an mri. My primary doc was rather tight lipped about what it was and all I heard was necrosis, which means dead right? So, I called my friendly, always there for me, completely amazing transplant coordinator. She said that it's mainly a pain issue, and eventually when the pain gets to be too much, I'll need...get this A HIP REPLACEMENT! I'm 33, by the way. She told me that…See More
Sara Pietrzak commented on Kim Jacques's blog post Things That Make Me Happy"Going for a LONG walk and NOT getting breathy!
Watching Spring's awsomness all around.
Funny/deep/hypothetical conversations with my brother.
Knowing I'm really the favorite child! lol
When a really good string of songs play on the…"
Sara Pietrzak replied to Kim Jacques's discussion You know you're a lung transplant patient when..... in the group Lung Transplants"OMG! This was a laugh that I seriously needed this am! Thank you!"
Sara Pietrzak replied to Betsy's discussion H1N1 Flu Shot or Seasonal Flu Shot"Had my seasonal flu shot 3 weeks ago and my h1n1 last week. The h1n1 shot burned!! But other than I haven't noticed any bad effects. I feel kind of bad that I was able get the shot before my boys :(."
Sara Pietrzak left a comment for mel mac"Hi Mel, I too noticed not many people on here have children. They add a whole new set of risk factors (germs anyone??), but they also gave me a reason to keep going when just for me wasn't enough. Can't wait to chat with you."
Sara Pietrzak left a comment for Kim Jacques"Thanks, feeling much better :). My son was sent home yesterday with h1n1 symptoms so I'm on tamiflu as a precaution. My son is doing fine and keeps hollering down the stairs how bored he is, so he is mending fast.
Were you transplanted 13 years…"
Kim Jacques left a comment for Sara Pietrzak"Hey Sara!
Welcome to Transplant Cafe! How are you feeling? Besides "blech." ;-) I just noticed your transplant was 4/4/04--WOW!! That is so cool! Hugs! :-)"
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Double Lung
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Deceased Donor
- Which Transplant Medication(s) Do You Take?
- Prograf, cellcept, prednisone
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- mom
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- I had a double lung txp. as a last resort to treat pph. Looking back, I think I always knew I was heading in that direction. I have been so blessed because I had a quick diagnosis, doctors who sent me to the best hospital in the world and a family that put aside terrible grief and gave the gift of life. I've been in pretty good health since.
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- What Is Your Relationship Status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Def Leppard! I like to read Dean Koontz, Nora Roberts, most vampire books (not the cheesy new ones), and am currently reading the Lord of the Rings trilogy.
- What is Your Favorite Quote(s)?
- "The woods are lovely, dark, and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep." Robert Frost
Sara Pietrzak's Photos
Comment Wall (10 comments)
- At 5:41pm on January 24, 2012,
TC AdminKaren Weddick said…
- At 11:13am on January 24, 2011,
Suzanne said… - Happy Birthday Sara! :)
- At 8:22am on January 24, 2011,
Sue R. said… - Wishing you all the best for a very special birthday Sara!
- At 6:46am on January 24, 2011, Sara Pietrzak said…
- Thank you!!
- At 5:38am on January 24, 2011,
TC AdminKaren Weddick said… 
- At 1:44am on January 24, 2011,
Cristina Cagliari said… 
- At 6:59am on January 24, 2010,
Catherine (Cathy) said… 
- At 4:52am on January 24, 2010,
Hari Narayan Sharma said… 
- At 11:47pm on January 23, 2010,
TC AdminKaren Weddick said…
- At 9:51am on September 25, 2009, Kim Jacques said…
- Hey Sara!
Welcome to Transplant Cafe! How are you feeling? Besides "blech." ;-) I just noticed your transplant was 4/4/04--WOW!! That is so cool! Hugs! :-)
not a member yet?
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Latest Activity
TC AdminKaren Weddick commented on Lili Feldman's group The Funny Bone
"OMG! Lili that was great, I enjoyed that so much and laughed so hard. Thanks so much for sharing and posting that."
David Goodman commented on TransplantCafe.com's group Team Prograf"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
Matt Lawson commented on TransplantCafe.com's group Team Prograf"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Dottie welker commented on TransplantCafe.com's group Team Prograf"wow sorry for all the typos !! teach me to read before hitting enter lol
"
Dottie welker commented on TransplantCafe.com's group Team Prograf"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
Dottie welker joined TransplantCafe.com's group
Team Prograf
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
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