"Hi viki,
Having the same problem with Prograf!! Loosing my mind with the amount of hair going down the drain!
Am in the uk & my consultant has mentioned cyclo but said it would have to be MY choice.
I would love to spk with you bout your…"
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Robert Bui
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Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Heart, Kidney
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- My mum! for donoting her kidney and for being so awesome. Thanks to her I have another shot at life, and I will make the most of it
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Living Donor, Deceased Donor
- Which Transplant Medication(s) Do You Take?
- MMF
Adoport
plus a bunch of others cant be bothered to list :-p
- If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
- Had my heart transplant when I was 8, so I can barely remember my life prior to that. Fortunatly, I wasnt on the kidney transplant list to long (caused by the immunesuppression toxicity of cyclosporine) thanks to having a live donor from my wonderful mother. I have mega respect to those who have been enduring diaylsis for years, as it was the hardest and mentally draining thing I have experienced.
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- Currently studying for an ACCA qualification (Accountancy) having started it when I was working for a financial services company.
Play 5 a side football weekly, and sometimes like to hit the badminton courts (just saw the badminton live at Wembley for the olympics hehe). Into fitness in general really. Also love playing on my epiphone guitar and of course the odd bit of xbox.
My main dream is to travel to as many places all round the world. But most of all see most of my family again back home in Vietnam
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- 21 years since I had my heart transplant due to kawasaki's disease, and still going on strong :).
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- What Is Your Relationship Status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Loved the Hunger Games trilogy books. Didnt like the movie much to be honest; didnt feel it did it justice.
Bit of a film nut. Seen the Dark Knight Rises twice now in imax :D
Into most type of music; whatever gets my head bopping or sounds nice and fun to play on my guitar
- What is Your Favorite Quote(s)?
- When your going through hell, keep going
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Latest Activity
Clare mcgee replied to Kelly McInnes's discussion New from Aus :)"Hi Kelly,
I'm new to this group too & have read your story...rough! Sure hope you are still doing well and your spirits are up!
As you probably know there are ups and downs emotionally post transplant.
I was diagnosed when I was 16 with…"
David Goodman commented on Lili Feldman's group The Funny Bone"A young New York woman was so depressed that she decided to end her life
by throwing herself into the ocean.
But just before she could throw herself from the docks, a handsome young
man stopped her.
"You have so much to live for," said…"
David Goodman commented on Lili Feldman's group The Funny Bone"My wife found out that our dog (a Schnauzer) could hardly hear, so she took it to the veterinarian. The vet found that the problem was hair in the dog's ears. He cleaned both ears, and the dog could then hear fine.The vet then proceeded to tell…"
David Goodman commented on TransplantCafe.com's group Team Prograf"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
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TC AdminKaren Weddick said…
Hi Robert:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
imikimi - sharing creativity