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Patricia Nance
  • Female
  • Muncie, IN
  • United States
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Angela Burrows left a comment for Patricia Nance
November 14
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March 16

Profile Information

What is your city / state and country of residence?
Muncie Indiana
How are you touched by transplantation?
I am on the Transplant Waiting List
If you are on the transplant waiting list, what type of transplant are you waiting for?
Heart
About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
I am not yet on the transplant list but am being evaluated for a heart transplant. The process was started October 2, all test results looking good and then a roadblock....some cancer cells were found when I had a mammogram and biopsy. This was followed by a lumpectomy and radiation treatment called Mammosite, which is targeted radiation , twice a day for 5 days. I am healed and ready to move on. I recently found out that I will have to wait 5 years to be declared cancer free before I can qualify for a heart transplant. While it was not unexpected, the news was devastating. I should feel fortunate that I can still drive, shop, run other errands, do not need a wheelchair and have not been hospitalized for my CHF. Once that start happening, it is probably I will be able to have a LVAD as a bridge to transplant.
Please help us reach other members by telling us how you found Transplant Cafe:
Google
What is your relationship status?
Single
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Love to read....especially mysteries. Listen to Oldies of the 50's and 60's...plus a few 80's from when my kids were teenagers. I enjoy going to the movies and watching them at home. My favorites are mysteries...nothing gory....something with a twist. Love comedies too. I am easy to please though....I appreciate a well written script.
What is Your Favorite Quote(s)?
I know God wouldn't give me anything I can't handle. I just wish he didn't trust me so much.
My Facebook Page (copy and paste your profile page URL):
http://www.facebook.com/profile.php?id=1040405407&ref=name

Comment Wall (23 comments)

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At 7:48pm on November 14, 2009, Angela Burrows said…
Hi Patty,

I have not seen or heard anything from you on facebook. I have been thinking about you and wondering how you are doing. I hope that all is well. You continue to remain in my thoughts and prayers! Take care.

Angela
At 3:44pm on February 6, 2009, Jose Vargas said…
Hello Patricia
Sorry it's taken so long to get back to you but my wife and I just had a baby on dec 23 and he is a premie, so we've been going back and forth to the hospital to see him everyday. on the question you ask about the VAD In my opinion the best way to be if you are on a waiting list and your heart can't do it on its own. The day I got my VAD I had 4 cardiac arrest and had to be paddled back to life all four times. I woke up with the VAD. My condition was so bad that it took a little while to recover after the surgery. but once i got home I felt a huge difference. I could walk again without taking so many breaks, I wasnt tired anymore, and I just felt so much better all around. i felt so well that I was coaching a 6 and under soccer team. So if I was to give a grade to the VAD it would be an A++ cause without it I wouldn't have made it to my transplant. I f you have any specific questions please don't hessitate to ask i would be glad to help you. Good Luck and have a Blessed Day
At 7:03pm on February 4, 2009, Sherrell Gay said…
Glad you are in good hands, have a support system in place and are realistic about what is going on. Your attitude is commendable! I'm here any time you need an ear.
At 6:38pm on February 4, 2009, Sherrell Gay said…
Hey Patricia, the road to transplant is not without bumps and curves sometimes. When I got my heart 6 1/2 years ago, VADs were used but you had to stay in the hospital until the heart came. Now I have friends that go home and live a pretty good life with their VADs as long as they follow protocol. Sometimes when transplant is not an option, VADs are used just as destination therapy to help someone have a better quality of life when there are no other options. Do your best to keep you the rest of your body as healthy as possible. Follow whatever exercise guidelines the doctor suggests...maybe even monitored cardiac rehab if the doc orders it. Try to keep a positive attitude...pity parties are bound to come but have it and let it leave. Ask questions...learn all you can. Your heart buddies are here for you. With the cancer, make sure you have your follow up exams and know that you will be a survivor!
At 7:23am on January 26, 2009, Brian R Barndt said…
glad to hear you have a strong support system. that makes all the difference during the tough times. i will also hope and pray your wait is shortened!
At 7:10am on January 26, 2009, Brian R Barndt said…
hi patricia,
thanks for the note last week. how are you doing today w/ the news you got about the 5 yr wait? i know that would be difficult for me to digest. my experience has always been that the waiting, regardless where it occurs, is the hardest part of transplant. during my 15 yrs of cardiomyopathy, many of them felt like waiting, knowing someday transplant may become a reality. prayers with you. keep me posted.
brian
At 5:43pm on January 23, 2009, Debbie Sayward said…
Five years is a loooong time to have to wait. Getting over your pity party is hard. I go through that every once in a while. When you start trying to do things, just make sure you don't tire yourself to the point of total exhaustion. Making a comeback from total exhaustion is hard and it's hard on your heart. Just make sure you do things in small amounts. You're not superwoman right now. Maybe after you get your new heart.
At 5:12pm on January 23, 2009, Debbie Sayward said…
I spent last week in the hospital with pneumonia. I'm finally feeling better today. I'm sorry you had that bump in the road, but at least they found it before it got out of control. Hopefully you won't have to wait 2 years to get listed. My anemia is now under control since I started receiving Aranesp injections. I spent 2 1/2 years feeling like crap, when I could have been receiving the Aranesp. Sometimes it is so hard to convince the doctors to do anything about my anemia. Finally I got my kidney doctor to order the Aranesp. If you have any questions feel free to ask me. Keep a positive outlook, it will help you get through this part of waiting.
At 9:59am on January 16, 2009, iluvdaaviiid! said…
That is very interesting.
At 9:47am on January 16, 2009, iluvdaaviiid! said…
I will pray for you that all goes well with your transplant. :) By the way, what is an ejection fraction?

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