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Pam Jarvis's Discussions
I'm not alone...
2 Replies
Started this discussion. Last reply by Joanne DeMary Sep. 16, 2009.
Pam Jarvis's Page
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My son (age 39) has enjoyed the benefits of two kidney transplants (first a sibling donation, then from a donor family) and years of dialysis inbetween. He has now been diagnosed with an extremely rare form of cancer, due to the damage caused by the…
Thanks for your response.
Pam
I have had three pre cancerous spots taken off my face and hand. I was told that being five years our from transplant, I would start seeing a few of these pop up. I'm not that sure they have anything to do with any individual drug, just the fact of…
Yes my husband was in the sun a lot and was light skinned, he got melanoma, and sadly passed away Dec. l6 2007. HE WAS ONLY 60. The sun doesn't care or cancer how old a person is, so we have to keep out of the sun, and wear a hat, and sunblock. BE C…
I have not, but my dermatolgist says he treats many recipients w/ skin cancer, so I try to be careful.
Luckily, I have always found just laying in the sun to be SO BORING - I just can't do it, and I try to wear sunblock if I have to be outside.
Bu…
Pam,
I have a few bouts with skin cancer, all squamous. I have been on imuran & predisone for almost 30 years and I get a lot of warts (pre-cancers). I see a dermatologist regulary and ware a hat when I am outside. I have also had to have my hips r…
Wow-good question! And thank you Karen for responding! I am 4 months out from my transplant.They told me that skin cancers were a concern because of the drugs.I guess I kinda shelfed that tidbit thinking that I had enuf to worry about already.Your l…
Thanks for your reply.
Pam
Has anyone had problems with skin cancers from the anti-rejection drugs?
I am in the same boat. 2 months out from my transplant... Even a cancer survivor and the cancer took my spleen. (immune system) Also a diabetic. Internist put me on a "waiting list". My transplant team doesn't have any of the vaccine. No where else…
A viable candidate means he could be a donor. What testing did you just complete?
My husband has been tested as my donor. Our blood type matches, but only 2 of the 6 markers. When they mixed our blood one test passed and one failed. They say he is a viable candidate. Has anyone been in a similar situation with markers and blood m…
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- What is your city / state and country of residence?
- Stoughton, WI
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Kidney
- What is your hospital and, or doctor's name, city / state and country?
- UW Hospital
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I am waiting for clearance for a kidney transplant. My husband is going to be my living donor.
I am very apprehensive because the follow-up seems so incredibly overwhelming. Also, the
side effects of the drugs sound terrible. I was told that they raise your risk of getting cancer to
30 - 40%. I am a cancer survivor of 25 years, so this scares the hell out of me. But, my other choice is dialysis and I have heard horror stories about that.
Finding this sight, and getting all the positive feedback, has been wonderful! I finally feel that there are others who really do know how I feel. Thanks to everyone who helps me through this difficult time...
I am very apprehensive because the follow-up seems so incredibly overwhelming. Also, the
side effects of the drugs sound terrible. I was told that they raise your risk of getting cancer to
30 - 40%. I am a cancer survivor of 25 years, so this scares the hell out of me. But, my other choice is dialysis and I have heard horror stories about that.
Finding this sight, and getting all the positive feedback, has been wonderful! I finally feel that there are others who really do know how I feel. Thanks to everyone who helps me through this difficult time...
Comment Wall (10 comments)
- At 2:14pm on January 24, 2010,
David A. Bjorkman said…
- Hi Pam,
Just reading your bio-story and not sure how far along you are in your endeavor but I recently went thru the whole process at UW and truthfully,its not that bad as it seems.One step at a time! I was fortunate enuf to only be on dialysis for 2 months but I pray I never have to endure that again. The fatigue for 24 hours after was beyond explanation.Once you sleep it off you feel great for a day before you have to go back again.
The drugs are bad for sure but the secret for me has been an abundance of water and plenty of excercise.Having had cancer previously,I can imagine its a scary thought to put yourself at risk like that.We must all live our lives now being cautious of all things that invite disease and sickness and well,ya just never know whats waiting around the bend but my vote would lean towards going for it and living life to the fullest for as long as the good Lord lets you.One day at a time and one battle at a time!
- At 5:04pm on September 30, 2009,
Tracy & Nancy said…
- Pam hi,
I think you sent me Comment today (sept 30) well for some reason I didn't get it? It came to my email that I had a comment from pam Jarvis from transplant cafe....who knows?...I hope you're doing good Ok...Tracy
- At 6:17pm on September 29, 2009,
Tracy & Nancy said…
- Pam hi,
My 1st tx was a kidney/pancreas at UCSF (San Francisco) in 1990 and I had to have a biopsy on my kidney and a 350-1 odds this would happen the biopsy needle hit an artery & a vien and they had to put a platinum coild in my tx kidney! Yikes yes but that was really a rare deal I guess I was #350...so my 1st tx kidney never had a chance as it was injured and I needed another kidney tx 2 1/2 years later...So on Aug 6, 1992 my wife nancy donated 1 of her kidney's to me!:) Nancy's kidney really worked well but suffered to a toxcity in cyclosporin (back in those days they didn't have alot of anti-rejection meds to choose from) but nancy's kidney hung in there for 17 years! In July of 08 my pancreas failed after 18 1/2 years and Nancy's kidney was on its way out too<>why did this all happen? Who knows? Why do some transplants last 30-40 years and some only 1 day I can't answer that either~~~but I do know transplants work! and thank God we have that option:) So for me I have done really well~~~the amazing thing is even though I am on my 3rd tx as I recieved a kidney/pancreas on Aug 4, 2009 at UW (univ wisconsin-madison) and am doing great! Another thing I am thankful for in all my transplants is that I have maintained really good health:)
God bless you Pam and anything I can do to help just drop me a line Ok :) Tracy
- At 7:27pm on September 28, 2009,
Tracy & Nancy said…
- Pam hello,
I have had 3 transplants~~and I do everything I can to stay really healthy:)....eat good, stay hydrated, protect my self in the Sun, EXERCISE, and make sure you laugh ALOT!!! One day at a time and do the best you can. Where are you having your transplant? God bless you & your hubby and nice to meet you....Tracy
- At 8:52am on August 29, 2009,
Mary Coy said…
- Pam, you will not regret having the transplant.I had mine kidney transplant 3 yrs ago in March, and I have done very well.Yes I had complication the first 6 months and had a blood infection to deal with, but after that, I have done so well.I feel good,and I cannot thank my donor enough,it was sad for him to loose his life for me to receive it, but you know I feel so special for him to feel greatful enough to want to share his organs with others to keep them alove.I met the family a year later and it was wonderful. Its something you never ever get out of your mind I am alive today because of my donor,what better gift could anyone give. Life. Good Luck and don't worry things might be a little tuff at first but its all worth it.My Prayers are with you.
- At 10:26am on July 27, 2009,
Holly Miyagawa said… - Hi Pam,
My name is Holly and I live in Southern California. I will be celebrating 10 years (kidney) in 2010. I was lucky - my cousin donated her kidney to me. And, I was only on dialsis for 3 months. I understand your fears and the information can be very overwhelming. Hang in there!!
- At 7:49pm on July 26, 2009,
Jonathan Kiser said… - Hello and Welcome,
Feel free to drop me a line for information. I'm the recipient of two kidney transplants. My first was in 1979 the second in 1984.
- At 3:58pm on July 26, 2009,
Jay Robare said…
Hi Pam. Are you a Badger? I grew up in Ann Arbor and still follow the Big 10.
I just left a comment on weather or not to do dialysis or transplant.
- At 10:37am on July 26, 2009,
Holly Werlein (Holdol) said… - Hi Pam, I just wanted to say hi and welcome you to the cafe! You will find so much support here and some amazing people. My sister actually lives in Wisconsin. I had a liver transplant 3 years ago Hope all is well with you....take care :)
- At 10:44pm on July 25, 2009,
Karen Weddick said… - I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985Take care, Karen
Kidney Tx
1972 & 2007
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