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Pam Jarvis
  • Female
  • Stoughton, WI
  • United States
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I'm not alone...
2 Replies

Started this discussion. Last reply by Joanne DeMary Sep. 16, 2009.

 

Pam Jarvis's Page

Latest Activity

Pam Jarvis commented on Herbert Maldonado's blog post 'Drugs/Alcohol - Kidney Transplant - Depression - Anxiety'
I don't know anything about you or your past, but I know that when I felt like this I went to a Therapist/Psychiatrist and was put on medication that really helped me to live a much better life. Good luck... PJ
August 24
Lili Feldman replied to Pam Jarvis's discussion 'Skin Cancer' in the group Team Kidney
Sometimes a little "scared straight is needed". Being a derm nurse for many years, I saw it all. For those of you who have a laissez faire attitude about the usage of sunscreen and other means of sun protection, let me explain that it is no laughing…
August 2
Lisa replied to Pam Jarvis's discussion 'Skin Cancer' in the group Team Kidney
Does anyone have any suggestions on the sunscreen you use? My face breaks out so easy. I am 4 months out from k/p transplant. I go next week for another Derm check up. I had some moles removed before the transplant nothing to them and my brother has…
July 21
Gail Csizmar replied to Pam Jarvis's discussion 'Skin Cancer' in the group Team Kidney
I just found out that the place on my ear is a basil cell cancer. I thought it was just a patch of dry skin because it is where my brush hits my ear when I dry my hair. Have had it over a year and finally thought it was time to get it checked becaus…
July 15
Pam Jarvis commented on Donnia's group 'Team Kidney'
I had my kidney transplant 3 months ago and am experiencing tremors, weakness and some loss of balance. The docs have no idea. Has anyone else experienced this?
June 24
Holly Werlein (Holdol) commented on Pam Jarvis's blog post 'Tremors'
Pam, CONGRATS on your new kidney!! Life is truly a blessing :) I experienced tremors right after my liver transplant as well and still have a little bit of them 4 years out. Your body is getting used to the drugs, so in time it will probably decreas…
April 29
Bobbiejo Winfrey commented on Pam Jarvis's blog post 'Tremors'
Congratulations on receiving a new kidney! I also had a lot of trouble with hand tremors after my transplant. It was the worst right after transplant when I was in the ICU as I could not even write properly, but once I got to the normal transplant f…
April 29
Terri Herko commented on Pam Jarvis's blog post 'Tremors'
Hi Pam, Congrats on your new life! I am 11 months out thee tremors were real bad at times but after time I found they decreased. I still have bad tremor days and spend it on the couch...kinda just learn to deal with them!!!
April 28
David A. Bjorkman left a comment for Pam Jarvis
April 28
Paul Anthony Worthington commented on Pam Jarvis's blog post 'Tremors'
Hi Pam, Congrats on your new kidney, I trust all is progressing well apart from the tremors? I tried to see what meds you are on besides the Prograf that your mention but I see you have decided to omit them. Are you taking anything alongside the p…
April 28
Pam Jarvis added a blog post
I am 7 weeks out of surgery and have been experiencing tremors. After a day of tremors I am pretty worn out. We stopped the Prograf to see if that was the reason... Nope...Has anyone else experienced this? Thanks, Pam
April 28
Pam Jarvis left a comment for David A. Bjorkman
April 28
Hari Narayan Sharma left a comment for Pam Jarvis
April 28
Pam Jarvis replied to David A. Bjorkman's discussion 'symptoms/post transplant' in the group Team Kidney
I haven't experienced this, but I would look into it ASAP since they are signs of rejection.
April 19
Pam Jarvis and Hallie Russell are now friends
April 12
Lynn Washer replied to Pam Jarvis's discussion 'Skin Cancer' in the group Team Kidney
I have just celebrated my 16th anniverary with my kidney. I have had skin cancer removed from my face three times. I am not a sun worshipper at all, it is just the meds. I asked the surgeon why it had to be on my face and not somewhere that not ever…
March 21

Profile Information

What is your city / state and country of residence?
Stoughton, WI
How are you touched by transplantation?
I am a Recipient
If you are a recipient, what type of transplant did you receive?
Kidney
What is your hospital and, or doctor's name, city / state and country?
UW Hospital
Please help us reach other members by telling us how you found Transplant Cafe:
internet
What is your relationship status?
Married
I am waiting for clearance for a kidney transplant. My husband is going to be my living donor.
I am very apprehensive because the follow-up seems so incredibly overwhelming. Also, the
side effects of the drugs sound terrible. I was told that they raise your risk of getting cancer to
30 - 40%. I am a cancer survivor of 25 years, so this scares the hell out of me. But, my other choice is dialysis and I have heard horror stories about that.
Finding this sight, and getting all the positive feedback, has been wonderful! I finally feel that there are others who really do know how I feel. Thanks to everyone who helps me through this difficult time...

Pam Jarvis's Blog

Pam Jarvis

Tremors

I am 7 weeks out of surgery and have been experiencing tremors. After a day of tremors I am pretty worn out. We stopped the Prograf to see if that was the reason... Nope...
Has anyone else experienced this?



Thanks, Pam

Posted on April 28, 2010 at 12:16pm — 5 Comments

Comment Wall (14 comments)

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At 3:19pm on April 28, 2010, David A. Bjorkman said…
Hi Pam,
Im guessing the tremors are in your hands and arms? That'd be the prograf and my doc says get use to it.It was much worse for me in the first couple months-now I only get teased occasionally about it.You learn to use a big spoon when eating soup or cereal so you actually end up getting some. Hoping the best for ya! David
At 7:23am on April 28, 2010, Catherine (Cathy) said…

At 2:13am on April 28, 2010, Hari Narayan Sharma said…

At 12:05am on April 28, 2010, Karen Weddick said…
HAPPY BIRTHDAY Pictures, Images and Photos
At 6:19pm on March 20, 2010, Thomas K. Lohry gave Pam Jarvis a gift…
Red Ribbon
Here is a ribbon of confidence and gratitude to you all for your strength and support
From the Gift Store
At 2:14pm on January 24, 2010, David A. Bjorkman said…
Hi Pam,
Just reading your bio-story and not sure how far along you are in your endeavor but I recently went thru the whole process at UW and truthfully,its not that bad as it seems.One step at a time! I was fortunate enuf to only be on dialysis for 2 months but I pray I never have to endure that again. The fatigue for 24 hours after was beyond explanation.Once you sleep it off you feel great for a day before you have to go back again.
The drugs are bad for sure but the secret for me has been an abundance of water and plenty of excercise.Having had cancer previously,I can imagine its a scary thought to put yourself at risk like that.We must all live our lives now being cautious of all things that invite disease and sickness and well,ya just never know whats waiting around the bend but my vote would lean towards going for it and living life to the fullest for as long as the good Lord lets you.One day at a time and one battle at a time!
At 5:04pm on September 30, 2009, Tracy & Nancy said…
Pam hi,

I think you sent me Comment today (sept 30) well for some reason I didn't get it? It came to my email that I had a comment from pam Jarvis from transplant cafe....who knows?...I hope you're doing good Ok...Tracy
At 6:17pm on September 29, 2009, Tracy & Nancy said…
Pam hi,

My 1st tx was a kidney/pancreas at UCSF (San Francisco) in 1990 and I had to have a biopsy on my kidney and a 350-1 odds this would happen the biopsy needle hit an artery & a vien and they had to put a platinum coild in my tx kidney! Yikes yes but that was really a rare deal I guess I was #350...so my 1st tx kidney never had a chance as it was injured and I needed another kidney tx 2 1/2 years later...So on Aug 6, 1992 my wife nancy donated 1 of her kidney's to me!:) Nancy's kidney really worked well but suffered to a toxcity in cyclosporin (back in those days they didn't have alot of anti-rejection meds to choose from) but nancy's kidney hung in there for 17 years! In July of 08 my pancreas failed after 18 1/2 years and Nancy's kidney was on its way out too<>why did this all happen? Who knows? Why do some transplants last 30-40 years and some only 1 day I can't answer that either~~~but I do know transplants work! and thank God we have that option:) So for me I have done really well~~~the amazing thing is even though I am on my 3rd tx as I recieved a kidney/pancreas on Aug 4, 2009 at UW (univ wisconsin-madison) and am doing great! Another thing I am thankful for in all my transplants is that I have maintained really good health:)

God bless you Pam and anything I can do to help just drop me a line Ok :) Tracy
At 7:27pm on September 28, 2009, Tracy & Nancy said…
Pam hello,
I have had 3 transplants~~and I do everything I can to stay really healthy:)....eat good, stay hydrated, protect my self in the Sun, EXERCISE, and make sure you laugh ALOT!!! One day at a time and do the best you can. Where are you having your transplant? God bless you & your hubby and nice to meet you....Tracy
At 8:52am on August 29, 2009, Mary Coy said…
Pam, you will not regret having the transplant.I had mine kidney transplant 3 yrs ago in March, and I have done very well.Yes I had complication the first 6 months and had a blood infection to deal with, but after that, I have done so well.I feel good,and I cannot thank my donor enough,it was sad for him to loose his life for me to receive it, but you know I feel so special for him to feel greatful enough to want to share his organs with others to keep them alove.I met the family a year later and it was wonderful. Its something you never ever get out of your mind I am alive today because of my donor,what better gift could anyone give. Life. Good Luck and don't worry things might be a little tuff at first but its all worth it.My Prayers are with you.

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