Started this discussion. Last reply by cleopatra Nov. 19, 2009.
Mr Lee has not received any gifts yet
Posted on June 7, 2009 at 1:56pm — 4 Comments
Transplant Cafe Chat! 
Invite anyone who can benefit from being a part of the Transplant Cafe family.
Get a Transplant Cafe Badge for your website, myspace / facebook page like the one below and other styles to choose from
Popular Cafe Destinations:
forums
popular videos
other links and cool features
popular groups
featured
global community
|
|
other popular groups
Increasing transplant awareness through personal profiles, interactive tools, friendships, blogs, discussions, groups, events & networking!
© 2010 Created by TransplantCafe.com.
Comment Wall (15 comments)
You need to be a member of TransplantCafe.com - The Gift of eLife! to add comments!
Join TransplantCafe.com - The Gift of eLife!
I am back... with one molar left (the other one does not need to be pulled out). All done and dusted! In actual fact, have not been suspended from the list at all.
As I might have said already, despite the 5 tumours, I do not look ill at all and this is what doctors find amazing.
May I ask what medicines Lee is taking? Anthing like Tramadol? I was on that one (for the pain) and I had horrific nighmares!
Love
Müriel.
Again, thanks for your nice message. Hope you and all your family keep well, with a special thought for Lee, of course.
Müriel.
The problem is that I do not know which other hospital to go to. I don't know what Leeds dental dept is like and despite my phone call to the liver unit 3 days ago, nobody rang me back. The alternative would then to go to London! Such a journey for 2 teeth is a bit dear...
I spoke to one of my sister's friend tonight. He is German. He works 3 days here, 2 days in his country. He said my story sounded a bit strange and that he felt my dentist was being over protective, which I personnally translate to "she wants to cover her own back for all eventualities". Consequently, he is seeing me tomorrow at the practice he works at. Watch this space...
I know the two doctors you mention quite well myself.
Because of my pre-existing medical condition, for 11 years I was under Dr Davies' supervision. I used to go to St James's for my yearly venogramme.
From Nov. to May/June I only dealt with Dr Jones and on 2 occasions with Dr Milson.
They are all very nice. There are only two persons I had problems with and these are 2 nurses. So nasty they were. I think they should actually change job!
Did Lee ever have TACE treatment?
I only had 2. The first one went very, very bad. I ended up with a hepatic ischemia.
Thanks God, the 2nd one was better.
After that 2nd treatment, my AFP fell down to the point that everybody was amazed. From 706 in Nov they went down to 6!!!
This is when the doctor resubmitted my file to the transplant team which declined again!
At that point, the doctor decided to write to King's College Hospital in London. They accepted to assess me and I am now on their waiting list.
Did you have any explanation as to why the surgery lasted so long? It is usually 6 to 8 hours (which is long enough, really!) Was Lee jaundiced prior to the tx?
As far as I am concerned, everybody is amazed of how well I look. I am not jaundiced at all, do not have red eyes either.
Thank you very much, Jay, for taking the time to write such a long answer; I really appreciate.
By the way, because it is difficult to write a long message using the "comment wall", please do not hesitate to write to me, using the private message facility. At least the lines will not go on jumping when you type!
Do you know why doctors changed their minds, going for non eligible for a transplant to a "yes, we can do it"? Where had it spread to? Do you know the number and size of the tumours? Leeds said that I had 6, the biggest one being 4.3 cm whereas London said that I had 5 tumours (the 6th one being a regenerative nodule) and that the biggest tumour was 3.00 cm.
November was a good month for you and a bad one for me. On Nov. 2nd, I had my yearly venogramme, followed by an ultrasound which showed the tumours. I then had to go back to Leeds for an MRI and on Nov. 14th, they confirmed I had HCC.
I think we all have this moral dilemma of both feeling happy and guilty. This is how I have been feeling for several weeks!
Thank you for your answer.
Was it HCC or did the cancer "moved on" to the liver?
Do you go back to Leeds for check-ups? Has not the place changed! It is so new, clean and big now, isn't it?
Is it Dr R. Jones who does the follow-up?
I am in North East Lincs, but England is not my country of origin.
What about you? Are you British?
Even if you no longer live in Lincs, you have not really moved very far, have you? lol
I would indeed be very interested to know how you lived the whole thing? Also, how long did you have to wait? How many tumours did you have? Was Leeds supportive as far as the psychological side is concerned?
What about Jay? How difficult was it for her to cope with the situation?
Sorry to have so many questions!
Go on doing so well with your liver and good luck in your finding a job (in which field did you use to work?).
Kind regards
Müriel
We obviously have one thing in common: we have both been to Leeds, so I assume we know the same people. May I ask what your liver problem was, prior to the transplant?
View All Comments