It's a new day, hold on with all your might

Warning: A lot has been going on with me over the past couple months, some of it good, some of it bad, all of it going seems to continue to on and on

It is a time of good news and bad news for me. First the good news, my one year anniversary was on September 24, 2009. Outside of car accident that left Wendy without her car for a month, it was a good day. Wendy and I visited the hospital, delivered a cake and some thank you cards, and went out to a great dinner at Providence . Actually one of th… Continue

Well, I can easily say that the last 4 days have been the roughest for me since leaving first leaving the hospital after my transplant, just about a year ago. Over the past few weeks my platelet count had slowly been decreasing. Last tuesday, my platelets had dropped to 11,000, prompting my post-transplant doc to refer me to a hematologist. She ordered a platelet transfusion, which bumped the count up to 32,000, which was about half the response they were hoping for. Back on Friday to see if I'd… Continue

On Monday, I had some extra blood because some previous blood work had shown that I had very low platelets. Well, the platelet count is continuing to go down. As result, I was taken off my last non anti-rejection med, Lipitor, and one of my anti-rejection meds, Arava (which was a replacement for Cellcept). I'm not even 1 year out from my heart transplant. Even before these reduction, my post-transplant Dr., said I was on next to nothing. Now I 'm down to 2 mg of Prograf twice a day, and 5mg Pred… Continue

A new development in transplant rejection research

http://www.examiner.com/x-1242-Science-News-Examiner~y2009m4d7-New-discovery-may-end-transplant-rejection

I take it all with a grain of salt. If they come up with something great, either way, just keep living your life.

I'm now just over 6 months from my heart transplant. While I've not had any issues with rejection, I did manage to come down with the BK virus back in January. The treatment for the BK virus is supposedly pretty toxic, so my doctor has pretty much ruled it out. Anyway, I feel fine. At my last appointment, my blood came up clean, but my urine is still coming up "very" positive for the virus. Long story short, my doctor has taken me off of Cellcept, and put me on Arava (Leflunomide). Does anyone h… Continue