-
Mary Wu
- Female
- Ossining, NY
- United States
- Blog Posts (1)
- Discussions (12)
- Events
- Groups (8)
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Mary Wu's Groups
Mary Wu's Discussions
Hip Replacement Surgery?
Started this discussion. Last reply by Mary Wu Apr 13, 2011. 8 Replies 0 Likes
Hi all!! I've been a little down lately based upon my recent appointment with my osteopath who I go to monthly for a tune-up for my left hip. Long story short is that the Prednisone knocked out the…Continue
Long-Term Side Effects of Prednisone
Started this discussion. Last reply by Mary Wu Feb 6, 2011. 13 Replies 0 Likes
Hi all! I am rarely on "Transplant Cafe," but I am trying to get back into it now! This last month has been hectic and crazy because of health issues and I wanted to share them to see if maybe…Continue
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Latest Activity
Mary Wu replied to Mary Wu's discussion Hip Replacement Surgery?"Hi, Sunil! Sorry for the delay in writing back to you! Things have been really crazy with work and personal life! It sounds like you know exactly how I feel with my ongoing chronic pain with my hip and with the kidney…"
Sunil Khanal replied to Mary Wu's discussion Hip Replacement Surgery?"Hey same problem here. It's been one year of my kidney transplant and after 4 months of transplant..started to pain my left leg but i ignored it thought its normal.. but after i went to doctor..and heard about The solution is Total hip…"
Mary Wu replied to Mary Wu's discussion Hip Replacement Surgery?"I'm seeing my orthopaedic surgeon this Friday. Keep your fingers crossed!! For now, the only decision I've come to is I want to lose up to 20 pounds and then make the decision from there about a hip replacement surgery. …"
Curtis Lewis & wife, Denise replied to Mary Wu's discussion Hip Replacement Surgery?"Mary, hope you decided to do the hip replacement. My husband is a heart transplant recipient (7 years ago) and had one hip done two years ago and one last summer. The journey wasn't much fun, but he feels MUCH better now.
"
Mary Wu replied to Mary Wu's discussion Hip Replacement Surgery?"Thank you all for the advice! Most, if not all people say that I should get the surgery b/c it all comes down to quality of life! I will see my orthopaedic surgeon next Friday and go from there with an open mind!! :-)"
Catherine (Cathy) replied to Mary Wu's discussion Hip Replacement Surgery?"Hi, I know a lady who is 19 years post liver transplant had two hips done and also has a rod in her back due to steroids after her liver transplant.
She is doing great she does suffer from neuropathy but it is good to know someone that…"
Steven D. Pigott replied to Mary Wu's discussion Hip Replacement Surgery?"Mary, if it was me I would get the replacement surgery. Why suffer if it can improve your life without pain. I would have a good discussion with my kidney doctor about the problems that the surgery might cause with my kidney txd and discuss…"
Joe Berry replied to Mary Wu's discussion Hip Replacement Surgery?"I was 18 when I had the "old fashioned" hip replacement surgery. It was called "Vitallium cup arthroplatsy". As I understand it, they placed a steel cup in my hip socket. I was in surgery for over six hours and off my…"
Mary Wu posted a discussionHip Replacement Surgery?
Hi all!! I've been a little down lately based upon my recent appointment with my osteopath who I go to monthly for a tune-up for my left hip. Long story short is that the Prednisone knocked out the development of my left hip since I had my first transplant when I was 6-years-old and so my left leg is shorter than my right leg and I have arthritis and loads of other chronic pain problems with the left hip and lower back. When I was 11-years-old, I was on crutches and when wheelchair-bound from…See More
Mary Wu replied to Maggie Velez's discussion Pray For Me"Maggie, I'm so sorry that you are going through all of this. We all know what you are going through! The most important thing to know is that you are not alone!! Sending lots of prayers and hugs your way!!
~Mary"
Mary Wu commented on TransplantCafe.com's group Cafe Shop - Transplant Books!"I've been seeing a lot of heart transplant books lately, including "Irreplaceable" by Stephen Lovely and "Change of Heart" by Jodi Picoult. Picoult is often known to write very controversial books anyhow that…"
Mary Wu joined Holly Werlein (Holdol)'s group
Chat Time!
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Kidney
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- I am eternally grateful and indebted to both of my deceased donors for two of my kidney transplants. I would not be here for them or for my extremely supportive family members and friends.
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Deceased Donor
- Which Transplant Medication(s) Do You Take?
- cellcept, prednisone, prograf
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am in administration scheduling chemotherapy at a cancer hospital called Memorial-Sloan Kettering Cancer Center (www.mskcc.org).
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- I am a two-time kidney transplant recipient. I was born with agenesis of the kidneys and had my first kidney transplant when I was 6 and my second one when I was 12. It is now 15 years since my second transplant. For both transplants, the donors were deceased and words cannot possibly even begin to encapsulate how grateful I am to them. Growing up with chronic kidney failure and also hip dysplasia that worsened from the prednisone (I now suffer from severe arthritis of my back and hip) had made me appreciate and love life and living even more. At the time I had my second kidney transplant, I was on an emotional roller coaster from high as a kite happy to depressed when I suffered a kidney rejection to high as a kite happy again when I recovered from the kidney rejection. What made it all the more challenging were the hormones and feeling so different, abnormal, and out of place during middle school/high school. However, it has been my life's mission since my second kidney transplant to pay it forward and give back to the transplant community. I was a National Kidney Foundation TransAction Council Member from 2006-2008 and am involved and volunteer as much as I can for my local Westchester County Transplant Support Organization chapter, National Kidney Foundation, and New York Organ Donor Network. I constantly write to politicians about legislative issues that affect transplant candidiates and recipients and tell my own personal story when I can and to whomever will listen to me. Most recently, I wrote a book called "Confessions of a Kidney Transplant Recipient," which chronicles my health experiences since I was a child and how it greatly affected my social networks and my physical, mental, and emotional well-being. I look to publish it someday as well as continue to advocate on behalf of the organ transplant community. I've been so blessed and now consider myself extremely lucky to go through all of this at a young age because it makes me see the beauty in life and people all that and more.
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- Member Invite
- What Is Your Relationship Status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Gosh, where do I start? Books: Anything by Jodi Picoult and Sarah Addison Allen. Other books include Shadow of the Wind, The Other Bolelyn Girl, The Russian Concubine, The Da Vinci Code, P.S. I Love You, If You could See Me Now, The Tea Rose, and much, much more. For music, I love The Goo Goo Dolls, Everclear, Barenaked Ladies, Sugababes, Laura Pausini, Lenka, Michelle Branch, Faith Hill, Taylor Swift, Celine Dion, Snow Patrol, Coldplay, Jimmy Eat World, Anouk, and so many, many more. I'm also a huge movie buff: Love Actually, P.S. I Love You, Sweet November, Harry Potter movies, Disney movies, No Reservations, and the list can go on!
- What is Your Favorite Quote(s)?
- Do What You Fear.
- Your Personal (non-commercial) Website, Page, or Blog URL:
- http://kidneyconfessions.blogspot.com
- My Facebook Page URL:
- http://www.facebook.com/home.php?#!/profile.php?id=559850860
Mary Wu's Blog
"Confessions of a Kidney Transplant Recipient"
Posted on August 27, 2010 at 2:31pm 0 Comments 0 Likes
As a two-time kidney transplant recipient, it is my mission to educate the public on organ and tissue donation and increase the dismal registration rate in the U.S. and especially in New York state where I live. I was born with chronic kidney failure and had my first kidney transplant when I was six and my second kidney transplant when I was twelve. It has now been going 15 years and I wrote a book in 2006, launched it in 2009, and now it is my goal to publish it as a traditional book. My… Continue
Comment Wall (5 comments)
- At 6:41am on August 30, 2012,
TC AdminKaren Weddick said…
- At 6:07pm on August 30, 2011,
Sue R. said… 
- At 3:03am on August 30, 2011,
TC AdminKaren Weddick said… 
- At 10:20am on August 30, 2010,
TC AdminKaren Weddick said… 
- At 1:07pm on August 6, 2010,
Holly Werlein (Holdol) said… - Mary, I just wanted to say hi and welcome you to the Cafe! This site is amazing and you will find so much support and meet a lot of wonderful people here. I'm so glad you received your gift of life! It was wonderful to meet you in person and I'm excited to work on the youth circle together :) Click here to join my kitchen for some yummy recipes and tips on how to stay healthy! Also, click here for a helpful link to show you around the cafe. Look forward to chatting with you soon :)
not a member yet?
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Latest Activity
Arleen Dodson replied to Diana Petersen's discussion How long has your transplanted kidney lasted"I have been blessed I feel, and so I have dedicated my life to singing at church to the Lord since I received the gift of life! I have been in the choir at St. John Vianney church since 1987, we moved here to Hacienda Heights. I was still in it,…"
Audrée Descheneaux posted a status"Yes, almost 10 years!!! What a great milestone to reach! Thanks and congratulation as well!"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"You know, much of the transplant success stories we hear about now are due to the advances the transplant docs have made and the new anti-rejection protocols being tailored to each patient according to their lab results. The only rejections…"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"What a wonderful post! Thank you so much! It is immensely encouraging to everyone to learn about the Quarter Century Club and those of you who have exceeded 30 yrs! Being an older person already, I compare my body to an old car now when parts…"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"Wow, Arleen, you are one of those that inspires the rest of us with the way you have become so active and how long your kidney has lasted! You are proof of the importance of encouraging people to sign their donor cards! That's…"
TC AdminKaren Weddick commented on Lili Feldman's group The Funny Bone
"O.M.G.!!!! David I applaud you!"
David Goodman commented on Lili Feldman's group The Funny Bone"Three dogs were sitting in the waiting room at the vet's when they struck up a conversation.The Yellow Labrador turned to the Black Labrador and said, "So whyare you here?"The Black Lab replied, "I'm a pisser. I piss on…"
rohana miller replied to Diana Petersen's discussion How long has your transplanted kidney lasted"Arleen, have you looked up high purine foods on the internet? If you have not done that, I highly recommend it. You might find foods you enjoy eating are the culprit, not just beer. A half cup serving is pretty much what every food is…"
Arleen Dodson replied to Diana Petersen's discussion How long has your transplanted kidney lasted"You are lucky that your ins agent didn't receive a cadaver kidney that's prob why it has lasted so long. I am an only child, and i try not to drink, once in a while a small glass of wine. I do believe beer causes me to get gout, so i stay…"
Belinda Todjo commented on Donnia's group Prednisone Sucks :)"New to group. I'm 4.5 months out liver transplant. Been off prednisone for 5 weeks but no matter what I do I can't get the10 pounds I gained off! It is driving me crazy insane. I have also developed cellulite on my tighs. Any suggestions?"
Belinda Todjo joined Donnia's group
Prednisone Sucks :)
This group is a place for all to come and share their experiences with Prednisone. We are also here to offer support.See More
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