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Linda J Perkowski
  • Female
  • Nevada
  • United States
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Latest Activity

Linda J Perkowski left a comment for gail k french
August 15
gail k french left a comment for Linda J Perkowski
August 15
My husband recieved his Liver Transplant on July 4th.
August 14
Hari Narayan Sharma left a comment for Linda J Perkowski
May 10
Linda J Perkowski left a comment for Catherine (Cathy)
May 10
Linda J Perkowski and Hallie Russell are now friends
April 3
Linda J Perkowski and Ramona are now friends
March 28
Ramona left a comment for Linda J Perkowski
March 28
Linda J Perkowski joined Flo Berry's group
Caregivers, family members of transplant patients
Support group for caregivers and family members of transplant recipients - pre or post op. Talk to other family members, spouses & significant others who have 'been there, done that' to find help to keep you going through the rough times.
March 21
Linda J Perkowski is now friends with Holly Werlein (Holdol) and Victor Montañez
November 29, 2009
Holly Werlein (Holdol) left a comment for Linda J Perkowski
November 25, 2009
Linda J Perkowski updated their profile photo
November 25, 2009
Linda J Perkowski is now friends with Julian and Beth Hartshorn
November 23, 2009
Linda J Perkowski replied to Linda J Perkowski's discussion 'I'm a care giver'
Thank you all so much for your reply's. I haven't figured out how to reply to each one. I am electronically challenged. Richard, thank you for your Service and your words and prayers. Cheryl, I live in a small town and he will be getting his surgery…
November 14, 2009
Catherine (Cathy) left a comment for Linda J Perkowski
November 11, 2009
Linda J Perkowski is now a member of TransplantCafe.com - The Gift of eLife!
Welcome Them!
November 11, 2009

Profile Information

What is your city / state and country of residence?
Nevada, United States of America
How are you touched by transplantation?
I am the Caregiver of Someone With a Transplant, I am a Relative of Someone with a Transplant

Comment Wall (7 comments)

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At 2:18pm on August 15, 2010, gail k french said…
Hi, Linda,
When my husband had his liver transplant, they put an excessive amount of prograf into his liver. It made in his mind what the Neurologist at Mayo Clinic called brain soup. It really affected the chemical balance of his brain. It took a while for it to level off, and he also lost a great amount of weight. I would not be too concerned about it, but I definitely would keep an eye on it. My husband passed away in January, 2 years and a month after his transplant. His liver functions were good, but the liver was not detoxifying his system and died as if he had taken an overdose of pain medication, althought the coroner's report said that he did not have a lethal dose of his medication in his system. He was hospitalized a few times before he died and they had to take away every medication that he was on except for the prograf and the cellcept. I have found through this that they do a good job, but you have to keep an eye on them and stay on top of it. I hope this helps you. I do not like to discuss it much. It seems to be disturbing to those who hear about it, even though it must be a rare occurance and affects very few.
At 10:52pm on May 10, 2010, Hari Narayan Sharma said…

At 9:26am on May 9, 2010, Catherine (Cathy) said…

At 12:13am on May 9, 2010, Karen Weddick said…
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At 5:42pm on March 28, 2010, Ramona said…
Linda - Hi! I read your message about caring for your husband. You are absolutely normal! Holy cow...there are some similarities there with my husband too. He's got his ups and downs...but there have been more downs lately than ups. It's really hard, and to have family nearby and not helping - welll that really does add to the weight of the world on your shoulders. I have recently felt like I was doing everything too, and getting nothing but crankiness and alonenees in return. It's hard to do everything - but you will do it, and all will be fine (eventually). Hang in there. We are never given more than we can handle. Even if it feels that way sometimes. Vent any time you need to! We're all here for you!
At 7:24pm on November 25, 2009, Holly Werlein (Holdol) said…
Linda, I just wanted to say hi and welcome you to the Cafe! As you can see this site is amazing and full of so much support. I had a liver just over 3 years ago. How are you and your husband doing? I know it's hard to watch someone go through that, so if you ever need to vent or talk to someone I'm definitely here for ya :) I truly hope your husband recieves his gift soon. Have a wonderful Thanksgiving holiday! Take care..
At 5:28pm on November 11, 2009, Karen Weddick said…
Hi Linda:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
cafee
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