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Kathryn Flynn
  • Female
  • Hillsborough, NC
  • United States
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I GOT THE CALL TODAY ...THEY ARE LISTING ME..DOUBLE LUNG

Replied Oct. 27, 2009

Lung

Replied May. 1, 2009

Lungtransplant

Replied May. 1, 2009

 

Full Time Life After 14 years

Latest Activity

Darlene Tanner commented on Kathryn Flynn's group 'Lung Transplants'
My Coordinator called this afternoon and told me I am Offically Listed as of today........... Now I am a bundle of nerves and excitment.
18 hours ago
Tara commented on Kathryn Flynn's group 'Lung Transplants'
Oh and I am 18 1/2 years post lung tx and I am 9 years post kidney tx.
on Sunday
Tara commented on Kathryn Flynn's group 'Lung Transplants'
I only work part time. My husband works full time and I am on partial disability so I have Medicare and Ohio Medicaid for my health insurance. I have tried working full time in the past and I just ended up getting sick.
on Sunday
Jill Roberts commented on Kathryn Flynn's group 'Lung Transplants'
Hi Roberta. I work full time, but only work 3 days a week (12hour days). That is perfect because I have the other 2 days for rest and doctors appointments.
on Saturday
Nulungs95 commented on Kathryn Flynn's group 'Lung Transplants'
Roberta, I received a double lung transplant 15 years ago and remain on Disability. My husband provides our health insurance and pays the bills....I have had a few bouts with rejections and had threee young children when I was first transplanted. I…
on Friday
Sara Pietrzak commented on Kathryn Flynn's group 'Lung Transplants'
I'm 6.5 years post dbl lung txp. I'm very lucky as my husband carries our health insurance. I run a specialty baking business from my home part time. I've always wanted to go back to work, but my previous job was teaching in a middle school. Doc fee…
on Friday
Joanne commented on Kathryn Flynn's group 'Lung Transplants'
Roberta-I had a double lung transplant over 9 years ago and am still working full time. In a perfect world, I'd be wealthy with lifetime health insurance, but, alas, I need to pay the mortgage and keep my healthcare insurance. I agree with you - th…
on Friday
Roberta L. Monaghan commented on Kathryn Flynn's group 'Lung Transplants'
How many double lung tranplant recipients work outside the home full time? And if you don't have to how? Working full time is really begining to wear me down, Not time for exercies, doctors visits, or having fun. I really wish there was a way to not…
on Friday

Profile Information

What is your city / state and country of residence?
North Carolina
How are you touched by transplantation?
I am a Recipient
If you are a recipient, what type of transplant did you receive?
Double Lung
Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
My donor family, my transplant team, my OPO, my husband,my Creator
What is your principal transplant med(s)?
Cyclosporin, imuran, advair discus inhaler
What is your hospital and, or doctor's name, city / state and country?
Duke U Med Ctr Durham, NC USA
Dr. Michael Zaas- Medical Director
Dr. Scott Palmer- Science Director
Dr. Duane Davis- Surgical Director
What do you do for a living?
Teacher of students with visual impairments
About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
I am 12 years post double lung, a mother of a beautiful 16 year old, a wife. a teacher (of students with visual impairments), and a former molecular biology technician

I just resigned after ten years as a board member of Second Wind Lung Transplant Association, Inc., an education and support organization for lung and heart/lung candidates, recipients and their families.

Toll Free Help Line: (888) 855-9463 Peer Support Program
Please help us reach other members by telling us how you found Transplant Cafe:
Invite from Nelson
What is your relationship status?
Married
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Folk, Mostly fiction
My Personal (non-commercial) Website, Page, or Blog URL:
http://www.2ndwind.org
My Facebook Page (copy and paste your profile page URL):
http://www.facebook.com/home.php?#/group.php?gid=24350156230


Me, my daughter, my English sister-in-law, and my brother (they live in Leeds UK)

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Kathryn Flynn

Working on an event for the Lung Transplant Foundation: Lungapalooza: A Walk for Breath

Posted on July 12, 2010 at 9:59am —

Kathryn Flynn

Looking back over 13 years

I have never blogged and don't claim to be good at it, profound or even wise. I just know I have a lot to be grateful for- in particular my donor family. Even in uncertainty they gave me back my life- a life that is "normal" with ups and downs, bills to pay, and a teen to soon put through college.

I would like to give a special shout out to our loved ones- in particular my husband, Rick. It hasn't been easy and life leaves it's scars but here we are, still together, facing the empty nest I neve… Continue

Posted on March 15, 2009 at 1:37pm — 1 Comment

Comment Wall (60 comments)

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At 1:50am on June 15, 2010, Tara Maynard gave Kathryn Flynn a gift…
Red Ribbon
Red Ribbon
From the Gift Store
At 4:30pm on June 9, 2010, Bobbiejo Winfrey said…
Congratulations on having your transplant for so long! Thank you for reaching out to me. From what I have read from your profile, you are quite an inspiration and the world must be blessed by your presence. I hope that you may always find new reasons to smile and hope to brighten your present and future days. Many hugs and best of wishes are being sent your way.
At 4:41pm on April 02, 2010, Tara Maynard gave Kathryn Flynn a gift…
Red Ribbon
Red Ribbon
From the Gift Store
At 11:53pm on December 20, 2009, Karen Weddick said…
Hi Kathryn:
I'm sorry to hear that you may have to forgo the games but do understand. Let me know if anything changes. In the mean time I want to wish you and yours a wonderful, blessed, safe and memorable Christmas that last all through the New Year. God bless you and yours.
Hugs, Karen

glitter-graphics.com
At 6:50pm on November 25, 2009, Darlene Tanner said…
Thank you Kathryn, I am still in the testing stages now. Getting alittle stressed out with how slow it is going and some of the results but still have my chin up. Have a great Thanksgiving and bless you and your family
Hugs
Darlene
At 8:56am on November 22, 2009, Karen Weddick said…
You are so welcome Kathryn and I look forward to meeting you too. What events do you do? Have a wonderful, safe and blessed week ahead.
Karen

glitter-graphics.com
At 1:30pm on November 15, 2009, Karen Weddick said…
Hi Kathryn:
I'm so thrilled to hear you are going to the games...YEAH! Hope to meet you so see you at the party!
Hugs, Karen
Have A Great Week Pictures, Images and Photos
At 8:42am on September 4, 2009, mel mac said…
hi karen...i see that you had your transplant when your little one was around 4 right? !2 post and a 16 year old daughter...i think i did the math right..lol. My little guy is 5 now and its been rough trying to figure out how to explain it to him. I live in pei which an atlantic canada province and when i get listed i will have to move to toronto to be within 2 hours of the hospital. The wait time scares me...should i take him with me .....would it be too much for him..he has been my little inspiriation and the thought of him not with me would be too hard. He gives me hope. But the thought of uprooting him and taking him to a different province...enrolling him in school...not sure what to do.
How did you deal with having a little one at the time....and how are you and her now>
regards
mel
At 4:18am on July 8, 2009, Melinda Kay Abernathey said…
I have been first on the list since I was added but it my own body that I am fighting with. My grandmother (which raised me) always told me that I was my worse enemy now I believe her. I would just like something to work out for me it just seems nothing comes easy for me but like I tell my children I have had a tough life but there our others that have it worse and I would not change anything as this makes me who I am and hopefully a better person.
At 5:08am on July 7, 2009, Melinda Kay Abernathey said…
Hi Kathryn, I was on Rituxan and IVIG but it kind of worked but not enough so right now we are not doing anything which is very hard for me to do. But they think that I have had these for a very long time and I do not maybe it's takes awhile to work. The other thing they will not do as they do not think I will be able to handle this procedure. It's very hard for me to go to my support group as the patients that are still waiting which is less than 6 mos do not have the same issue and the ones that have had their transplant can not relate to this as they also did not have this issue. I know that it's wrong but I also get jealous of those that have had their transplant and they were not on the list longer than 6 mos. please do not get me wrong as I am very happy for them it just gets me down and I know it shouldn't. I feel bad that I feel this way but there are days that I get so down that I just want to give up but this is not what have taught my daughters to be like so I can not let them down. So I pick myself up and get through another day. Sorry that I am probably babbling but there is not alot of people that I can talk to about how I feel.

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