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Kathryn Flynn's Groups
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Body Image & Self Esteem
30 members
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Cafe Shop - Great Music!
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Cafe Shop - Transplant B…
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Cafe Shop - Transplant D…
26 members
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Latest Transplant News F…
185 members
Kathryn Flynn's Discussions
Lungtransplant
Replied May. 1, 2009
Kathryn Flynn's Events
Full Time Life After 13+ Years
Gifts Received
Kathryn Flynn has not received any gifts yet
Latest Activity
Place to discuss lung transplant issues.
Hi Paul.... This is CJ received my first Double Lung Transplant in 2004, rejected in 2006 was relisted and received a single left lung 14 months ago.... So far, so good... I feel truly blessed!! Praying you get your transplant soon and that it will…
Folks I just learded I have been relisted for a second transplant. I'll get a right one this time. Pray it will last 13 plus years like the first one has.
Place to discuss lung transplant issues.
Place to discuss lung transplant issues.
Hi Pauline- that used to considered a short wait. I am happy to hear your success story.
Kathryn
Duke U Med Ctr TX 1996
Place to discuss lung transplant issues.
Profile Information
- What is your city / state and country of residence?
- North Carolina
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Double Lung
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- My donor family, my transplant team, my OPO, my husband,my Creator
- What is your principal transplant med(s)?
- Cyclosporin, imuran, advair discus inhaler
- What is your hospital and, or doctor's name, city / state and country?
- Duke U Med Ctr Durham, NC USA
Dr. Michael Zaas- Medical Director
Dr. Scott Palmer- Science Director
Dr. Duane Davis- Surgical Director
- What do you do for a living?
- Teacher of students with visual impairments
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I am 12 years post double lung, a mother of a beautiful 16 year old, a wife. a teacher (of students with visual impairments), and a former molecular biology technician
I just resigned after ten years as a board member of Second Wind Lung Transplant Association, Inc., an education and support organization for lung and heart/lung candidates, recipients and their families.
Toll Free Help Line: (888) 855-9463 Peer Support Program
- Please help us reach other members by telling us how you found Transplant Cafe:
- Invite from Nelson
- What is your relationship status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Folk, Mostly fiction
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://www.2ndwind.org
- My Facebook Page (copy and paste your profile page URL):
- http://www.facebook.com/home.php?#/group.php?gid=24350156230
Me, my daughter, my English sister-in-law, and my brother (they live in Leeds UK)
Kathryn Flynn's Videos
Kathryn Flynn's Blog
Looking back over 13 years
I have never blogged and don't claim to be good at it, profound or even wise. I just know I have a lot to be grateful for- in particular my donor family. Even in uncertainty they gave me back my life- a life that is "normal" with ups and downs, bills to pay, and a teen to soon put through college.
I would like to give a special shout out to our loved ones- in particular my husband, Rick. It hasn't been easy and life leaves it's scars but here we are, still together, facing the empty nest I neve… Continue
I would like to give a special shout out to our loved ones- in particular my husband, Rick. It hasn't been easy and life leaves it's scars but here we are, still together, facing the empty nest I neve… Continue
Posted on March 15, 2009 at 1:37pm — 1 Comment
Comment Wall (57 comments)
- At 11:53pm on December 20, 2009,
Karen Weddick said… - Hi Kathryn:
I'm sorry to hear that you may have to forgo the games but do understand. Let me know if anything changes. In the mean time I want to wish you and yours a wonderful, blessed, safe and memorable Christmas that last all through the New Year. God bless you and yours.
Hugs, Karen
glitter-graphics.com
- At 6:50pm on November 25, 2009,
Darlene Tanner said… - Thank you Kathryn, I am still in the testing stages now. Getting alittle stressed out with how slow it is going and some of the results but still have my chin up. Have a great Thanksgiving and bless you and your family
Hugs
Darlene
- At 8:56am on November 22, 2009,
Karen Weddick said…
- You are so welcome Kathryn and I look forward to meeting you too. What events do you do? Have a wonderful, safe and blessed week ahead.
Karen
glitter-graphics.com
- At 1:30pm on November 15, 2009,
Karen Weddick said…
- Hi Kathryn:
I'm so thrilled to hear you are going to the games...YEAH! Hope to meet you so see you at the party!
Hugs, Karen
- At 8:42am on September 4, 2009,
mel mac said… - hi karen...i see that you had your transplant when your little one was around 4 right? !2 post and a 16 year old daughter...i think i did the math right..lol. My little guy is 5 now and its been rough trying to figure out how to explain it to him. I live in pei which an atlantic canada province and when i get listed i will have to move to toronto to be within 2 hours of the hospital. The wait time scares me...should i take him with me .....would it be too much for him..he has been my little inspiriation and the thought of him not with me would be too hard. He gives me hope. But the thought of uprooting him and taking him to a different province...enrolling him in school...not sure what to do.
How did you deal with having a little one at the time....and how are you and her now>
regards
mel
- At 4:18am on July 8, 2009,
Melinda Kay Abernathey said…
- I have been first on the list since I was added but it my own body that I am fighting with. My grandmother (which raised me) always told me that I was my worse enemy now I believe her. I would just like something to work out for me it just seems nothing comes easy for me but like I tell my children I have had a tough life but there our others that have it worse and I would not change anything as this makes me who I am and hopefully a better person.
- At 5:08am on July 7, 2009,
Melinda Kay Abernathey said…
- Hi Kathryn, I was on Rituxan and IVIG but it kind of worked but not enough so right now we are not doing anything which is very hard for me to do. But they think that I have had these for a very long time and I do not maybe it's takes awhile to work. The other thing they will not do as they do not think I will be able to handle this procedure. It's very hard for me to go to my support group as the patients that are still waiting which is less than 6 mos do not have the same issue and the ones that have had their transplant can not relate to this as they also did not have this issue. I know that it's wrong but I also get jealous of those that have had their transplant and they were not on the list longer than 6 mos. please do not get me wrong as I am very happy for them it just gets me down and I know it shouldn't. I feel bad that I feel this way but there are days that I get so down that I just want to give up but this is not what have taught my daughters to be like so I can not let them down. So I pick myself up and get through another day. Sorry that I am probably babbling but there is not alot of people that I can talk to about how I feel.
- At 9:58pm on May 6, 2009,
Stacey and Rachel Sweet said… - Hi, Kathryn! My daughter, Rachel, is now 9 and received her new lungs at 6 months of age. It's inspiring to hear your story and see how far out you are, post-tx. I just wanted to say "hi." Stacey
- At 10:28am on April 28, 2009,
Tara Maynard said… - Hi there Kathryn, I just wanted to stop by and say that it is amazing to hear you are 13 years post transplant. I, myself will be 10 years post double lung due to CF next month. Just wanted to stop by and say hi...take care
- At 2:58pm on March 21, 2009,
Gail Csizmar said… - Kathryn,
Thanks for the info I contacted them and they are going to send me some material. I just received my big order from HRSA and am getting it organized to distribute in April.
Gail
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