Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I don't even know how to express my feeling of gratefullness to the family and the Donor, it is all so fresh for me. I want to cry for their loss but yet have happiness that they thought to give the gift of life to someone else that was truly in need. When time comes , I want to meet them and allow them to feel and hear that a part of their loved one lives on in me. They have gave me a second chance with my 3 boys and 6 grandchildren. I thank them, but most of all I thank God for giving them the choice they have made and for guiding my surgeons hands .
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
I had my transplant at Jewish hospital in Louisville Kentucky where I reside. I would not trade my transplant team for nothing they have been taking care of me for about 5 yrs. It took me 2yrs. For them to talk me into getting an LVAD, in which case I did and kept it for 3 yrs. And never gave up hope. Each day I went to my clinic appt. I would tell my Dr. 'Get Me A Heart' and he always promised he would. After lugging that LVAD around for 3 long yrs. And with some strong faith in God, I kept telling everyone this is my year 2012 I getting my heart you watch and see! And on july 15th I got the call july 16th is my new birthday as I see it. And what is so special is in Jan. I wrote in my calender book that has Angels in it, for July I wrote' god told my lil Angels he has something in store for me this month' now you tell me how grate thou art!
Which Transplant Medication(s) Do You Take?
Prograf,Cellcept,Prednisone, and many others
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
School for Nursing. Told my Transplant Dr. I'm coming to work for him when done since I know so much about all this when I finish, he said ok come on I sould be great at it coming from both sides.
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
Well I'm a single mother of 3 boys that are now grown, which I'm glad all this has happened to me while they are older and they can understand , but doesn't make it any easier. I've been going through all this since I was 36yrs. Of age, I'm now 49. Having the LVAD for 3 yrs. Has giving a chance to talk to the community and give them knowledge and other Dr.s and nurses that also didn't have the knowledge. I talk to patients the are pre LVAD. And I talk to patient that are post, gives me a happiness to know that's my calling and God has me here for a reason. And to all of you on here , he also has you here for a reason. So with that being said May God Always Bless Us All and keep us as he keeps the donors with us.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Gospal music, love my soaps....lol R@B music
What is Your Favorite Quote(s)?
Be happy for today cause you never know what tomorrow might biring.
Having the same problem with Prograf!! Loosing my mind with the amount of hair going down the drain!
Am in the uk & my consultant has mentioned cyclo but said it would have to be MY choice.
I would love to spk with you bout your…"
I'm new to this group too & have read your story...rough! Sure hope you are still doing well and your spirits are up!
As you probably know there are ups and downs emotionally post transplant.
I was diagnosed when I was 16 with…"
"A young New York woman was so depressed that she decided to end her life
by throwing herself into the ocean.
But just before she could throw herself from the docks, a handsome young
man stopped her.
"You have so much to live for," said…"
"My wife found out that our dog (a Schnauzer) could hardly hear, so she took it to the veterinarian. The vet found that the problem was hair in the dog's ears. He cleaned both ears, and the dog could then hear fine.The vet then proceeded to tell…"
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"