"why don't you consult with the nephrologists in India ? They may have cheaper solution . I am giving you email address of prominent nephrologist Dr. Dayanath Misra.. Dayanath@hotmail.com
if you wish take his…"
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Judi Pulaski
- Female
- Kendall, WI
- United States
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Judi Pulaski's Groups
Judi Pulaski's Discussions
CMV
Started this discussion. Last reply by Ram Kumar Sharma Mar 5. 1 Reply 1 Like
Judi Pulaski's Page
Latest Activity
Judi Pulaski posted a discussionCMV
Are any of you going through CMV out there? I first had it when I went through two rejections with my kidney years ago. Now this past 2 years I have had it now 5 times. It takes a series of Valcyclovier over a few months to get rid of it. Seems I no more get over it and it comes back. I just got done less than a month ago and my coordinator called yesterday to say that my levels are climbing.I went online to see what effects that disesse has on tx recipients and this is what it says:…See More
Judi Pulaski commented on Judi Pulaski's group Artists with Transplants"The past 2 years I have been having long episodes of CMV. It requires using Valcyclovier ($1,800 for 30 pills). I just got off a couple of weeks ago and CMV is back once again. I looked it up and here is the link that explains the…"
Judi Pulaski posted a discussionHIRSP (Health Insurance Risk Sharing Program)
Anyone on here have High Risk Insurance? I have HIRSP in Wisconsin and it helps with my meds. It kicks in to cover when I am in the donut hole as well as for my high cost co-pays. I was informed today by a supervisor of Medi Gap that it is on shaky ground and there are plans to do away with HIRSP coverage in Wisconsin. She said right now we are ok, but by 2020 it will be no more. She said we all need to flood our congressmen with calls and letters explaining how important it is for us. For…See More
Judi Pulaski commented on Judi Pulaski's group Artists with Transplants"It has been a long time since I have been active. On January 11, 2012 our house caught on fire (from the ground wire outside making contact) and burnt the whole end off of our home. we have a log home, so it had burnt a while before I…"
Megan Williams joined Judi Pulaski's group
Artists with Transplants
Team for Artists who have had transplants, waiting, donors or anyone to do with transplants and want to discuss our health issues as well as art.of all kinds!See More
Brad Johnson joined Judi Pulaski's groupArtists with Transplants
Team for Artists who have had transplants, waiting, donors or anyone to do with transplants and want to discuss our health issues as well as art.of all kinds!See More
Judi Pulaski commented on Stephanie Cart's group Transplant Rejection Survivors"Hi Morgan, I hope you are doing ok after having a rejection. Did they get you in time to save everything? The best to you! Judi"
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Kidney
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- My brother Kenley Arnold Muller who lovingly donated
University of Wisconsin Hospitals and Clinics for their awsome care over these years.
Dr. R Michael Hofmann for helping through these last difficult years. All the nurses and wonderful people
My family including my Mother & Dad, Son Wade, Sisters Carolyn and Joni and my great supporter husband Jim
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Living Donor
- Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
- I got my transplant on November 21st, 1990 at UW Wisconsin Hospitals & Clinics in Madison, WI. It was a very difficult time with things not going well including a surgery one week later to take the kidney out and re-connecting, then rejection and staying for 3 months. Very scary time....but the doctors & nurses were top notch!
- Which Transplant Medication(s) Do You Take?
- Started on Cyclosporine, Immuran, Prednisone for 12 years and had many difficulties, so then changed to Cellcept and Prednisone for the past years. Have done so much better!
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am disabled due to many health problems, but am an Artist of Acrylics and Porcelain Art. Painting has saved my sanity!
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- I am 64yrs/young. I lost about 20 years of my life being very ill and just don't feel like I should be my age! I am married to a wonderful funny guy Jim and have a grown son Wade, daughter-in-law Heather and awsome grandson Travis James we call TJ. TJ doesn't always understand why Grandma has such a hard tine getting up and down to play!
My Life has been a roller coaster. I was very sick for a long time. The first 12 years after the transplant were very difficult. I've had many lessons in life. Lots of weight gain, several more surgeries, a few heart attacks, couple of rejection episodes, pseudotumor cerebri, and years of being thankful to just wake up. After a bad bout of Shingles, I was put on Cellcept and taken off of Cyclosporine. It was an awakening. All of a sudden my head cleared, my feet didn't hurt every step, and I could function again.Now, I am like a new person. I am able to exercise every day and enjoy my life. I still have many health issues to deal with, but that is a small price to pay for a longer life with my family. I am able to pursue my art, spend time with my husband and enjoy my grandson. I appreciate every minute and don't expect so much out of life anymore. It is up to me to make my own self happy and I concentrate on the positive and don't sweat the small stuff anymore.Transplant is certainly a gift of life. I was on the downside of my life at the age of 40. I couldn't and wouldn't look ahead for fear that I wouldn't be around. Once I got my "gift of a kidney from my brother" I had hope. Everyone needs hope and a reason to get up in the morning.One of the other gifts I received, was the ability to help people who are depressed to come out of it. Through all of my challenges, I have learned what is important in life. I know that taking my meds, watching what I eat and exercise is so important. I know that having a positive attitude is a very big thing. I know the doctors tell us what to do, because that is what they know works. I try to follow as closely as possible all of the rules. If something bad happens, I want it to be that it is my time and not because I didn't want to follow the advice of my doctors.
I think most people expect to get their transplant and go on with their life in a "normal" way. For me it didn't happen that way. I had lots of side effects and difficulties from the meds. I went through many emotional ups and downs. I thought it was going to be easier than it was for me.
However, after my years of difficulties, many many hospital stays and surgeries, I am better than I have been in years. So my surprise, is that I am doing so well after all the bad.
If i could change things for my experience personally..... I
would not have wanted to have as many things go wrong that did. Nothing that went wrong with me was the fault of the doctors or my care. Each body responds to the meds differently. I just happened to be one of the unlucky ones who had a very difficult time. That is no fault of anyone, including my own. I did what I was supposed to and am thankful for that. I learned from the experience and am grateful for the chance to still be here. Of course, if I could change it I would most certainly liked to have gone through it all like a breeze!!!
My brother Arn is my hero. He stepped in and helped me when I had no other chance. He went through a lot for me and I am here because of his generosity. It is a painful thing and he was a trooper! I owe my life to him and can never convey my thanks. I know he donated to me because he loves me. I wake up every morning and thank God!
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- At my Transplant Check-up my Dr. Hofmann gave me the website!
- What Is Your Relationship Status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Favorite singer - Celine Dion, love lots of music including lots of Country music as well. Painting is my thing and spend most of my time listening to music as I paint.
- What is Your Favorite Quote(s)?
- Romans 8:28 All things work together for good for those who love God and are called according to His purpose
- Your Personal (non-commercial) Website, Page, or Blog URL:
- http://raccoonridge.com
- My Facebook Page URL:
- http://www.facebook.com/#/profile.php?ref=profile&id=1118762096
Judi Pulaski's Photos
Judi Pulaski's Blog
9 yr old with Acute Kidney Failure
Posted on December 29, 2009 at 3:40am 8 Comments 0 Likes
i have been absent for some time...so much going on! My cousin's little boy 9 yrs old had acute kidney failure due to strep throate. His function is 3%, BUN 75, CR 9, he is swollen and they sent him home!! He was in the hospital 3 weeks and they did IV Pred, it didn't help the kidneys and I can't believe they haven't put him on dialysis. Any of you out there ever heard of sending someone home with no dialysis at 3% kidney function??? His BP spikes dangerously high too! His urine is dark brown!… Continue
Feeling better and ready to Paint!
Posted on June 4, 2009 at 5:45am 0 Comments 0 Likes
Had a tough past few weeks. Since my transplant 18-1/2 years ago and lots of potent drugs, I have some bad times with low energy and just plain not feeling well. Just went through one of those times. The doctors have done some adjustments and I am doing great now. Ready to Rock and Roll with my paint brushes! God allowed me to have a longer life with this transplant and I plan on using all my time doing things that make me feel good. Painting is my thing. Just thankful for feeling better!
Living Well.... information
Posted on March 15, 2009 at 4:53pm 0 Comments 0 Likes
Yesterday I attended a Living Well Seminar that was put on by the National Kidney Foundation of Ill and WI, Americal Liver Foundation of IL, Transplant Wisconsin and Astellas Transplant Experience.. It was really very informative. I have been 18-1/2 years with my kidney and always knew you shouldn't have caffeine eat grapefruit or drink grapefruit juice.... I did not know that you should not have Pomegranate Juice, Green Tea or anything Herbal! Be sure to pass this to your transplant friends as… Continue
Comment Wall (9 comments)
- At 10:11am on July 13, 2010, Mausi said…
- Hi Judy,
Thanks for those kind words...I so appreciate them. You're right its good and in our situations its important to have friends, which I didn't realize until I joined the Cafe.....cuz I'm usually a loner. Everyone on this site is so friendly, helpful ,and caring.
I'm patient,so when its my turn to receive my 'gift' I'll be ready....
Thanks again,......stay well..........-maus-
- At 7:44pm on July 12, 2010, Mausi gave Judi Pulaski a gift…
- At 3:11pm on April 27, 2010,
Kim Teston said… - Feel free to email me at kclark30@hotmail.com
- At 11:50am on May 30, 2009,
mike buntlin said… - Hi Judi I agree the bad days pass. Thanks for the message. MIKE
- At 5:03pm on April 13, 2009,
Mike B. said… - Hi Judi, and thank you for the message. Hope you had a wonderful Easter too! Also it's nice to hear your back on-line. Everything is fine here, and thanks for asking. Have a great rest of the week. Take care, and God bless. Mike
- At 4:19pm on March 24, 2009,
R. Maimon said… - Hi Judi,
Thank you for taking the time to say hello and I am happy to meet people such as yourself through this venue. It is the first time I have put myself out there to be a part of something like this! Best regarfds,
- At 6:00pm on March 20, 2009, Mike B. said…
- Hi Judi, and thanks for responding to my blog! The conrads should go out to you! Wow, you are doing well, and 181/2 years are wonderful. Wishing you and yours all the very best always. Take care, God bless, and keep in touch. Mike
- At 10:38pm on March 18, 2009,
TC AdminKaren Weddick said… - Hi Judi: welcome to the transplant cafe. You have a smart doctor and congrats on your longevity. I made a group a while back called "Transplant Creations" Please check it out as I feel it would be perfect for you. I admire that you are an artist. You really need to add any art work that has been inspired by your transplant experience and/or life with a transplant. Anything goes here. Please check out my group of "Transplant creations" and I'll check out yours. Again welcome and glad you are doing much better on the Cellcept.
Hugs, Karen
- At 5:09pm on March 15, 2009,
Tracy & Nancy said… - Judi hi....
What a great story! Wow the Cyclo messed you up bad huh? I too had some problems with Cyclo and they switched me in 97 or 98~~~to prograff and did a whole lot better. Now I am back at that mabye needing a Kidney soon as I did lose my Pancreas last July, 2008. Well God is so good and I know I am in good Hands so I am thankful for everyday that comes my way:)
God bless you, Tracy
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TC AdminKaren Weddick commented on Lili Feldman's group The Funny Bone
"Oh my Lili, were you up all night again??? You're on another roll, thanks for the laughs. Keep'em coming!"
Walter s replied to Tai's discussion eating shellfish post transplant"I ate shrimp before but I stopped because I wasn't sure .. I was wondering the same thing because my favorite food is lobster and steamers :/"
Lili Feldman commented on Lili Feldman's group The Funny Bone"A man walks into a packed pub and shouts "Drinks are on me!"So the bartender gives every one a drink and says to the man "that'll be $96 please"The man looking puzzled says "I havn't got any money." So the…"
Lili Feldman commented on Lili Feldman's group The Funny Bone"Defense Attorney: Will you please state your age? Old Lady: I am 94 years old. Defense Attorney: Will you tell us, in your own words, what happened the night of April 1st? Old Lady: There I was, sitting there in my swing on my front…"
Daniel Larby posted a status"i had a liver transplant in 2007 im doing really well. hows everyone else doing sincee there transplants?"
Lili Feldman commented on Lili Feldman's group The Funny Bone"Two priests and a rabbi were discussing what portion of theweekly collection they kept for themselves. The first priestexplained that he drew a circle on the ground, stepped a fewpaces back and pitched the money towards the circle. Whatlanded in the…"
Lili Feldman commented on Lili Feldman's group The Funny Bone"Housework was a woman's job, but one evening, Jenny arrivedhome from work to find the children bathed, one load of laundry inthe washer and another in the dryer. Dinner was on the stove, and thetable set. She was astonished! It turns out…"
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