"Hello Scott i would like to know what if any response you have gotten. I am a double lung recipient and now after 8 months am looking forward to begin working out again. I use to use two favorite supplements that made such a huge difference (BSN…"
Just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. You will find everyone here is very kind and helpful, always willing to share their experiences and information that they have learned…"
Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I am grateful to everyone involved in my transplant as a whole. My family who stood by my side through it all, the many donations we received to help us fund the transplant, all the thoughts and prayers, and most especially the amazing family that through such and impossible experience made my second chance at life possible. A special thanks to my donor up above. I will do my best to make every day I live worthy of the sacrifice you gave...
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
My transplant was performed on September 24, 2010 by the amazing team at University Medical Center in Tucson, AZ. The doctors who performed the surgery were Dr. Michael Moulton and Dr. Steven Knoper. They were amazing and so attentive and knowledgable including answering my more than overwhelming barrage of anxiety-ridden questions. Through they're amazing care, i was able to leave the hospital after only a few weeks.
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
PreTX I was a network analyst for a utilities company. I also owned a business doing IT work for companies. Fortunately it was one of my hobbies also, so I really loved my work. My passions now include my twin daughters and spending as much time with them now that i can actually run and play alongside them, something we could never do before. I also enjoy shooting guns, though not hunting. I love camping with the family, playing poker, and also love to build and tinker with RC planes, trucks, boats, etc.
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I was diagnosed @ 6 months with Cystic Fibrosis. I lived a fairly normal life up through high school. I played sports like track and wrestling, and really was not held back much. My first hospital stay was not until I was right around 14 years old. Once I started working my days became longer and treatments were missed more and more often. By about age 21 I was going to the hospital around once a year. These last 6 years were the worst, culminating in my last year I would have to use a wheelchair on and off. I got down to 90 pounds and approx 14% lung function when i went in for my TX. Except for a few hiccups such as a pneumo during one of my bronchs, I have been doing great in my recovery and I am approaching my 6th month post TX. Every day has been a blessing! Especially considering they didn't think I would make it to 18 and celebrated my 34th birthday this year! I am so proud to have so many great examples of fighters out there like you guys to look up to!
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Most of the music I listen to is alot of punk, alternative, and rock to be as general as possible. I enjoy reading more than movies and mostly non fiction, especially the biographies of many of the people I admire.
What is Your Favorite Quote(s)?
"This too shall pass" ;)
"Life's not about the breaths you take but the moments that take your breath away"
Comment Wall (6 comments)
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Just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. You will find everyone here is very kind and helpful, always willing to share their experiences and information that they have learned along this journey. Make yourself at home and join a few groups (there is one for lung tx's), read discussions, make comments or start a discussion of your own. Congratulations on your double lung tx. I'm so glad that you are doing so well and enjoying life again. My best to you.
Hi there Josh:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
1972 & 2007 imikimi -
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Welcome to TransplantCafe.com - The Gift of eLife!
Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days. I will keep you in my thoughts - and hope for the best possible…"
Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.