"Hello Scott i would like to know what if any response you have gotten. I am a double lung recipient and now after 8 months am looking forward to begin working out again. I use to use two favorite supplements that made such a huge difference (BSN…"
Just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. You will find everyone here is very kind and helpful, always willing to share their experiences and information that they have learned…"
Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I am grateful to everyone involved in my transplant as a whole. My family who stood by my side through it all, the many donations we received to help us fund the transplant, all the thoughts and prayers, and most especially the amazing family that through such and impossible experience made my second chance at life possible. A special thanks to my donor up above. I will do my best to make every day I live worthy of the sacrifice you gave...
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
My transplant was performed on September 24, 2010 by the amazing team at University Medical Center in Tucson, AZ. The doctors who performed the surgery were Dr. Michael Moulton and Dr. Steven Knoper. They were amazing and so attentive and knowledgable including answering my more than overwhelming barrage of anxiety-ridden questions. Through they're amazing care, i was able to leave the hospital after only a few weeks.
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
PreTX I was a network analyst for a utilities company. I also owned a business doing IT work for companies. Fortunately it was one of my hobbies also, so I really loved my work. My passions now include my twin daughters and spending as much time with them now that i can actually run and play alongside them, something we could never do before. I also enjoy shooting guns, though not hunting. I love camping with the family, playing poker, and also love to build and tinker with RC planes, trucks, boats, etc.
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I was diagnosed @ 6 months with Cystic Fibrosis. I lived a fairly normal life up through high school. I played sports like track and wrestling, and really was not held back much. My first hospital stay was not until I was right around 14 years old. Once I started working my days became longer and treatments were missed more and more often. By about age 21 I was going to the hospital around once a year. These last 6 years were the worst, culminating in my last year I would have to use a wheelchair on and off. I got down to 90 pounds and approx 14% lung function when i went in for my TX. Except for a few hiccups such as a pneumo during one of my bronchs, I have been doing great in my recovery and I am approaching my 6th month post TX. Every day has been a blessing! Especially considering they didn't think I would make it to 18 and celebrated my 34th birthday this year! I am so proud to have so many great examples of fighters out there like you guys to look up to!
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Most of the music I listen to is alot of punk, alternative, and rock to be as general as possible. I enjoy reading more than movies and mostly non fiction, especially the biographies of many of the people I admire.
What is Your Favorite Quote(s)?
"This too shall pass" ;)
"Life's not about the breaths you take but the moments that take your breath away"
Comment Wall (6 comments)
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Just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. You will find everyone here is very kind and helpful, always willing to share their experiences and information that they have learned along this journey. Make yourself at home and join a few groups (there is one for lung tx's), read discussions, make comments or start a discussion of your own. Congratulations on your double lung tx. I'm so glad that you are doing so well and enjoying life again. My best to you.
Hi there Josh:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
1972 & 2007 imikimi -
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Welcome to TransplantCafe.com - The Gift of eLife!
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
7 hours ago
Pamela Sigmon is now a member of TransplantCafe.com - The Gift of eLife!
According to Life Scan, Diabetes is the 6th leading cause of death among Hispanics/Latinos in the United States and the 4th leading cause of death among Hispanic women and elderly. Nugget: Exercise =Prevention.See More
"Tx for reply, Wendy! How often do you run Allomapping blood test? Allomapping is not yet the gold standard suggested/used by NewYork-Presbyterian, nor is it available where we're at now, so it's not really an option for us. My key…"
"Wow I had to only to the biopsy for 6 months then they did the allomapping test. They now can tell if I have rejection thru blood work. Those are so uncomfortable! Prayers do her!! My transplant was in Nov 2013. Methodist Hospital in Houston Texas."
According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.See More
Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days. I will keep you in my thoughts - and hope for the best possible…"
Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More