"Hello Jeff Clardy,
My transplant coordinators got me in touch with XDX (866-939-2945) and I had to fill out a paper (I don't remember exactly what type) and they sent it to my insurance company I believe. I never payed…"
"Hello all, I was in Cleveland Clinic's trial for allomapping and it is so much better! I am 5 yrs out now and never rejected. My last 2 and 1/2 yrs have been allomap. It was getting very painful for me because of the scar…"
"Hi Jill, thanks for the comment back. I remember Kay, she is so sweet! My tx coordinator is Jim, he is absolutely amazing as well!! SO good to hear that you are doing well :) My 5 year checkup went good and I am training to go to the world…"
I just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. The people here are amazing and so supportive of one another~always willing to share their experiences and information that they have…"
Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
I am grateful for the donor & family members who gave me a perfect heart. My heart & I have never rejected so I know we were meant for each other. I will forever love this family whom I do not know!!!
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
I am lucky enough to live in the state of Ohio & have the best center in the world!!! Of course I am talking about THE CLEVELAND CLINIC!!! I also have been blessed to have the best cardiologist, the head of the transplant center!! I believe a super member of the team is their social worker, who supports me in everything and always has answers or will try to find them!!!
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a nurse of 30 years, 28 of them I worked at the same hospital. I was called to nursing when I was in 9th grade. I am also unemployed & have been unable to find any kind of a job because I am either "overqualified" or "not enough experience in a certain type of nursing." It has been a devastating experience the last 1 1/2 years.I have used up most of my retirement, cut down as far as possible, am having to drop my health insurance because they increased my already highly inflated rates (from $687 to $993/month. Even if I were working I could not afford that!! My life could be different if I was working.Keep praying for a job for me!!
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
My experience began with a rhythm change during work. I worked in the intensive care unit. I was about 23 years old. I had a fast Wolfe-Parkinson-White rhythm. It deals with the electrical system of the heart. I dealt with every rhythm in the book, fast rates, slow rates which led to several pacemakers over the years. I saw quite a few electrophysiologists and cardiologists. After an episode of Vtach I was flown to Cleveland where I was implanted with a defibrilator and a last resort bi-v pacemaker. It worked for a little while (about 3 months). I just dealt with the impending edn-stage failure.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I am a huge BonJovi fan!!! I also love Jim Brickman & Mark Masri!! I am a Michael Jackson fan also!I love chic flicks (Pretty Woman, An Officer & a Gentleman), & Michael Jackson's "This is It". My favorite authors arre Janet Evanovich, Nora Roberts, Dan Brown, & Joel Osteen
Comment Wall (6 comments)
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Hi Jill, thanks for the comment back. I remember Kay, she is so sweet! My tx coordinator is Jim, he is absolutely amazing as well!! SO good to hear that you are doing well :) My 5 year checkup went good and I am training to go to the world transplant games in Sweden this June. I'm super excited :) Have you seen my "Holdol Transplant Wear" tshirt in the patient waiting room showcase at the CC? I designed tshirts, hoodies and sweatpants as a way to spread awareness and help me get to the games. Here's my website if you would like to check it out, www.holdolskitchen.webs.com I am a chef, so there are delish recipes on there as well as transplant awareness :) Take care..
I just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. The people here are amazing and so supportive of one another~always willing to share their experiences and information that they have learned along this journey. Take a look around, join a few groups (there is one for heart tx's), read discussions, make comments or start a discussion of your own. Wishing you all the best!!
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
1972 & 2007 imikimi -
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