Jill Pierson's Page
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Jill Pierson commented on TransplantCafe.com's group AlloMap for All Heart Transplant Patients and Recipients"Hello Jeff Clardy,
My transplant coordinators got me in touch with XDX (866-939-2945) and I had to fill out a paper (I don't remember exactly what type) and they sent it to my insurance company I believe. I never payed…"
Jill Pierson commented on TransplantCafe.com's group AlloMap for All Heart Transplant Patients and Recipients"Hello all, I was in Cleveland Clinic's trial for allomapping and it is so much better! I am 5 yrs out now and never rejected. My last 2 and 1/2 yrs have been allomap. It was getting very painful for me because of the scar…"
Jill Pierson liked TransplantCafe.com's group AlloMap for All Heart Transplant Patients and RecipientsJill Pierson joined TransplantCafe.com's group
AlloMap for All Heart Transplant Patients and Recipients
Join the AlloMap Group to stay informed about the best innovations to care for and manage your heart transplant!See More
Holly Werlein (Holdol) left a comment for Jill Pierson"Hi Jill, thanks for the comment back. I remember Kay, she is so sweet! My tx coordinator is Jim, he is absolutely amazing as well!! SO good to hear that you are doing well :) My 5 year checkup went good and I am training to go to the world…"
Jill Pierson left a comment for Holly Werlein (Holdol)"My 5 year anniversary is April 28, 2006. I won't be going to my check until July.
"
Jill Pierson left a comment for Holly Werlein (Holdol)"Who is your social worker? I have Kay who is awesome!!! Thanks for the support.
Jill
"
Sue R. left a comment for Jill Pierson"Hello Jill,
I just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. The people here are amazing and so supportive of one another~always willing to share their experiences and information that they have…"
Holly Werlein (Holdol) left a comment for Jill Pierson"Welcome to the Cafe Jill. I agree the cleveland clinic is the best!!! I am coming up there for my 5 year checkup soon :) Hope all is well.."
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Heart
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- I am grateful for the donor & family members who gave me a perfect heart. My heart & I have never rejected so I know we were meant for each other. I will forever love this family whom I do not know!!!
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Deceased Donor
- Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
- I am lucky enough to live in the state of Ohio & have the best center in the world!!! Of course I am talking about THE CLEVELAND CLINIC!!! I also have been blessed to have the best cardiologist, the head of the transplant center!! I believe a super member of the team is their social worker, who supports me in everything and always has answers or will try to find them!!!
- Which Transplant Medication(s) Do You Take?
- Prograf, Cellcept (generic), effexor XR, Diltiazem XR, Calcium, Mag, simvistatin
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am a nurse of 30 years, 28 of them I worked at the same hospital. I was called to nursing when I was in 9th grade. I am also unemployed & have been unable to find any kind of a job because I am either "overqualified" or "not enough experience in a certain type of nursing." It has been a devastating experience the last 1 1/2 years.I have used up most of my retirement, cut down as far as possible, am having to drop my health insurance because they increased my already highly inflated rates (from $687 to $993/month. Even if I were working I could not afford that!! My life could be different if I was working.Keep praying for a job for me!!
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- My experience began with a rhythm change during work. I worked in the intensive care unit. I was about 23 years old. I had a fast Wolfe-Parkinson-White rhythm. It deals with the electrical system of the heart. I dealt with every rhythm in the book, fast rates, slow rates which led to several pacemakers over the years. I saw quite a few electrophysiologists and cardiologists. After an episode of Vtach I was flown to Cleveland where I was implanted with a defibrilator and a last resort bi-v pacemaker. It worked for a little while (about 3 months). I just dealt with the impending edn-stage failure.
- Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
- Online Advertisement
- What Is Your Relationship Status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- I am a huge BonJovi fan!!! I also love Jim Brickman & Mark Masri!! I am a Michael Jackson fan also!I love chic flicks (Pretty Woman, An Officer & a Gentleman), & Michael Jackson's "This is It". My favorite authors arre Janet Evanovich, Nora Roberts, Dan Brown, & Joel Osteen
Comment Wall (6 comments)
- At 8:35pm on December 14, 2011, Marina gave Jill Pierson a gift…
- At 12:03am on December 13, 2011,
TC AdminKaren Weddick said…
- At 9:21am on April 19, 2011, Holly Werlein (Holdol) said…
Hi Jill, thanks for the comment back. I remember Kay, she is so sweet! My tx coordinator is Jim, he is absolutely amazing as well!! SO good to hear that you are doing well :) My 5 year checkup went good and I am training to go to the world transplant games in Sweden this June. I'm super excited :) Have you seen my "Holdol Transplant Wear" tshirt in the patient waiting room showcase at the CC? I designed tshirts, hoodies and sweatpants as a way to spread awareness and help me get to the games. Here's my website if you would like to check it out, www.holdolskitchen.webs.com I am a chef, so there are delish recipes on there as well as transplant awareness :) Take care..
- At 5:45pm on March 23, 2011, Sue R. said…
Hello Jill,
I just wanted to drop by and say "Welcome", glad you decided to join us here at the cafe. The people here are amazing and so supportive of one another~always willing to share their experiences and information that they have learned along this journey. Take a look around, join a few groups (there is one for heart tx's), read discussions, make comments or start a discussion of your own. Wishing you all the best!!
Sue (Liver tx-2006)
- At 5:20pm on March 23, 2011, Holly Werlein (Holdol) said…
- Welcome to the Cafe Jill. I agree the cleveland clinic is the best!!! I am coming up there for my 5 year checkup soon :) Hope all is well..
- At 4:27pm on March 23, 2011,
TC AdminKaren Weddick said… Hi Jill:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
imikimi -
not a member yet?
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