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Mike
Happy New Year to you and your brother!
After about 6 weeks of being told my issues (diarrhea and swelling) were normal as part of the recovery from surgery, my transplant center (Indianapolis Clarian Methodist) allowed me to visit my pre-op docs in Detroit area. My gastro discovered the problem as Chylous Acities and put me on TPN (IV fluids only – no solid food) for 2 ‘cycles.’ The initial 2 month attempt appeared to be working but as we introduced solid food, the symptoms came right back. 2 attempts at TPN and I decided to seek help from a local transplant center nephrologist. I had gone to him during the TPN to make an intro in case I needed him later. When I gave up on the TPN (approx 4-5 months) my neph put me on Octreotide, a very expensive ($3,000 per month) injection and a 0 fat diet. We tried to taper this off a couple of times to no avail so we needed to let the lymphatic system heal itself (that’s the cause of Chylous Acities, a cut of the lymphatic vessels during the LAP surgery, which return muscle waste back thru your system and back into the blood stream for cleansing. They vessels just took a long time to heal). At the time I was only the 3rd reported case as a complication from LDN. Fortunately the transplant center paid all the bills and there wasn’t too much headache once it was resolved. My biggest beef is the lack of interest in the system to track and report the health of donors so future donors and donor centers can be better educated on the potential long term issues that may come up.
All in all, I’d do it again. Take care!
Just wanted to say hi....hope all is well with you in snowy colorado:) Tracy
Oh good'your' kidney is doing good and your kdny in your brother also...yes let both of those kidney's live a long time!
Nancy's (in me) kidney is still keeping me off Dialysis...my last creatine was 2.9 and to be on the active list there is a #number called GFR (something like that) that number needs to be 20 or below to be on the active lsit and mine was 23 on my last labs.
So when Nancy and I get back from Zurich~~~we will head to San Fran. for k/p evaluation.
Why San Fran.?
Well Barnes Jewish Hospital (Washington Univ school of medicine) havn't done to many k/p transplants...so UCSF has done I believe over 500...and what is so way cool for me is that Dr. Peter Stock was there at my first k/p transplant and him & Dr. Chris Freise know my body really well~~~so I have choosen those 2 Docs to do the next transplant...also the list for B bllod type (I am B+) is the shortest list to be on....so hopefully it won't be to long of a wait and Nancy's kidney will hold off Dialysis til then.....
Thank you for your prayers ...we will also be praying for you and your brother:) I will keep you posted and you do the same ok....
God bless you, Tracy
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