Jay Robare's Page

Latest Activity

June C and Jay Robare are now friends
Jul 15
Jay Robare posted a status
"I am BACK"
Mar 13
Jay Robare posted a status
"I am attending a wonderful church in the My Airy neighborhood of Philly"
Mar 13
Jay Robare posted a status
"I Have not been active here in a while. I have been trying to service here in Philadelphia"
Mar 13
Lili Feldman commented on Jay Robare's group Inspirational Stories
Sep 27, 2013
mark a martinez II joined Jay Robare's group
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Inspirational Stories

How has God touch you and your transplant experience. Share how God has helped and how He can help others get through this storm
Jul 8, 2013
AmandaSC replied to Jay Robare's discussion When I am going through the storm, I sing "How great thou art" What song helps you get by? in the group Inspirational Stories
"I love Be Thou My Vision. Keeping focus on Him is what gets me through the tough stuff."
Jun 16, 2013
AmandaSC replied to Jay Robare's discussion When I am going through the storm, I sing "How great thou art" What song helps you get by? in the group Inspirational Stories
"Whenever I am going through rough patches "He Whispers Sweet Peace to me" comes to mind. It helps me relax. Then I am able to lift my voice to the heavens in praise. I like to sing praise and worship music mostly but my favorite song…"
Jun 16, 2013
AmandaSC joined Jay Robare's group
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Inspirational Stories

How has God touch you and your transplant experience. Share how God has helped and how He can help others get through this storm
Jun 16, 2013
Jay Robare received a gift from Sunil Khanal
May 21, 2013
Devra k joined Jay Robare's group
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Inspirational Stories

How has God touch you and your transplant experience. Share how God has helped and how He can help others get through this storm
Apr 5, 2013
Beth Hartshorn joined Jay Robare's group
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Inspirational Stories

How has God touch you and your transplant experience. Share how God has helped and how He can help others get through this storm
Feb 12, 2013
Camille Smith liked Jay Robare's group Team Florida
May 5, 2012
Jay Robare commented on Jay Robare's group Inspirational Stories
"Your Cross Is You Remember, you are only an instrument. Not yours to decide how or when or where you act. I plan all that. Make yourself very fit to do My work. All that hinders your activity must be cured. Mine is the Cross on which the…"
Mar 15, 2012
Jay Robare commented on Jay Robare's group Inspirational Stories
"Draw Near  How little man knows and senses My need! My need of Love and Companionship. I came "to draw men unto Me," and sweet it is to feel hearts drawing near in Love, not for help, as much is for tender comradeship. Many…"
Feb 29, 2012
Connie Austin commented on Jay Robare's group Team Florida
"I'm also a NYC transplant.  I used to spend summers in Sarasota where my g'parents had retired, and even lived and went to school there one year.  In '76, I moved from Manhattan to Miami.  In '86 I moved north to…"
Feb 26, 2012

Profile Information

Recipient: What Type of Donor Did You Receive your Gift of Life From?
Not a Recipient
If You Are WAITING for a Transplant, Please Feel Free to Tell the Community About Your Experience With the Waiting Process.. To Help Us Get to Know You Better and Understand What You're Going Through:
I am still doing PD. I had a live donor who is a very good match but the west coast is telling me that they will not transplant me with her because her family has too many kidney problems...so, I am in my 7th moth on the wait list.
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a licensed massage therapist specializing in deep tissue and streyching. I am also a cartoonist and illustrator; I also do commercial art.
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am waiting on The Lord
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
I think it was from some mail I recieved about ny transplant
What Is Your Relationship Status?
Single
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I am listening to classical right now. I enjoy big band and classical rock. I sang in a very good barbershop choir in Michigan and I sing in church. Outside of gangster hip hop and opera, I like all types of music. I like comedy movies. I am a cartoonist and an illustrator so I really like Thomas Nast. I am reading the latest Grisham novel right now. I am in a study of Mark.
What is Your Favorite Quote(s)?
The American Commander Bastogne when commanded to surrender to the Germans, he said "NUTS!"
"Love, Peace...Taco Grease" Guy Fieri - Food Network
Your Personal (non-commercial) Website, Page, or Blog URL:
http://www.jays-art.com

Jay Robare's Blog

Waiting for a kidne...a poem.

Posted on December 15, 2010 at 5:30am 2 Comments

If it weren't for you

by Jay Robare on Tuesday, May 10, 2011 at 2:09pm

walking a tight rope high above the…

Continue

Comment Wall (20 comments)

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At 9:33am on May 21, 2013, Sunil Khanal gave Jay Robare a gift
At 8:19am on May 20, 2012, Karen Weddick said…
At 11:54am on August 31, 2011, Karen Weddick said…

Hi Jay:  Thank you for the birthday wishes.  I had a nice day celebrating another year of life and health.  I appreciate you thinking of me and remembering my day.

Hugs, Karen




Myspace Comments
At 10:20am on August 31, 2011, TransplantCafe.com said…

Hi Jay,

Ironically enough, I would actually ask Karen this question. She posts these types of images all the time so if there's a trick to it, she knows it!

Thanks,
Nelson

At 1:11am on May 26, 2011, Lili Feldman gave Jay Robare a gift
At 7:06pm on May 21, 2011, Sue R. said…
Wishing you all the best on your Birthday Jay !!!
At 12:58pm on December 07, 2010, Lili Feldman gave Jay Robare a gift
Gift
Thank you for your continued support of The Funny Bone. You are my rock. Merry Christmas.
At 1:45pm on November 8, 2010, Karen Weddick said…
Jay I loved the marching band video doing the Wizard of Oz; that was incredible. Thank you for sharing that with me.
Love, hugs, blessings and friendship,
Karen

The Wizard of Oz Pictures, Images and Photos
At 3:52pm on October 11, 2010, Lili Feldman gave Jay Robare a gift
At 3:47pm on October 11, 2010, Lili Feldman said…
Thank you so much Jay. That was a beautiful duet by Bocelli and Aguilera! Thanks for sending such a lovely song. I am a fan of both. Hugs and blessings. Lili
At 11:53pm on October 8, 2010, Karen Weddick said…
Hey Jay:
I see you changed your profile picture again. I wanted to thank you for the turtle video and I posted it on my animal web site. It's amazing how animals help each other out and yet people think animals are dumb and without feeling. Thanks again, take care and stay well and strong.
Hugs, love, blessings, peace and friendship,
Karen
At 6:24pm on October 6, 2010, Lili Feldman said…
Thanks Jay, for my "other" happy organ!
At 5:42pm on October 6, 2010, Betsy said…
One day soon you will receive a kidney and you can get back in the swing of things and start your new journey in life. Your patience and faith are to be commended. Best of luck and always praying for you Jay. Take Care of yourself.
At 5:39pm on October 6, 2010, Betsy said…
thanks for thinking of me Jay!
At 9:18am on October 6, 2010, Karen Weddick said…
Hey Jay:
Thank you for the Happy Organ video, I enjoyed it and love the name. You too will soon have a happy organ and I pray every day that your kidney is on it's way to you soon.
Hugs, love, blessings, peace and friendship,
Karen

At 3:52pm on September 5, 2010, Herbert Maldonado said…
Jay it was 7:30 pm eastern time.
At 8:01am on September 2, 2010, Karen Weddick said…
Hey my Pokey friend:
You don't look to shabby in the morning...lol! Thank you and I wish you a great day too.
You're the best Jay and I've been praying that your transplant is just days away; you so deserve to get back into life.
Love, hugs, blessings, peace, light, joy and friendship always,
Karen

PS: This is me:

 
 
 

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Latest Activity

Stefan posted a discussion

Hello, I am new here

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
8 hours ago
Stefan liked Stefan's profile
9 hours ago
Stefan left a comment for Stefan
"My wife is a double lung transplant of 15 years"
9 hours ago
Stefan is now a member of TransplantCafe.com - The Gift of eLife!
18 hours ago
Jeff Clardy posted a discussion

Surgery after transplant

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
yesterday
Karen Harrill replied to Phil Keyes's discussion Post transplant blues
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
Tuesday
Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
Tuesday
Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
Tuesday
Karen Harrill joined TransplantCafe.com's group
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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Tuesday
Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
Tuesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Makes sense to me. Good one David."
Tuesday
Ali Barton and Karen Weddick are now friends
Tuesday
Ali Barton updated their profile
Monday
Lloyd Hopes liked TransplantCafe.com's group Share Your Transplant Story
Monday
David Goodman commented on Lili Feldman's group The Funny Bone
"At a local bar in downtown St Paul, the owner and bartender, was so sure that he was the strongest man around, that he offered a standing $1000 bet.  The bartender would squeeze a lemon until all the juice ran into a glass, and then hand the…"
Monday
Caring 4 Carrie posted a status
"This is Mr. Ben Boyd. He's been a kidney support for our Cause. However, he was injured and seeking help. http://www.gofundme.com/e1wtg8"
Monday

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