Janet Dittman's Page
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AlloMap is absolutely safe and effective for treatment in heart transplant patients. I am a heart transplant recipient who has relied on AlloMap for testing now for a couple of years. I participated in a study through my hospital and had only Alloma…
Hey Michael that's super. I'm four years now and my meds still go up/down a bit. Yours may too. But that is awesome you're doing so well!
Hey Peach, did you land the job? Wishing you well!
I am 2 years and 4 months post TX. Love the Allomap! I just got a 29-no follow up biopsy. My doc told me that they are finding that if the Allomap comes back good....it's good. If it is high, then the Allomap isn't that great at telling them how bad…
Haven't had that done. I am four years out and doing great. Some folks think I am still on predizone -- been off a long time. Remember to let the folks who rule us know that our kidney tx need more protection (they cut their meds after a few years)…
Hi Terri - I definitely had/have memory problems. Read your med labels and I believe some might explain memory lapses. Also perhaps the anesthesia has something to do with it. I do hope your family has patience for you. I know mine had to develop pa…
Hey Paul.... I also had the wrist entry, but was left with a clot in my forearm (at UCSF). Anyway I do hope things look up for you soon. Thinking of you in California...
The scoring is 0 to 40 and I started at 30 and have slowly gotten to 37 over four years. Twice now I have had to have biopsy after Allomap, so there are those "false/positives". Luckily they have both been negative. However, did have bout of pneumon…
Hi Janet
I was on the Allomap clinical trial , i have been doing Allomap for two years. i think the score range is from 0 to 40 .
my last score was 20 and i did not have to have a biopsy. I think once your score is over 30 then they do a biopsy to m…
Hi Janet,
I haven't been allowed to have the Allomap test done as UW Madison feels there needs to be more studies done before they use it, however it sure looks to be a good thing. Just a simple blood draw is alot easier to deal with than a physical…
Hi Janet.
So is a score of 37 representative of a higher risk of rejection? I am sorry to hear you must have a biopsy. In my province they don't have that test yet, so I'm curious about how it works.
I hope everything turns out great for you of co…
Wondering if anyone is doing Allomap testing? I just had mine done and I got a score of 37 and now I have to go do a biopsy tomorrow... to be on the "safe" side.
Go in tomorrow for routine checkup at UCSF.... it's a good thing because I have a bit of cold/cough (no fever)!
That is some list... GO FOR IT!
Profile Information
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Heart
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- Prograf
rapamune
- What is your hospital and, or doctor's name, city / state and country?
- UCSF
- What is your relationship status?
- Married
Comment Wall (7 comments)
- At 9:50pm on December 9, 2009,
Holdol said… - Janet, I just wanted to say hi and see how everything is going for you :) Come join my kitchen, http://www.transplantcafe.com/group/holdolstckitchen for some delish recipes for the holidays! I hope all is well. Take care...
- At 1:25pm on October 14, 2009,
Jaclyn Botta said…
- I was 12 when I had the first one and the second one was 2 days before my 15th birthday. It's been one crazy rollercoaster ride...
- At 6:48am on July 13, 2009,
Simone VanTull said…
- Thank you Janet. I need them.
- At 8:38pm on July 11, 2009,
steve said…
- Hi Janet ,, I thought i would let you know that after my transplant i started getting headache's & migraines . the problem that i was having was the Prograf . i had to switch to Gengraf (cyclosproine) . This help get rid of my headaches and migraines . There is nothing worst than having Migraines everyday. I hope this helped you. -- Take Care
- At 11:57am on July 10, 2009,
Kurt Oblinger said… - That is amazing that we share the same transplant date! My friend Claire on here is also a 05/05/05 transplant. Love to hear your story sometime.
- At 10:14pm on June 14, 2009,
Terri Lynne said… - Hi Janet, welcome to TC! Glad you could join us...feel free to look around and check things out. We have forums, groups, blogs and more.
Please click here for more info to get you started.
Thanks, Terri
liver transplant july 2, 1991
- At 4:24pm on June 9, 2009,
Simone VanTull said…
- Hi Janet, I am waiting for a heart. I have a LVAD for 13 months now, and waiting. Love to speak with you
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