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Holdol's Discussions
Ideas for doing a donor drive/speaking
Replied 6 hours ago
Ideas for doing a donor drive/speaking
8 Replies
Started this discussion. Last reply by Tom Metcalfe 28 minutes ago.
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February 17, 2010 from 8pm to 9pm – Chat Room
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Latest Activity
I live in Ireland so I can tell you what has been done here. A lot of publicity has been created by the Irish Transplant Team going off to compete at international events such as the World Games, they have been on radio and television both when goin…
Karen , I really love your posting - So Beautiful
I agree with Lili - I want to frame in- I want to keep every word in my heart and mind
Thank You for sharing.- You're a Blessings to everyone you meet.
love & hugs
For those who would like to send out prayers and blessings to those in need. Whether your on the waiting list, or going through a rough patch let your prayers be heard
Karen, that is beautiful. I want to put it on my Facebook page. I want to keep a copy in my wallet. I want to frame it and put it on the wall. Thank you for sharing!
Hugs, Lili
Poems - Comments and Graphics!
I love lentils. Organic ground beef or in place of, sometimes cottage cheese, pinto, kidney, and black beans, chile powder ,paprika, S&P, a little garlic. and tomato paste, oh and onions. You?
Definitely black beans! They are delish and so versatile...
What main ingredients do you put in your chili?
Thank you so much everyone for all your ideas so far! It's definitely a work in progress. Let's all keep spreading the word :)
Holdol,
These are all great ideas....I volunteer at our local Organ Procurement Organization (OPO) and also visit blood drives when I find out about them (with authorization of course) to encourage those donating blood to be an organ donor too! 14…
I use to speak for Life Link in Florida....and we would speak to churches, hospitals and other locations where they had a group gathered for whatever reason. There are support groups at the transplant hospitals and are so useful in helping the patie…
Cafe Chat at Chat Room
February 17, 2010 from 8pm to 9pm
Chat with other fellow members of the Cafe on our live chat! We will have a meet & greet, discuss side effects of our meds, how to deal with depression and any other topics you'd like to talk about. This is going to be a great way to get to know eac…
I think Universities are a great idea.
Also, once you know where and when you will be speaking, let the area media know.
Spread the word through facebook, twitter, craigslist and local newspapers and news stations.
Someone might be interested in do…
Profile Information
- What is your city / state and country of residence?
- Michigan
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Liver
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- prograf, rapamune
- What is your hospital and, or doctor's name, city / state and country?
- Cleveland Clinic in Ohio
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I never thought in a million years that I would go through something like this. My story isn't like most peoples who unfortunately had to wait. I am one of the rare few that went through acute fulminant liver failure. I just happened to be in the right place at the right time. I was at the Cleveland Clinic for a totally unrelated appt and my mom noticed my eyes were yellow. I hadn't been feeling all the best, upset stomach, fatigue and just figured it was nothing. Well my doctor had my liver enzymes tested and they were in the thousands, so she immediatley admitted me. I thought this was crazy! They tested me for everything possible and couldn't find anything wrong.
Our 2 day trip turned into an unexpected month long stay at the hospital. I remember 3-4 days in the hospital and the rest is vague memories, until I woke up! I had no idea I had a liver transplant! Apparently, my parents told me, I was telling docs I was in Florida. They thought my liver was going to regenerate since I was so young, but the toxins continued to build up and finally docs realized that after a liver biopsy. I was immediately put on the list 1st in the nation for a liver. Miraculously, they found one in 8 hours and I was transplanted with no time to spare. It's amazing how quickly this all happened and they never figured out the cause of my liver failure, which is scary. They said it had shrunk to 1 lb and had brown spots on it, which is weird.
My recovery was quick at first, but I went through good 'ol rejection about 2-3 weeks after. Ever since I've been doing good. My family has been my rock and I'm so thankful for them and each day that I am alive! However, the realization process for me has been hard at times. I feel like I'm dreaming. It was a completey unexpected change of life for me and it still feels surreal that it even happened. T
The Gift of Life is so amazing and we are all true miracles :) I''m so happy to be alive and so thankful for my donor! I'm really into being a donor advocate and like to share my experience with others. I feel I'm alive to help do as much as I can to promote organ donation :)
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Comment Wall (287 comments)
- At 11:27pm on February 7, 2010,
Herbert Maldonado said… - blah.. seriously going thru rough time again!.. i was getting better and then BOOM someone has to ruin it for me... i dunno y stuff has to happen to me.. like i need a break from it.. i need to try to clear my mind but i never can cuz i worry 24/7..and to add more mess on top of it and someone trying to make me seem like an a-hole is just something i really dont wanna add to my plate but i do...i seriously need a reset button..
- At 7:23pm on February 7, 2010,
Paula M. Rice said… - New Orleans, simply because they've never been,IE won! I know, silly reason. Hugs & Blessngs, Paula
- At 5:50pm on February 7, 2010,
Maxene (Mike's wife) said… - This is all too confusing. I'm out of here. Good luck to all of you. I asked a question and did not receive an answer. Is there a group for spouses or caregivers. I am totally having an anxiety attack here because I am the pro-active one here and my husband is leaving it all up to me. He is acting like this is no big deal. I'm concerned about the physical issues and well as financial, and I don't know that I'll be able to get through this. On top of that, this website is the pits. It is all too confusing, not user friendly. Thank you but I'm not coming back.
- At 4:43pm on February 7, 2010,
Maxene (Mike's wife) said…
- I am so confused by this site. I am very internet savvy but have never come across a site such as this. I really have no idea what to do.
- At 3:59pm on February 7, 2010,
Paula M. Rice said…
- Holdol, hi. Do me a favor? Was talking to Mary Gillilan in chat & didn't get a chance to ask her to join my frinds list. DUH, AGAIN! Don't know how to do it, myself.She jst joined your Cafe. Yes,I really am comp. illiterate! If you can. Thanks. Getting ready to watch Super bowl & will print out the muffin recipe, then. It's coming! It's super simple, w/a ton of easy variations. Something for everyone. Really. Hugs & Blessings, Paula PS. Love the Saphires/diamonds?
- At 3:07am on February 7, 2010,
Paula M. Rice said…
- About the squash sop, forgot the 1/4-1/2 tsp. bottled ground ginger. Believe me, it's needed. Ad it when you fork puree the appls & squash, w/the liquid. It will meld into the other ingredients when the cream is added & slowly heated. Told you I was "DUH" this week! Glad it's almost over. I'll print out the muffin recipe before sending it to you. Promise. Hugs & Blessings, Paula
- At 1:29pm on February 6, 2010,
Alan Molenaar said… - Awesome quote miss quote master, or is it miss quote mistress? lol. Hope you have a wonderful weekend and that you're once again accustomed to the cold n icy weather. Dream board Holdol, I want pics ;) Chat soon x
- At 11:01am on February 6, 2010,
Bill Wohl said… - Hey Girl,
I'm having trouble uploading my new Video to Cafe.
Any ideas or suggestions.
Thanks.
Bill
- At 9:39am on February 6, 2010,
Herbert Maldonado said…
- Forget looking back at my past every night.. time to look forward and get ready for my future! if everything happens for a reason let me make sure its a good reason!
- At 2:17pm on February 5, 2010,
Herbert Maldonado said…
- Hey Holdol, i was looking at your photo's from the cruise, looked like an amazing time!.. I SOOOO wanna go on a cruise but am TERRIFIED of them big boats lol but i def will try it.. One of my cousins is dying to go on cruise so I might end up going with him... I heard its better to go on winter time on carribean cruise because the waters are calmer,...know anything about that?? hope all is well! talk to u soon
Latest Activity
I live in Ireland so I can tell you what has been done here. A lot of publicity has been created by the Irish Transplant Team going off to compete at international events such as the World Games, they have been on radio and television both when goin…
Karen , I really love your posting - So Beautiful
I agree with Lili - I want to frame in- I want to keep every word in my heart and mind
Thank You for sharing.- You're a Blessings to everyone you meet.
love & hugs
For those who would like to send out prayers and blessings to those in need. Whether your on the waiting list, or going through a rough patch let your prayers be heard
Karen, that is beautiful. I want to put it on my Facebook page. I want to keep a copy in my wallet. I want to frame it and put it on the wall. Thank you for sharing!
Hugs, Lili
Poems - Comments and Graphics!
I know this drill. When I was diagnosed with Hep C, 8 years ago, my doctor wanted me to do the interferon/ribavirin therapy. BC/BX said it was "experimental." My hepatologist went to bat for me and they paid. Then, I needed xifaxin to help rid my bl…
Getting it done isn't the difficult part, that just making phone calls, sending e-mails, etc... The hard part is trying to put people together that are interested in the concept.
I know this thread is a bit old, but its still high on my list of thi…
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