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Holly Werlein (Holdol)
  • Female
  • Traverse City, MI
  • United States
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I could use some help...

Replied Jul 14

US Transplant Games

Replied Jun 5

 

Holly Werlein (Holdol)'s Page

Latest Activity

Lina Spencer joined Holly Werlein (Holdol)'s group
Holdol's TC Kitchen
Cooking tips, recipes, games, nutrition and more!
7 minutes ago
Javier Espinosa and Tammy F joined Holly Werlein (Holdol)'s group
Chat Time!
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
3 hours ago
Holly Werlein (Holdol) replied to Holly Werlein (Holdol)'s discussion 'Ask me!!' in the group Holdol's TC Kitchen
Hi Jack, I can for sure find you some good recipes with no/low sodium. It's nice that lots of veggies, soups and other products now come low sodium. I especially like to use a no salt seasoning spice to put on a lot of my food instead of regular sal…
14 hours ago
Holly Werlein (Holdol) left a comment for Lawrence Bloomer
14 hours ago
Holly Werlein (Holdol) left a comment for Jane Tucker
14 hours ago
Holly Werlein (Holdol) is now friends with Brian Caneda and Jack McParlane
16 hours ago
Sharon Brown commented on Holly Werlein (Holdol)'s blog post 'Holdol's Tshirt Drive'
Hi Holly, I would love to get a Hoodie. I like them really big, so whats the largest size you have....so what do I do next? Let me know....cuz we gotta get you to Sweden to represent us here that can't go...but we'll be with you in spirit!!!!!!! Hug…
19 hours ago
Herbert Maldonado commented on Holly Werlein (Holdol)'s group 'Chat Time!'
Anyone down for a Thursday chat?
yesterday
Laura, Sarah Copeland and 3 other members joined Holly Werlein (Holdol)'s group
Chat Time!
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
yesterday
Jay Robare commented on Holly Werlein (Holdol)'s group 'Chat Time!'
I got a good chuckle when we were talking meds and our emotional swings...I will be at the next session.
on Monday
Herbert Maldonado commented on Holly Werlein (Holdol)'s group 'Chat Time!'
Ok so the first 'Chat-Time' session was pretty fun! Lot's of good conversations and hopefully more people try to make the next one... If people can start telling me what time / day's is good for them, I will try to arrange more days for more of us c…
on Monday
Belinda Green and Holly Werlein (Holdol) are now friends
on Sunday
Herbert Maldonado commented on Holly Werlein (Holdol)'s group 'Chat Time!'
7:30 pm e.t U.S
on Sunday
TransplantCafe.com commented on Holly Werlein (Holdol)'s group 'Chat Time!'
Herbert and everyone else: this link will take you directly to the chat room page: http://transplantcafe.com/chat. This is the same chat room from below, but on it's own page. So, whether people get there from clicking the bottom of the screen or fr…
on Sunday
Dana Herring commented on Holly Werlein (Holdol)'s group 'Chat Time!'
Hello yall!
on Sunday
Dana Herring, Zoe Drella and Jack McParlane joined Holly Werlein (Holdol)'s group
Chat Time!
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
on Sunday

Profile Information

What is your city / state and country of residence?
Michigan
How are you touched by transplantation?
I am a Recipient
If you are a recipient, what type of transplant did you receive?
Liver
If you are a recipient, what type of donor did you receive your Gift of Life from?
Deceased Donor
What is your principal transplant med(s)?
prograf, rapamune
What is your hospital and, or doctor's name, city / state and country?
Cleveland Clinic in Ohio
About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
I never thought in a million years that I would go through something like this. My story isn't like most peoples who unfortunately had to wait. I am one of the rare few that went through acute fulminant liver failure. I just happened to be in the right place at the right time. I was at the Cleveland Clinic for a totally unrelated appt and my mom noticed my eyes were yellow. I hadn't been feeling all the best, upset stomach, fatigue and just figured it was nothing. Well my doctor had my liver enzymes tested and they were in the thousands, so she immediatley admitted me. I thought this was crazy! They tested me for everything possible and couldn't find anything wrong.
Our 2 day trip turned into an unexpected month long stay at the hospital. I remember 3-4 days in the hospital and the rest is vague memories, until I woke up! I had no idea I had a liver transplant! Apparently, my parents told me, I was telling docs I was in Florida. They thought my liver was going to regenerate since I was so young, but the toxins continued to build up and finally docs realized that after a liver biopsy. I was immediately put on the list 1st in the nation for a liver. Miraculously, they found one in 8 hours and I was transplanted with no time to spare. It's amazing how quickly this all happened and they never figured out the cause of my liver failure, which is scary. They said it had shrunk to 1 lb and had brown spots on it, which is weird.
My recovery was quick at first, but I went through good 'ol rejection about 2-3 weeks after. Ever since I've been doing good. My family has been my rock and I'm so thankful for them and each day that I am alive! However, the realization process for me has been hard at times. I feel like I'm dreaming. It was a completey unexpected change of life for me and it still feels surreal that it even happened. T
The Gift of Life is so amazing and we are all true miracles :) I''m so happy to be alive and so thankful for my donor! I'm really into being a donor advocate and like to share my experience with others. I feel I'm alive to help do as much as I can to promote organ donation :)
Please help us reach other members by telling us how you found Transplant Cafe:
Transplant Event
What is your relationship status?
Single
What is Your Favorite Quote(s)?
If you can dream it, you can do it
My Facebook Page (copy and paste your profile page URL):
http://www.facebook.com/home.php?#/profile.php?ref=profile&id=7...

http://www.transplantcafe.imagekind.com/holdol

Holly Werlein (Holdol)'s Photos

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Comment Wall (430 comments)

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At 1:59pm on August 31, 2010, Tara Maynard gave Holly Werlein (Holdol) a gift…
Red Ribbon
Red Ribbon
From the Gift Store
At 11:16pm on August 27, 2010, Nick Sar said…
Happy a happy weekend and thank you for the nice and warm welcome.
At 2:48pm on August 27, 2010, Rachael W said…
Thanks so much, Holly! You are definitely the right person to "get the word out on the Cafe". I'm not on FB, but it is on the UNOS and NKF pages. Thanks for the tips.

Aloha,
Rachael
At 11:26am on August 26, 2010, Steven said…
Hi Holly and thanks so much for the welcome message and the invite to your recipes.... I dunno, you'd be hard-pressed to top the renal brownies ;)
At 6:26am on August 25, 2010, Jane Tucker said…
Hello Holly,

It was such a pleasure meeting you at the Madison, games, in the swimming event. I completely enjoyed our visit, and also with your lovely family. Thank you also for your most thoughtful yogurt that you ever so sweetly gave me, as i wasn't feeling well. Congratulations on your success within these events. Bill and i also enjoyed our night at the Great Dane, thank you very much, you made a very welcoming and thoughtful hostess and allowed a fun evening. I'd love to keep in touch with you, and now to enjoy your cooking section of this site. Again, it was lovely meeting you. It is i who will need a heart one day. Many thanks, Jay-nee
At 10:21pm on August 24, 2010, Rachael W said…
Hi, Holly,

Thanks for the welcome. I created a blog post, but I'm not sure if I'm supposed to do something to share it with others. Can you please help me?

Thanks,
Rachael
At 8:34pm on August 19, 2010, jimmy wilkins said…
Hey Holly just stopped by to say hello and hope u are doing well much love Jimmy
At 10:03pm on August 13, 2010, Barb Witt said…
Thanks for the note and the friend invite. So far, so good with the kidney. I was one piece in a domino tx surgery involving four paired donor/recipients, one altruistic donor, and one person taken off the waiting list. Basically, it was like a big circle of giving and receiving, with the recipients not knowing who their donors are. My nephew was my incompatible donor.....he did find out who got his kidney by doing a little sleuthing while in the hospital. Now to get myself ready for the next US games!
At 1:25am on August 13, 2010, Müriel C. said…
Thank you, Holly for your nice message.
At 7:09pm on August 9, 2010, Lawrence Bloomer said…
Holly, It's to bad we did not meet at the games. Next games 2012 see ya there !!!

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Latest Activity

Lina Spencer joined Holly Werlein (Holdol)'s group
Holdol's TC Kitchen
Cooking tips, recipes, games, nutrition and more!
5 minutes ago
Cindy Wenaus and Darlene Tanner are now friends
10 minutes ago
Rose Soros replied to Brian Caneda's discussion 'how did everyone pay for the transplant?' in the group Team Kidney
Thanks god for good insurance. My insurance paid for my transplant and the donors 100% . Not just that, they also made up to $10,000 available for living expenses for the donor (my husband)and me . We are truly lucky. If you can get Medicare they wi…
2 hours ago
Javier Espinosa joined Holly Werlein (Holdol)'s group
Chat Time!
To get the chat room rocking with conversation come here to schedule a time to chat with your fellow transplant friends. Meet new people, discuss different topics/issues and relate to others who understand what your going through.
2 hours ago
Hari Narayan Sharma left a comment for stephen galvin
4 hours ago
Hari Narayan Sharma left a comment for Mark Friemel
4 hours ago
Hari Narayan Sharma left a comment for Jonathan Kiser
4 hours ago
Hari Narayan Sharma left a comment for Jan S
4 hours ago

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